necpad.org
New England Connection for PKU and Allied Disorders Links and Resources
http://www.necpad.org/links.php
The New England Connection for PKU and Allied Disorders. Disorders of Amino Acid Metabolism. Disorders of Carbohydrate Metabolism. Disorders of Fatty Acid Metabolism. National Organization for Rare Disorders. New England Consortium of Metabolic Programs. New England Regional Genetics Group. Mid-Atlantic Connection for PKU and Allied Disorders. PKU Organization of Illinois. Children’s PKU Network. BioMarin Pharmaceuticals PKU Web Portal. NECPAD's list of Medications that have Phenylalanine.
medicalfood.com
http://www.medicalfood.com/learning-center/community--events
To optimize your experience on our website, please tell us which of the following best describes you:. Caregiver of infant (ages 0-1). Caregiver of young child (ages 1-4). Caregiver of child (ages 5-12). Adult (ages 18 ). Caregiver of infant (ages 0-1). Caregiver of young child (ages 1-4). Caregiver of child (ages 5-12). Adult (ages 18 ). Healthcare Professionals ›. Sign Up for Email Updates ›. Our Products Formula and Low Protein Foods. Learning Center Education and Resources. Low Pro Living Blog. Venue...
cookforlove.org
Resources - Cook for LoveCook for Love
http://cookforlove.org/resources-2
Low protein recipes for the PKU community. You might not love to cook,. But sometimes you need to cook for love. Soups, Salads and Such. 8212; an amazing new resource by Virginia Schuett that allows you to look up the phe content of all of the foods listed in her book on any computer or handheld device. A must for everyone. Low Protein Food List for PKU. US Dept. of Agriculture ( USDA. 8211; the USDA database provides Standard References for the nutrients (including phe) of thousands of foods. One of a s...
npkua.org
NPKUA > Resources > Cooking & Food
http://www.npkua.org/Resources/CookingFood.aspx
Food is central to our life – not only for essential nourishment, but also an important part of how we celebrate holidays, honor family traditions and experience new regions and cultures. This doesn’t change when you or a loved one has PKU. Whether you’re an experienced cook or have rarely stepped inside your kitchen, the following resources can help you integrate low protein food into your life and your celebrations. RECIPES FROM THE 2014 NPKUA CONFERENCE. Enjoy Sweets and Treats the Low-Protein Way.
stevenslab.usc.edu
PKU
http://stevenslab.usc.edu/PKU.html
Testing for PAH Mutations. May 2008 was National PKU Awareness Month for more information, visit MACPAD at http:/ www.macpad.org. Thank You to Our Supporters. The Stevens laboratory is incredibly grateful for the donations and support received from people affected by PKU, their friends and families, as well as several organizations. To contact us, email Professor Ray Stevens. For more contact information. For information about how you can donate, contact Roz Hodgins. The Children's PKU Network.
pkuconnect.com
http://www.pkuconnect.com/learning-center/community--events
To optimize your experience on our website, please tell us which of the following best describes you:. Caregiver of infant (ages 0-1). Caregiver of young child (ages 1-4). Caregiver of child (ages 5-12). Adult (ages 18 ). Caregiver of infant (ages 0-1). Caregiver of young child (ages 1-4). Caregiver of child (ages 5-12). Adult (ages 18 ). Healthcare Professionals ›. Sign Up for Email Updates ›. Our Products Formula and Low Protein Foods. Learning Center Education and Resources. Low Pro Living Blog. Venue...
startasnowball.com
PKU Fundraiser Inspired by Friendship - Start A Snowball
http://startasnowball.com/pku-fundraiser-inspired-friendship
Apply For A Grant. Apply For A Grant. PKU Fundraiser Inspired by Friendship. December 15, 2014 by macwinslow. Girl Raises over $4000 to help friend and PKU Research. Eleven-year-old Elizabeth (Mizzi) Carlin has a friend with phenylketonuria (PKU). PKU is a genetic metabolic disorder. You can have little or no protein because (your body) can’t break it down, Mizzi explains. This disease does not get. To fund PKU research in a hope to find a cure for her friend. And she didn’t stop there! Mizzi was so insp...
just5minutesaday.blogspot.com
Where's the Blue Crayon?: May 2008
http://just5minutesaday.blogspot.com/2008_05_01_archive.html
Where's the Blue Crayon? My negative personality traits - let me show you them. Saturday, May 31, 2008. 81%) high which suggests you are overly talkative, outgoing, sociable and interacting at the expense too often of developing your own individual interests and internally based identity. 60%) moderately high which suggests you are worrying, insecure, emotional, and anxious. Take Eysenck Personality Test (similar to EPQ-R). Personality tests by similarminds.com. Take Free Enneagram Personality Test.
nutricialearningcenter.com
Nutricia Learning Center
http://www.nutricialearningcenter.com/en/metabolics/patient-resource-content
Log into your NLC account:. What are you looking for today? 160;The Nutricia Learning Center features tools and educational resources for Metabolic Healthcare Professionals. Periflex and Anamix Early Years Caregivers Guide.pdf. Periflex and Anamix Early Years Mixing Instructions - English. This easy to understand hand out provides families with instructions on how to mix Periflex Infant formula and standard formula in English. Periflex and Anamix Early Years Mixing Instructions - Spanish. Very-long-chain...
