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Meningioma UK | Support and information

Welcome to all meningioma patients and friends! Everyone is different and meningioma is different in everyone. Founded in 1998 by meningioma patients, Caroline Rutgers and Ella Pybus, Meningioma UK continues to offer support and information to meningioma patients and carers affected by a meningeal tumour(s) of the brain or spinal cord. We are the only national meningioma…

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Meningioma UK | Support and information | meningiomauk.org Reviews
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Welcome to all meningioma patients and friends! Everyone is different and meningioma is different in everyone. Founded in 1998 by meningioma patients, Caroline Rutgers and Ella Pybus, Meningioma UK continues to offer support and information to meningioma patients and carers affected by a meningeal tumour(s) of the brain or spinal cord. We are the only national meningioma…
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Meningioma UK | Support and information | meningiomauk.org Reviews

https://meningiomauk.org

Welcome to all meningioma patients and friends! Everyone is different and meningioma is different in everyone. Founded in 1998 by meningioma patients, Caroline Rutgers and Ella Pybus, Meningioma UK continues to offer support and information to meningioma patients and carers affected by a meningeal tumour(s) of the brain or spinal cord. We are the only national meningioma…

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meningiomauk.org meningiomauk.org
1

Forum | Meningioma UK

https://meningiomauk.org/forum.html

We have a very active Facebook forum where you can ask questions and join discussions with other meningioma patients and carers. This is a closed group (i.e. your request to join needs to be approved by the forum admin) and it is monitored by trustees. You can find the Meningioma Facebook Forum here. We also have our Talking Heads Forum, submissions of which go straight to Ella Pybus at Meningioma UK for response. There is an archive of previous questions and answers that may help you. Top Posts and Pages.

2

Caroline | Meningioma UK

https://meningiomauk.org/caroline.html

Dr Caroline Rutgers, Co-founder of Meningioma UK and friend, was a brilliant scientist and teacher whose distinguished career as a researcher and lecturer at The Royal College of Veterinary Science was cut short by a meningioma tumour. She used her depth of knowledge and medical-scientific understanding to help patients and carers, and she willingly tracked down extra information when needed. Caroline was also a trustee of Brain Tumour UK for five years, and an Assessor for the BTUK Denney Fund. 8220;I w...

3

Links | Meningioma UK

https://meningiomauk.org/links.html

Meningioma UK maintains links with other brain tumour organisations including Cancer 52. For rare tumours), and the Cancer Campaigning Group. The Brain Tumour Charity. International Brain Tumour Alliance), and AMNET. The Acoustic Neuroma network. We are actively involved in advocating more research funding and better care for all brain tumour patients and carers. BBC website gives clear brain facts and brain map guide. The Brain Tumour Charity. Tower House, Latimer Park, Chesham, Bucks HP5 1TU. British E...

4

Radiotherapy | Meningioma UK

https://meningiomauk.org/radiotherapy.html

Notes based on a talk given in Cambridge by Kate Burton. Reported by Chris Richards, AMNET. Published by kind permission of AMNET. Kate specialises in the treatment of patients with brain tumours and tumours of the spinal cord at Addenbrookes Hospital. A brief history of radiotherapy. How does it work? The radiotherapy team consists of the oncologist, the medical specialist, the medical physicist who is responsible for ensuring the machines are working properly and that people receive the correct dosage ...

5

Spinal cord tumours | Meningioma UK

https://meningiomauk.org/spinal.html

This is a tumour that has grown from one of the tissues that line the brain and spinal cord (called meninges). The particular layer of the meninges is said to be the Arachnoid Layer (called this because it is spider web like in appearance). It is one of the common tumours around the spinal cord. It is unclear what causes the meningioma to occur. This is not a malignant tumour. They grow locally and although they can grow in difficult to access places they are benign. Leave a Reply Cancel reply. You are c...

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goingtomyhead.blogspot.com goingtomyhead.blogspot.com

Going to my head ...: September 2009

http://goingtomyhead.blogspot.com/2009_09_01_archive.html

Going to my head . An occasional journal about living with two meningiomas, Feckit and Fuss. Saturday, 5 September 2009. Six Months since diagnosis. It was so lovely for us all to see them after a gap of almost eight years, and the Kiwi grand-daughters were thrilled to get to know their 'big' Brit cousin! L to R) - Naomi, Yvie, Amanda, Poppy, Deb. Symptoms remain the same but tolerable and no signs of any hair falling out from the radiotherapy . Links to this post. Subscribe to: Posts (Atom). Feeling fru...

goingtomyhead.blogspot.com goingtomyhead.blogspot.com

Going to my head ...: November 2009

http://goingtomyhead.blogspot.com/2009_11_01_archive.html

Going to my head . An occasional journal about living with two meningiomas, Feckit and Fuss. Monday, 30 November 2009. Brain tumour . symptom control . finding what works! As a nurse (albeit retired for 10 years now) I tend to think I'm slightly better informed about medications than Mrs Average, . but is this a help when one is trying to cope with symptoms? Well I think it probably does! MEDICATIONS I was already taking. They 'found' the brain tumour earlier this year. 25mg - 100 mg daily . this was...

mymeningiomaandme.blogspot.com mymeningiomaandme.blogspot.com

My Meningioma and Me: 2nd October 2010

http://mymeningiomaandme.blogspot.com/2010/10/2nd-october-2010.html

My Meningioma and Me. Saturday, 2 October 2010. Subscribe to: Post Comments (Atom). I am 49 years old, single. I live with my son of 23, 3 cats and my little dog, in a small hamlet just outside of Tamworth. I am a tutor for Learn Direct. View my complete profile. International Brain Tumour Alliance. Awesome Inc. template. Powered by Blogger.

mymeningiomaandme.blogspot.com mymeningiomaandme.blogspot.com

My Meningioma and Me: 27th October 2010

http://mymeningiomaandme.blogspot.com/2010/10/27th-october-2010.html

My Meningioma and Me. Wednesday, 27 October 2010. I am home, I will update when I feel better. Subscribe to: Post Comments (Atom). I am 49 years old, single. I live with my son of 23, 3 cats and my little dog, in a small hamlet just outside of Tamworth. I am a tutor for Learn Direct. View my complete profile. International Brain Tumour Alliance. Awesome Inc. template. Powered by Blogger.

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Useful Resources | Data4Health

http://www.data4health.co.uk/the-campaign/useful-resources

The ABPI represents innovative research-based biopharmaceutical companies, large, medium and small, leading an exciting new era of biosciences in the UK. CASMI is a partnership between Oxford University and UCL, created to develop new models for medical innovation. A national charity of over 150 patient organisations supporting all those affected by genetic conditions. European Conferences on Rare Diseases bring together a range of stakeholders from industry, government and acedemia. Created by people af...

mymeningiomaandme.blogspot.com mymeningiomaandme.blogspot.com

My Meningioma and Me: 5th October 2010

http://mymeningiomaandme.blogspot.com/2010/10/5th-october-2010.html

My Meningioma and Me. Tuesday, 5 October 2010. Woke up with bad head, went to town anyway (market day), bought two pairs of socks and had to come home. Very very tired and really bad head. Amazing how a 49year old can sometimes look and feel 70. Completely hagared, exhausted and done for. Subscribe to: Post Comments (Atom). I am 49 years old, single. I live with my son of 23, 3 cats and my little dog, in a small hamlet just outside of Tamworth. I am a tutor for Learn Direct. View my complete profile.

mymeningiomaandme.blogspot.com mymeningiomaandme.blogspot.com

My Meningioma and Me: 9th October 2010

http://mymeningiomaandme.blogspot.com/2010/10/9th-october-2010.html

My Meningioma and Me. Saturday, 9 October 2010. Subscribe to: Post Comments (Atom). I am 49 years old, single. I live with my son of 23, 3 cats and my little dog, in a small hamlet just outside of Tamworth. I am a tutor for Learn Direct. View my complete profile. International Brain Tumour Alliance. Awesome Inc. template. Powered by Blogger.

mymeningiomaandme.blogspot.com mymeningiomaandme.blogspot.com

My Meningioma and Me: 4th October 2010

http://mymeningiomaandme.blogspot.com/2010/10/4th-october-2010.html

My Meningioma and Me. Monday, 4 October 2010. Well here it is only 1 week to go. I'm nervous and getting more so. I'm thinking am I doing the right thing. Will I end up in a worse position. I have been told of the possible drawbacks. Never really gave them much thought till now. Am I doing the right thing? Subscribe to: Post Comments (Atom). I am 49 years old, single. I live with my son of 23, 3 cats and my little dog, in a small hamlet just outside of Tamworth. I am a tutor for Learn Direct.

mymeningiomaandme.blogspot.com mymeningiomaandme.blogspot.com

My Meningioma and Me: 6 Week Post Op Appointment

http://mymeningiomaandme.blogspot.com/2010/12/6-week-post-op-appointment.html

My Meningioma and Me. Tuesday, 21 December 2010. 6 Week Post Op Appointment. 7 April 2013 at 20:33. Thanks for sharing your blog! Approximately 96% of meningioma. Subscribe to: Post Comments (Atom). I am 49 years old, single. I live with my son of 23, 3 cats and my little dog, in a small hamlet just outside of Tamworth. I am a tutor for Learn Direct. View my complete profile. International Brain Tumour Alliance. Awesome Inc. template. Powered by Blogger.

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Meningioma UK | Support and information

Welcome to all meningioma patients and friends! Everyone is different and meningioma is different in everyone. Founded in 1998 by meningioma patients, Caroline Rutgers and Ella Pybus, Meningioma UK continues to offer support and information to meningioma patients and carers affected by a meningeal tumour(s) of the brain or spinal cord. We offer free support to patients, friends and carers, and clear jargon-free information, via:. Information leaflets on request. One to one support. Follow me on Twitter.

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