fshsociety.org
FSH SocietyProviding education and outreach; scientific and medical research funding; and advocacy for facioscapulohumeral muscular dystrophy (FSHD) since 1991.
http://www.fshsociety.org/
Providing education and outreach; scientific and medical research funding; and advocacy for facioscapulohumeral muscular dystrophy (FSHD) since 1991.
http://www.fshsociety.org/
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Facioscapulohumeral Society Inc.
Facioscapulohumeral Society Inc.
Danie●●●●●Perez
Be●●rd , MA, 01730
US
View this contact
FSH Society, Inc. (FSH Muscular Dystrophy)
Daniel Perez
Dani●●●●erez
Be●●rd , MA, 01730-1808
US
View this contact
RCN
RCN
196 Van●●●●●●● Street
He●●on , VA, 20170
US
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FSH Society | fshsociety.org Reviews
https://fshsociety.org
Providing education and outreach; scientific and medical research funding; and advocacy for facioscapulohumeral muscular dystrophy (FSHD) since 1991.
fshsociety.org
Strategic Plan - FSH Society
https://www.fshsociety.org/getting-to-a-treatment
Our Role & Impact. About the FSH Society. Financials & Donor Reports. Facts & statistics. Brochures & more. Learn from other patients. Overview of FSHD research. Glossary of Scientific Terms. Become a Sustaining Member. Attend FSH Society Events. Participate in clinical studies. Why Volunteer for Research? What Is a Clinical Trial? Find a Clinical Study. More ways to get involved. Put FSHD on TV. Shop & Sell. Apply for a grant. Grants We Have Funded. Tools & resources. Request for Patient Involvement.
Education - FSH Society
https://www.fshsociety.org/education
Our Role & Impact. About the FSH Society. Financials & Donor Reports. Facts & statistics. Brochures & more. Learn from other patients. Overview of FSHD research. Glossary of Scientific Terms. Become a Sustaining Member. Attend FSH Society Events. Participate in clinical studies. Why Volunteer for Research? What Is a Clinical Trial? Find a Clinical Study. More ways to get involved. Put FSHD on TV. Shop & Sell. Apply for a grant. Grants We Have Funded. Tools & resources. Request for Patient Involvement.
Symptoms - FSH Society
https://www.fshsociety.org/symptoms
Our Role & Impact. About the FSH Society. Financials & Donor Reports. Facts & statistics. Brochures & more. Learn from other patients. Overview of FSHD research. Glossary of Scientific Terms. Become a Sustaining Member. Attend FSH Society Events. Participate in clinical studies. Why Volunteer for Research? What Is a Clinical Trial? Find a Clinical Study. More ways to get involved. Put FSHD on TV. Shop & Sell. Apply for a grant. Grants We Have Funded. Tools & resources. Request for Patient Involvement.
Staff - FSH Society
https://www.fshsociety.org/sample-page
Our Role & Impact. About the FSH Society. Financials & Donor Reports. Facts & statistics. Brochures & more. Learn from other patients. Overview of FSHD research. Glossary of Scientific Terms. Become a Sustaining Member. Attend FSH Society Events. Participate in clinical studies. Why Volunteer for Research? What Is a Clinical Trial? Find a Clinical Study. More ways to get involved. Put FSHD on TV. Shop & Sell. Apply for a grant. Grants We Have Funded. Tools & resources. Request for Patient Involvement.
Partnerships - FSH Society
https://www.fshsociety.org/partnerships
Our Role & Impact. About the FSH Society. Financials & Donor Reports. Facts & statistics. Brochures & more. Learn from other patients. Overview of FSHD research. Glossary of Scientific Terms. Become a Sustaining Member. Attend FSH Society Events. Participate in clinical studies. Why Volunteer for Research? What Is a Clinical Trial? Find a Clinical Study. More ways to get involved. Put FSHD on TV. Shop & Sell. Apply for a grant. Grants We Have Funded. Tools & resources. Request for Patient Involvement.
TOTAL PAGES IN THIS WEBSITE
20
Observatoire National Français des patients atteints de DMFSH
http://www.fshd.fr//pin/FR
Société Française de Myologie. Blog du groupe FSH de l'AFM. Registre italien de la FSH. Site de la FSH Society. Site de l'université de Rochester. En tant que patient. En tant que médecin. Afin de participer à l'Observatoire, plusieurs options s'ouvrent à vous. L'idéal serait de remplir les deux questionnaires. De manière à avoir un dossier complet. L'auto-questionnaire et la fiche d'évaluation clinique peuvent être remplis à des moments différents. Être en possession d'un résultat de test génétique.
Observatoire National Français des patients atteints de DMFSH
http://www.fshd.fr//connect/FR
Société Française de Myologie. Blog du groupe FSH de l'AFM. Registre italien de la FSH. Site de la FSH Society. Site de l'université de Rochester. Se connecter à l'observatoire. Les identifiants ne sont pas corrects. Veuillez réessayer. Attention, vous n'avez plus le droit qu'à deux essais. Vous avez dépassé le nombre d'essais de connexion autorisés. Vous pourrez réessayer dans 1 jour. Si vous avez oublié vos identifiants, merci de le signaler ici. Date de naissance :. Trouver un centre près de chez soi.
Observatoire National Français des patients atteints de DMFSH
http://www.fshd.fr//indeex/FR
Société Française de Myologie. Blog du groupe FSH de l'AFM. Registre italien de la FSH. Site de la FSH Society. Site de l'université de Rochester. La page que vous cherchez n'existe pas! Trouver un centre près de chez soi. En tant que Patient. En tant que Médecin. Essais cliniques et thérapeutiques. Dernière mise à jour le 06 mars 2017.
Observatoire National Français des patients atteints de DMFSH
http://www.fshd.fr//genetique/FR
Société Française de Myologie. Blog du groupe FSH de l'AFM. Registre italien de la FSH. Site de la FSH Society. Site de l'université de Rochester. La dystrophie musculaire Facio-Scapulo-Humérale ( DMFSH. Est la troisième en terme de fréquence des myopathies héréditaires, la première chez les adultes. Selon le rapport préliminaire établi par EURORDIS. La DMFSH est caractérisée par une faiblesse des muscles de la face et de la ceinture scapulaire qui peut s’étendre progressivement aux muscles huméraux, abd...
ASENT: Links
http://staging.aesnet.org/go/links
Advancing neurotherapeutics through collaborations between academia, advocacy, government and industry. American Academy of Neurology. American Academy of Pediatrics. American Council for Headache Education (ACHE). American Society of Neuroimaging. American Society of Neurorehabilitation. Association of University Professors of Neurology. Ataxia MJD Research Project, Inc. Centerwatch Clinical Trials Listing Service. Citizens United for Research in Epilepsy (CURE). Dystonia Medical Research Foundation.
Home - FSHD Foundation
http://www.fshd.nl/index.php/en
Welcome to our FSHD website! The Dutch FSHD Foundation’s goal is to stimulate, facilitate and financially support solid scientific research into the causes of FSHD, in order to find treatments and develop solutions that help improve patients’ quality of life. Although the cause for FSHD has been discovered, no treatment for this disease has yet been found. That’s why further research remains so important! The FSHD Foundation stimulates, facilitates, and financially supports solid scientific research into...
FSHD-actie van Rico Dijkstra in Aalsmeer - FSHD Stichting
http://www.fshd.nl/index.php/nl/489-fshd-actie-van-rico-dijkstra-in-aalsmeer
Doelstelling, waarden en geschiedenis. Onderzoeksstrategie uit het laatste beleidsplan. Projecten uit het verleden. Het Spierziektencongres komt er weer aan! FSHD-actie van Rico Dijkstra in Aalsmeer. Geschreven door Kees van der Graaf. Kees van der Graaf. De doelstelling was 5000 euro. Met rode oortjes zijn de klasgenoten vanmiddag na afloop waarschijnlijk gaan tellen. Ik denk dat zij heel ver gekomen zijn. Er werd mij ook verzekerd ,dat er de komende dagen nog meer geld binnen zou komen, wan...Deze acti...
FSHD in Beeld - FSHD Stichting
http://www.fshd.nl/index.php/nl/492-fshd-in-beeld
Doelstelling, waarden en geschiedenis. Onderzoeksstrategie uit het laatste beleidsplan. Projecten uit het verleden. Het Spierziektencongres komt er weer aan! Geschreven door Kees van der Graaf. Kees van der Graaf. Ik hoop van harte dat wij snel heel veel van de boekjes kunnen wegzetten. Hoe meer hoe liever, want dan weten weer meer mensen iets over wat het is om met FSHD te moeten leven. De begrippen onmacht en veerkracht zijn echt karakteristiek voor FSHD. Het zou toch geweldig zijn als wij ...Iedereen ...
Onderzoek - FSHD Stichting
http://www.fshd.nl/index.php/nl/onderzoek
Doelstelling, waarden en geschiedenis. Onderzoeksstrategie uit het laatste beleidsplan. Projecten uit het verleden. Hier komt het archief. Hier komen de publicaties. Binnenkort meer informatie over de prioriteiten van de FSHD Stichting. Op de website 'Genetics Home Reference' wordt uitleg gegeven over SMCHD1. Klik hier om het artikel (engelstalig) te lezen. Nederlands succes in de strijd tegen FSHD! Projekten door de Stichting FSHD geheel of gedeeltelijk gefinancierd. Bijgwerkt tot 26 juni 2015. De FSHD ...
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Fort Smith High School Class of 1950
Fort Smith High School Class of 1950. This is the official blog site for class and family information concerning the Fort Smith, Arkansas, High School Class of 1950 . The Nifty Fifties . For information contact Peggy Putnam: peggyp@cablelynx.com. Saturday, June 01, 2013. Thursday, May 30, 2013. Memorials may be made to the American Cancer Society, P.O. Box 8006, Fort Smith, AR 72902 or to the charity of one’s choice. To sign an online guestbook, please visit. Saturday, November 10, 2012. We even shared a...
FSH Society
Facioscapulohumeral Muscular Dystrophy : FSHD one of the the most prevalent forms of muscular dystrophy. Our Role & Impact. Our Promise and Accountability. FSH Society Radio Podcasts. Facts & Statistics. Overview of FSHD Research. Glossary of Scientific Terms. Brochures & More. Donate to a Fundraiser. Shop & Sell. Join an FSHD Registry. What Is a Clinical Trial? Enroll in a Clinical Study. Help Us Raise Awareness. Put FSHD on TV. Apply for a Grant. Grants We Have Funded. Request for Patient Involvement.
FSH Society
Our Role & Impact. About the FSH Society. Financials & Donor Reports. Facts & statistics. Brochures & more. Learn from other patients. Overview of FSHD research. Glossary of Scientific Terms. Become a Sustaining Member. Donate to a fundraiser. Attend FSH Society Events. Participate in clinical studies. Why Volunteer for Research? What Is a Clinical Trial? Find a Clinical Study. More ways to get involved. Put FSHD on TV. Shop & Sell. Apply for a grant. Grants We Have Funded. Tools & resources. To all the ...
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