livestrongertoday.com
Moebius Syndrome Awareness Day - Live Stronger Today
http://livestrongertoday.com/moebius-syndrome-awareness-day
Moebius Syndrome Awareness Day. Jan 23, 2015. January 24th is a very special day for our family every year. It is the day that we ask all of our Friends and Family to join us as we wear purple to support our son, Tate Jacobson, as we remember watching him smile throughout his life with a rare neurological syndrome called Moebius Syndrome. Moebius Syndrome is a rare neurological disorder that is present at birth, which prevents people from moving their faces. They can’t smile, frown, suck, grimace or ...
cleftline.org
Links L-P – Cleft Palate Foundation
http://www.cleftline.org/links/links-l-p
Parents & Individuals. Find Local Cleft/Craniofacial Specialists. Booklets & Factsheets. Grants & Awards. Tips for Hospital Nurseries. Support Organization Links Focusing on Cleft Lip, Cleft Palate, and Other Craniofacial Conditions:. Many Faces of Moebius Syndrome. Support group dedicated to creating a better tomorrow for ourselves and our children through education and public awareness . Hosted by trusted patient advocates, this is a place where rare disease patients can connect with others globally.
keeny-keepingastraightface.blogspot.com
Keeping a Straight Face: Some good news at last!
http://keeny-keepingastraightface.blogspot.com/2013/08/some-good-news-at-last.html
Keeping a Straight Face. How to leave a comment. What is Moebius Syndrome? What is Cranial Metaphyseal Displaysia? Thursday, August 8, 2013. Some good news at last! We could be pregnant this time next year! I am over the moon! Over the next few months a lot of the 'background' stuff needs to be done, such as, the feasibility test. Most people require a feasibility study before their. First PGD cycle. The genetics lab uses a blood sample. From the man and woman, and sometimes other family. It's all a litt...
keeny-keepingastraightface.blogspot.com
Keeping a Straight Face: More on the Anti-Mullerian Hormone
http://keeny-keepingastraightface.blogspot.com/2013/07/more-on-anti-mullerian-hormone.html
Keeping a Straight Face. How to leave a comment. What is Moebius Syndrome? What is Cranial Metaphyseal Displaysia? Sunday, July 28, 2013. More on the Anti-Mullerian Hormone. In one of my last posts I spoke of my low AMH level. Here is more information about it (found on Fertility Associates website). Note: Only a member of this blog may post a comment. Subscribe to: Post Comments (Atom). Anyway, I have always wanted to publish a book telling/depicting my life dealing with this condition, so the purpose o...
keeny-keepingastraightface.blogspot.com
Keeping a Straight Face: October 2012
http://keeny-keepingastraightface.blogspot.com/2012_10_01_archive.html
Keeping a Straight Face. How to leave a comment. What is Moebius Syndrome? What is Cranial Metaphyseal Displaysia? Sunday, October 7, 2012. And the journey begins.I think? We've finally made first contact with Fertility Associates! Our referral was sent through three months ago, so I'm not sure if it was actually a long wait or not.to us it was a VERY long wait. This is good news right? If our first contact is anything to go by, with our future dealings with Fertility Associates, then I'm not impressed.
justmecreating.blogspot.com
just me creating...: January 2015
http://justmecreating.blogspot.com/2015_01_01_archive.html
For the love of doodles and zentangles, drawing and journals, papercrafts and pocket letters and whatever my hands produce. Friday, January 30, 2015. The worlds worst mom. Tackle it tuesday #58. It's a string thing #77. That's me. It feels like that today. My beautiful, sweet little guy was telling me about his day. How his legs were hurting because he had walked through the city (there's a lot of hills.) visiting several places and back to school. All because his mom forgot about the their outing. I'm v...
keeny-keepingastraightface.blogspot.com
Keeping a Straight Face: And it all begins....
http://keeny-keepingastraightface.blogspot.com/2014/04/and-it-all-begins.html
Keeping a Straight Face. How to leave a comment. What is Moebius Syndrome? What is Cranial Metaphyseal Displaysia? Friday, April 18, 2014. And it all begins. Just a quick update. I have a low thyroid function, so am now on daily medication for that. This explains my tiredness, memory loss and inability to get well fast after having a head cold etc. So now, 8 days later I have got it down to a fine art. At this stage, egg collection is being done on May 9.in Auckland! More on that later. Subscribe to: Pos...
keeny-keepingastraightface.blogspot.com
Keeping a Straight Face: May 2012
http://keeny-keepingastraightface.blogspot.com/2012_05_01_archive.html
Keeping a Straight Face. How to leave a comment. What is Moebius Syndrome? What is Cranial Metaphyseal Displaysia? Monday, May 21, 2012. Facts niggling in the back of my mind. Fact - The chance of actually ending up with a baby at the end of using GPD IVF is 30%. Fact - There is a very big chance that after testing the cells, which have been removed, there may be no viable eggs. Saturday, May 19, 2012. I love taking them.hate being in them! A bit of a double standard, I know. Thursday, May 17, 2012.
heroeswiththousandfaces.blogspot.com
Eye of the Beholder: About the Book
http://heroeswiththousandfaces.blogspot.com/2006/12/about-book.html
Eye of the Beholder. Imagine if we had to wear our imperfections like labels on our faces every day - in photos, at formal events, job interviews, meeting someone for the first time. What if there were no hiding our imperfections? No doubt we would struggle with feeling self-conscious, and we would wonder how we were being judged by others. In my book,. Eye of the Beholder. Matthew was born with Moebius syndrome. Here's how his story begins:. When I first began my research for the book, I realized that l...
heroeswiththousandfaces.blogspot.com
Eye of the Beholder: Are face transplants ethical?
http://heroeswiththousandfaces.blogspot.com/2009/01/are-face-transplants-ethical.html
Eye of the Beholder. Are face transplants ethical? Not only was her face terribly disfigured from an accident, but her hands were too. She physically couldn't use them to take her own life. (She, by the way, contacted Cleveland Clinic in 2005 to inquire about face transplant.). To my mind, the real questions are these: Is quality of life just as important as life? Is any loss less than loss of life frivolous? Eye of the Beholder. A portion of the author's proceeds will benefit a number of organizations t...
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