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CLL Topics: Therapies, Research and Patient Education for Chronic Lymphocytic Leukemia

CLL Topics dedicated to the fight against chronic lymphocytic leukemia - patient education and support, clinical research and new therapies

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CLL Topics: Therapies, Research and Patient Education for Chronic Lymphocytic Leukemia | clltopics.org Reviews
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CLL Topics dedicated to the fight against chronic lymphocytic leukemia - patient education and support, clinical research and new therapies
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1 patient education
2 CLL
3 chronic lymphocytic leukemia
4 volunteer
5 therapy choices
6 chemotherapy
7 immunotherapy
8 clinical trial
9 chemoimmunotherapy
10 stem cell transplant
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updates,most recent article,for profit,recently published,itp immune thrombocytopenia,refractory cll,radioimmunotherapy underappreciated,radioimmunotherapy reimbursement cuts,harvey's battle plans,bexxar radioimmunotherapy,rituxan plus fenretinide,aiha
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CLL Topics: Therapies, Research and Patient Education for Chronic Lymphocytic Leukemia | clltopics.org Reviews

https://clltopics.org

CLL Topics dedicated to the fight against chronic lymphocytic leukemia - patient education and support, clinical research and new therapies

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Harvey's Journal: The Story of an Elective Cord Blood Stem Cell Transplant

The Story of an Elective Cord Blood Stem Cell Transplant. Welcome to Harvey’s Journal. Posted on July 22nd, 2008. This is the journal of Harvey , a chronic lymphocytic leukemia (CLL) patient, as he went through a. Umbilical cord blood stem cell transplant at the University of Minnesota. If you are a new reader to this journal, you may want to read earlier installments. Of Harvey’s story on the CLL Topics website. I am told there is an uncanny resemblance between Harvey and my husband PC! 2008-04-04 A Day...

updates.clltopics.org updates.clltopics.org

CLL Topics Updates: Dedicated to the Fight Against Chronic Lymphocytic Leukemia

Is dedicated to the education and empowerment of chronic lymphocytic leukemia (CLL) patients and their caregivers. If you want to learn more about CLL, its therapy options, prognostics, potential complications, interesting clinical trials and cutting-edge research, we can help. We are not affiliated with any company or institution in the healthcare business. Please take a few minutes to learn more about us. Visitors are welcome to browse our articles. And read member comments. President, CLL Topics.

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CLL Topics: Obituary - P. C. Venkat, 1949 - 2008

http://clltopics.org/Obituary.htm

P C Venkat, 1949-2008. P C Venkat, 1949-2008. Date: July 3, 2008. Read about his elective cord blood stem cell transplant at Harvey's Journal. Husband, father, brother and patient advocate, died at the University of Minnesota Fairview Hospital on the afternoon of Monday, June 23rd 2008 from complications of a stem cell transplant to cure his Chronic Lymphocytic Leukemia. He was 59. He was the first man I ever loved. He brought me roses when I was fifteen and my first boyfriend broke up with me. I...P C i...

2

CLL Topics: A CLL Primer

http://clltopics.org/Primer.htm

Updated: March 23, 2011. An Introduction and Guide for the Newly Diagnosed Patient. Useful Tools for Patients:. Patient Advocacy for Times of Rapid Change. Here is how it usually happens, a sneak attack you were not expecting that leaves you confused and more than a little scared. You have just been diagnosed with this nasty stuff called CLL, probably following a routine blood test. If you are like most people you have never heard of this cancer. What the heck is that? Wait for how long? If you are a CLL...

3

CLL Topics: Refractory CLL

http://clltopics.org/DC/Refractory.htm

Date: October 14, 2007. When You Have Been Around the Track a Few Times. Multi Drug Resistance to Chemotherapy. All too often, the emphasis of research and clinical trials is focused on newly diagnosed or “naïve” ( = previously untreated) patients. But the reality is that except for a minority of exceptionally lucky CLL patients with truly smoldering disease that never needs treatment, for most of us the disease. Progress over time and. Therapy and Drug Resistance. What has actually happened here? With m...

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Member Scopes

http://www.astroverde.org/member_scopes1.htm

Many of our club member scopes are hand crafted by the owners. This produces a telescope of high quality and better optics that can be found in commercial telescopes. Richard Bohner shows off his Celestron 152mm refractor. Karen, the First Lady of the Club, looks through her 6 inch reflector made by the late optician Pierre Schwar. J D's 11 incher is in the background. Fred (standing) has a serious discussion with Milt (seated) on the resolution of his 14 inch telescope. Milt with his huge TEC refractor.

kathleenw-blahblahblog.blogspot.com kathleenw-blahblahblog.blogspot.com

Blah Blah Blog: February 2009

http://kathleenw-blahblahblog.blogspot.com/2009_02_01_archive.html

Saturday, February 21, 2009. So, it has taken me two weeks of hard work, but I finished (stage 1) of my prints today. Just felt a need to say, "Arghh! For Christmas my mother bought me the electrical connection from my home made exposure machine to the circuit box and it works so well. I'm pretty pumped. Wednesday, February 11, 2009. On the flip side I realized the other day that I have passed my first prognostic mark. The first life expectancy deadline was 18 months! On the strange side when I was readi...

kathleenw-blahblahblog.blogspot.com kathleenw-blahblahblog.blogspot.com

Blah Blah Blog: August 2008

http://kathleenw-blahblahblog.blogspot.com/2008_08_01_archive.html

Saturday, August 9, 2008. It's time for an update, any update. I am in hot and steamy, despite the bad draught, Atlanta, GA. Mom and Dad had a car accident and we decided it would be best for me to come here and finish packing the house to prepare them for their move to the retirement duplex. I think my asthma meds alone will reach the one million cap in a few years (joke). So we've been wrapping our heads around all this, trying to figure out what to do. Is there anything we CAN do? Claire and I have cl...

updates.clltopics.org updates.clltopics.org

CLL Topics Updates » Au revoir, not good-bye.

http://updates.clltopics.org/4751-au-revoir-not-good-bye

Au revoir, not good-bye. October 6th, 2012. I have been doing this for so long, I can barely remember the person I was before I started writing about CLL, back in 2002. It has been a pretty wild ride! I would like to think. This is just a “so long” and not a “good-bye”. Before you freak out, I want to make sure you understand we are. Not (repeat, not). Shutting down the websites. And Harvey’s Journal. Websites will continue to be hosted and available. You know who you are! You are not just “members...

updates.clltopics.org updates.clltopics.org

CLL Topics Updates » Time to say good-bye

http://updates.clltopics.org/4874-time-to-say-good-bye

Time to say good-bye. June 23rd, 2013. All things come to an end. My “sabbatical” has ended, it has now become full fledged retirement. Today is a particularly poignant day for me to say my farewells to all of you. It has been exactly five years since my husband PC died. I have tried to document his transplant journey. For those of you who might find it interesting or helpful in your own future travels. Several months ago I read a book titled Year of magical thinking. One of my reasons for walking away f...

rob46.wordpress.com rob46.wordpress.com

Dell Computer – Defective USB Ports – Update | sumo, ergo bloggum (delta)

https://rob46.wordpress.com/2006/11/27/dell-computer-defective-usb-ports-update

Sumo, ergo bloggum (delta). November 27, 2006. Dell Computer – Defective USB Ports – Update. 8212; Rob @ 6:07 pm. So I took a different tack and installed a board with 5 USB ports on it (this took less than one minute) and, presto! I now have 5 new working USB ports (Yea! In the rear of my computer despite the fact that 6 of the original 8 USB ports are still. The really good news is that I can now use my multi-card reader to upload photos from my digital camera to my computer. Still, the 6. Photo Manipu...

lymphomaniac-musings.blogspot.com lymphomaniac-musings.blogspot.com

Musings of a Lymphomaniac...: Game on! A fork in the road of my SLL/CLL journey...

http://lymphomaniac-musings.blogspot.com/2013/02/game-on-fork-in-road-of-my-sllcll.html

Musings of a Lymphomaniac. My Journey with Chronic Lymphocytic Leukemia/Small Lymphocytic Lymphoma. Friday, February 1, 2013. A fork in the road of my SLL/CLL journey. Example - Not My Toe :-). No, lets face it, as a middle-aged male of northern-European ancestry with fair skin, light eyes, numerous freckles, irregular moles; and topped off with SLL/CLL, I fear that if you look up the definition of "skin cancer" in a dictionary you'll find my photo! The main event for the day was my quarterly appointment...

lymphomaniac-musings.blogspot.com lymphomaniac-musings.blogspot.com

Musings of a Lymphomaniac...: 5/23/10 - 5/30/10

http://lymphomaniac-musings.blogspot.com/2010_05_23_archive.html

Musings of a Lymphomaniac. My Journey with Chronic Lymphocytic Leukemia/Small Lymphocytic Lymphoma. Wednesday, May 26, 2010. The beginning of a new phase. Well, you may ask, how are you doing? My smart-ass response nowadays is "I still have a pulse"! Actually, I'm doing pretty well. Today was the first regular "check-up" appointment with my best friend the Oncologist; the beginning of the next phase in my "life with Lymphoma". What does the future hold? If you find out anything, let me know! National Ins...

lymphomaniac-musings.blogspot.com lymphomaniac-musings.blogspot.com

Musings of a Lymphomaniac...: "As Good as it Gets..."

http://lymphomaniac-musings.blogspot.com/2014/10/as-good-as-it-gets.html

Musings of a Lymphomaniac. My Journey with Chronic Lymphocytic Leukemia/Small Lymphocytic Lymphoma. Thursday, October 30, 2014. As Good as it Gets.". Today I was reminded of a statement made to me by Dr. Kaplan nearly four years ago when I first transferred the care and feeding of my CLL/SLL to his clinic at UCSF - "You will never be any better than you are today". Kind of an ominous statement, but very true when heard in the context of living with CLL/SLL. Subscribe to: Post Comments (Atom).

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CLL Topics: Therapies, Research and Patient Education for Chronic Lymphocytic Leukemia

CLL Topics Home Page. Please read our latest articles at CLL Topics Updates. Is an interactive site with an emphasis on current developments in the field. News you can use. Important Notice About this Site. We suffered a transfiguring loss when Mr. P. C. Venkat. Our Editor, Publisher and Chief Financial Officer, passed away from complications after an allogenic cord blood stem cell transplant in June of 2008. We invite you to join us at our. Up-to-date site: CLL Topics Updates. P C Venkat, 1949-2008.

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CLL Tracker - The on-line chronic lymphocytic leukaemia (CLL) resource.

Important - New Release of CLL Tracker. CLL Tracker was first released in the October of 2010, in that time some 221 patients submitted their CLL data. We have now updated the system with the following improvements:. Questionnaire updated to reflect feedback received. User Account functionality added. The ability when completing the questionnaire to Save your data and return to it at a later date. The ability to update your data when changes occur. To start using CLL Tracker click the Register. To use CL...

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Candice

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