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1

Members News

http://lmbbs.org.uk/LMBBS/file/Members-News.php

Day to Day Living. Friends of BBS UK. Listen to one of our members, Jo Newson, being interviewed on Brooklands Radio Show in March 2014, regarding her academy of performing arts. Other Pages in this section. Problems reading this site? If you have any difficulties with vision you can increase or decrease the size of the text using these 'plus' and 'minus' buttons. Just keep clicking until the text is the size you prefer. 2016 Privacy and Terms of Use.

2

Fundraising News

http://lmbbs.org.uk/LMBBS/file/news.php

Day to Day Living. Friends of BBS UK. Bardet-Biedl Syndrome UK has seen an active and diverse year of fundraising and the committee and members continue to be very grateful to everyone who has contributed. The charity relies heavily on these stoic efforts and the money is used in so many ways, from providing support and advocacy services and producing information to subsidising our annual family conference; a weekend valued by so many people, especially our members who have BBS. Peter and Jane Taplin of ...

3

Events

http://lmbbs.org.uk/LMBBS/file/Events.php

Day to Day Living. Friends of BBS UK. Our second BBS UK Family Activity Weekend is to be held at Avon Tyrrell Outdoor Activity Centre, set in the beautiful New Forest, across the weekend of 23rd-25th September 2016. We have negotiated a substantial bursary which means we can keep the cost to our families very low at just £80 per person, including all food and three activities. Children aged 4 and under are free of charge. As soon as possible. We can’t wait to see you there! Other Pages in this section.

4

publications

http://lmbbs.org.uk/LMBBS/file/publications.php

Day to Day Living. Friends of BBS UK. Bardet-Biedl Syndrome UK Medical Information Booklet. This booklet has been produced by Bardet-Biedl Syndrome UK to promote a greater understanding of Bardet-Biedl Syndrome and the recommended care pathway. It is aimed at the medical and healthcare professionals involved in the care of Bardet-Biedl Syndrome patients and also those living with the syndrome, their parents and carers, with the aim of encouraging better self-advocacy and health care management. Please cl...

5

Committee

http://lmbbs.org.uk/LMBBS/file/committee.php

Day to Day Living. Friends of BBS UK. Hi, I am Richard Zimbler and I am 31 years old. I was diagnosed with BBS when I was 6 years old. I have been on the BBS committee now for 6 years and have recently taken up the post of Vice-Chairman. My hobbies entail watching all sports, including football, rugby union , rugby league, tennis, boxing, WWE wrestling and I really enjoy watching darts as I am a big fan of Phil ‘The Power’ Taylor – he is one of the best darts players in the world. Two years ago I was dia...

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rppath.wordpress.com rppath.wordpress.com

RP with Other Disabilities | UK Care Pathway for People with RP

https://rppath.wordpress.com/the-pathway-for-patients/rp-with-other-disabilities

UK Care Pathway for People with RP. Mapping a journey for people with retinitis pigmentosa and their families. Terms Used for RP. Your Optician and GP. RP with Other Disabilities. The Hospital and Eye Clinic. Basic Information for GPs. What You Can Do. Basic Information for Teachers. What You Can Do (1). What You Can Do (2). What You Should Know. What You Can Do. Map of the RP Pathway. About RP Fighting Blindness. RP with Other Disabilities. And other organisations can make links for you. In this conditi...

straitlines.co.uk straitlines.co.uk

Info & Links - STRAITLINES

http://www.straitlines.co.uk/info-links/4552807626

Info and Links - STRAITLINES. Strait Lines was formed by Judy and Glen Baily in 2006. Judy took over the Thursday class at the HCC Hounslow from Roland (Hooked on Country) following his move out of the area to Sussex. In memory of Emma's Grandad. Take 5 mins to learn about this very worthwhile Charity. List of all dances currently taught. Find your step sheets here courtesy of Kickit. Big Dave's Gas Tap. Big Dave's Gas Tap. Kactus Kountry Weekend 2017. You are viewing the text version of this site.

shortsupport.org shortsupport.org

Short Persons Support: Health : Dwarfism

http://www.shortsupport.org/Health/Dwarfism.html

There are more than 320 medical conditions known as dwarfism. A detailed study of dwarfism is outside the scope of this Web site. There are several good sites that address this medical condition. Dwarf Athletic Association of America. Little People of America. These foundations and support organizations deal with a specific type of dwarfism. Some are established organizations with extensive Web sites and others are simple home pages. CdLS (Cornelia de Lange Syndrome). My Ashley's Information Page). Lands...

emilchalhoub.wordpress.com emilchalhoub.wordpress.com

Communities & Organisations | The Bardet, The Biedl and Me

https://emilchalhoub.wordpress.com/communities-organisations

The Bardet, The Biedl and Me. Learning to live with Bardet-Biedl Syndrome. Here are some links to BBS communities and organisations around the world, as well as more information about BBS. Bardet-Biedl Syndrome Family Association. Rare Disease Day Australia. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. Notify me of new comments via email.

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Day to Day Living. Friends of BBS UK. Bardet-Biedl Syndrome UK is the only registered charity supporting people with Bardet-Biedl Syndrome. Their families and carers. The aims of the Charity, according to its constitution, are: to preserve and protect the health and promote the welfare of persons living with BBS. And to advance the education of the medical and educational professionals and the general public on the subject of BBS. All members of the Management Committee. The Charity produces newsletters.

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