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ECNM - The European Competence Network on Mastocytosis - HOME

The European Competence Network on Mastocytosis (ECNM) is a non-profit cooperative initiative of a group of scientists and clinicians in Europe who are devoted to merge their efforts in order to improve recognition, diagnosis and therapy in patients with mastocytosis. Specific aims in the ECNM are to provide all relevant Information. To provide access to important diagnostic tests, to establish standards for the diagnosis and treatment of mastocytosis, to establish Reference Centers. Image of the Month.

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ECNM - The European Competence Network on Mastocytosis - HOME | ecnm.net Reviews

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The European Competence Network on Mastocytosis (ECNM) is a non-profit cooperative initiative of a group of scientists and clinicians in Europe who are devoted to merge their efforts in order to improve recognition, diagnosis and therapy in patients with mastocytosis. Specific aims in the ECNM are to provide all relevant Information. To provide access to important diagnostic tests, to establish standards for the diagnosis and treatment of mastocytosis, to establish Reference Centers. Image of the Month.

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5 events

6 information on mastocytosis

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ECNM - The European Competence Network on Mastocytosis - HOME | ecnm.net Reviews

https://ecnm.net

The European Competence Network on Mastocytosis (ECNM) is a non-profit cooperative initiative of a group of scientists and clinicians in Europe who are devoted to merge their efforts in order to improve recognition, diagnosis and therapy in patients with mastocytosis. Specific aims in the ECNM are to provide all relevant Information. To provide access to important diagnostic tests, to establish standards for the diagnosis and treatment of mastocytosis, to establish Reference Centers. Image of the Month.

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ecnm.net

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ECNM - The European Competence Network on Mastocytosis - INFORMATION ON MASTOCYTOSIS

http://ecnm.net/homepage/index.php/information-on-mastocytosis

Mastocytosis: A disease of Mast Cells. What are Mast Cells? Is Mastocytosis a Hereditary or Contagious Disorder? Mastocytosis is a non-contagious disease of mast cells and their progenitor cells. In the vast majority of all cases, no other family members are affected or will develop mastocytosis during life. Familial mastocytosis is an extremely rare disorder with an estimated frequency of less than 1:1,000 among all patients with mastocytosis. Indolent Systemic Mastocytosis (ISM). Cutaneous mastocytosis...

2

ECNM - The European Competence Network on Mastocytosis - HOME

http://ecnm.net/homepage

The European Competence Network on Mastocytosis (ECNM) is a non-profit cooperative initiative of a group of scientists and clinicians in Europe who are devoted to merge their efforts in order to improve recognition, diagnosis and therapy in patients with mastocytosis. Specific aims in the ECNM are to provide all relevant Information. To provide access to important diagnostic tests, to establish standards for the diagnosis and treatment of mastocytosis, to establish Reference Centers. Image of the Month.

3

ECNM - The European Competence Network on Mastocytosis - Austria

http://ecnm.net/homepage/index.php/austria1

Medical University of Vienna (Active Center). Peter Valent, M.D. Wolfgang R. Sperr, M.D. Medical University of Vienna. Ludwig Boltzmann Cluster Oncology. Department of Internal Medicine I. Division of Hematology and Hemostaseology. 1090 Vienna, Austria. E: This email address is being protected from spambots. You need JavaScript enabled to view it. E: This email address is being protected from spambots. You need JavaScript enabled to view it. Hubert Pehamberger, M.D. Medical University of Vienna. E: This ...

4

ECNM - The European Competence Network on Mastocytosis - PEOPLE

http://ecnm.net/homepage/index.php/news

Peter Valent, Coordinator (Vienna, Austria). Hans-Peter Horny, Deputy Coordinator (Munich, Germany). Michel Arock (Paris, France). 2002-2010 Peter Valent (Vienna, Austria). 2011-2014 Karin Hartmann (Cologne, Germany). Karin Hartmann (Cologne, Germany), Peter Valent (Vienna, Austria), Hans-Peter Horny (Munich, Germany),. Michel Arock (Paris, France), Wolfgang R. Sperr (Vienna, Austria). Cem Akin (Boston, MA, USA). Stephen J. Galli (Stanford, CA, USA). Jason R. Gotlib (Stanford, CA, USA).

5

ECNM - The European Competence Network on Mastocytosis - EVENTS

http://ecnm.net/homepage/index.php/events

Annual Meeting of the ECNM (Verona, October 27 - 29, 2016). Mastocytosis Day (Vienna, December 11, 2015), event in German (program). Annual Meeting of the ECNM (Munich, October 8 - 10, 2015) (photo gallery). Mastocytosis Day (Munich, October 10, 2015), event in German (program). Workshop: Mast Cells and Mastocytosis - In Memoriam Paul Ehrlich (Vienna, August 21, 2015). Annual Meeting of the ECNM (Odense, September 4 - 6, 2014) (photo gallery). Annual Meeting of the ECNM (Stockholm - 2010) (group photo).

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anafylaksi.com

Fuld bedøvelse / anæstesi - Mastocytosecentret Odense Universitetshospital

http://www.anafylaksi.com/til-patienter/fuld-bedoevelse-anaestesi

Fuld bedøvelse / anæstesi. Tlf 66 11 33 33. Http:/ www.ouh.dk/wm123031. Der er en øget risiko for allergisk reaktion under fuld bedøvelse når man har mastocytose. Disse reaktioner er sjældne, men kan være alvorlige og det er derfor vigtigt at anæstesipersonalet er orienteret om at man har mastocytose så rette forholdsregler kan tages. Som hos andre personer kan allergisk reaktion på latex (gummi) og desinficerende midler også ses. Objektive fund og fotos. European Competence Network on Mastocytosis.

anafylaksi.com

Symptomer - andre - Mastocytosecentret Odense Universitetshospital

http://www.anafylaksi.com/til-patienter/symptomer-andre

Fuld bedøvelse / anæstesi. Tlf 66 11 33 33. Http:/ www.ouh.dk/wm123031. En del med systemisk mastocytose oplever svære allergiske reaktioner med utilpashed, nældefeber, besvær ved at få luft, kvalme/opkastning og besvimelse/blodtryksfald - såkaldt anafylaktiske reaktioner. Disse kan komme ved insektstik (bi/hveps), under fuld bedøvelse eller ved indtag af visse lægemidler. Nogle gange forekommer disse reaktioner også uden påviselig grund. Det anbefales at alle voksne med systemisk mastocytose...

anafylaksi.info

Prognose - Mastocytosecentret Odense Universitetshospital

http://www.anafylaksi.info/til-patienter/prognose

Fuld bedøvelse / anæstesi. Tlf 66 11 33 33. Http:/ www.ouh.dk/wm123031. Overordnet er prognosen ved mastocytose god. Hos børn er symptomerne ofte milde og begrænset til huden - og sygdommen svinder hos de fleste spontant inden teenageårene. Hos voksne er tilstanden blivende - men langt oftest med et fredeligt forløb og normal livslængde. Aggressive former af mastocytose, som kræver kraftigere behandling, er meget sjælden. Objektive fund og fotos. European Competence Network on Mastocytosis.

anafylaksi.com

Insektstik og EpiPen - Mastocytosecentret Odense Universitetshospital

http://www.anafylaksi.com/til-patienter/insektstik-og-epipen

Fuld bedøvelse / anæstesi. Tlf 66 11 33 33. Http:/ www.ouh.dk/wm123031. De fleste med mastocytose får store reaktioner i huden på insektstik, herunder store myggestiksreaktioner samt hævelse, rødme, kløe og smerter ved bi- eller hvepsestik. Disse reaktioner er ubehagelige og kan nødvendiggøre lægekontakt - men er som sådan ufarlige, med mindre stikket sidder i mund/svælget. Nældefeber (kløende, rødt og hævet udslæt) og evt hævelse af læber, hals og tunge. Kvalme, opkastning, mavesmerter. Fjern den og mas...

anafylaksi.info

Mastocytose hos børn - Mastocytosecentret Odense Universitetshospital

http://www.anafylaksi.info/til-fagpersoner/mastocytose-hos-boern

Fuld bedøvelse / anæstesi. Tlf 66 11 33 33. Http:/ www.ouh.dk/wm123031. Mastocytose i barnealderen er en fredsommelig hudsygdom som oftest svinder inden teenagealderen. Ved tilstanden ses ophobning af godartede mastceller i huden som oftest resulterer i et pletvist hududslæt urticaria pigmentosa eller pigmentnældefeber - som kan give udbrud af nældefeber ved forskellige påvirkninger oftest gnubning/krads, temperaturudsving eller insektstik. Systemisk involvering ses stort set ikke i barnealderen og knogl...

anafylaksi.info

Mastocytose hos børn - Mastocytosecentret Odense Universitetshospital

http://www.anafylaksi.info/til-patienter/mastocytose-hos-boern

Fuld bedøvelse / anæstesi. Tlf 66 11 33 33. Http:/ www.ouh.dk/wm123031. Man kender ikke årsagen til mastocytose men hos nogle børn kan påvises en ændring i genet som koder for et overfladeprotein på mastcellen KIT. Udbrud i huden kan være ganske generende for barnet og forbundet med irritabilitet men kun sjældent ( 10%) ses svære allergiske reaktioner og da langt oftest hos børn med meget udbredt udslæt og høj tryptase værdi (mål for antal mastceller). Behandlingen er symptomatisk (ikke sløvende antihist...

anafylaksi.info

Fuld bedøvelse / anæstesi - Mastocytosecentret Odense Universitetshospital

http://www.anafylaksi.info/til-patienter/fuld-bedoevelse-anaestesi

Fuld bedøvelse / anæstesi. Tlf 66 11 33 33. Http:/ www.ouh.dk/wm123031. Der er en øget risiko for allergisk reaktion under fuld bedøvelse når man har mastocytose. Disse reaktioner er sjældne, men kan være alvorlige og det er derfor vigtigt at anæstesipersonalet er orienteret om at man har mastocytose så rette forholdsregler kan tages. Som hos andre personer kan allergisk reaktion på latex (gummi) og desinficerende midler også ses. Objektive fund og fotos. European Competence Network on Mastocytosis.

anafylaksi.com

Symptomer - Mastocytosecentret Odense Universitetshospital

http://www.anafylaksi.com/til-fagpersoner/symptomer

Fuld bedøvelse / anæstesi. Tlf 66 11 33 33. Http:/ www.ouh.dk/wm123031. Kun sjældent ses såkaldt aggressiv systemisk mastocytose hvor mastcellerne ophobes i en grad så det involverede organ påvirkes (cytopeni, leverpåvirkning, hypersplenisme, malabsorption mv). Undertiden kan anden hæmatologisk ikke-mastcellesygdom optræde benævnt systemisk mastocytose med associeret non-mastcelle sygdom (SM-AHNMD). Meget sjældent ses mastcelle-leukæmi som er forbundet med en dårlig prognose. Objektive fund og fotos.

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ECNM - The European Competence Network on Mastocytosis - HOME

The European Competence Network on Mastocytosis (ECNM) is a non-profit cooperative initiative of a group of scientists and clinicians in Europe who are devoted to merge their efforts in order to improve recognition, diagnosis and therapy in patients with mastocytosis. Specific aims in the ECNM are to provide all relevant Information. To provide access to important diagnostic tests, to establish standards for the diagnosis and treatment of mastocytosis, to establish Reference Centers. Image of the Month.

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