Charity London Marathon Places 2015, Myositis UK is a registered charity providing information and support to individuals and their families affected by Dermatomyositis, Polymyositis, Inclusion Body Myositis and Juvenile Dermatomyositis.
http://myositis.org.uk/
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Myositis UK | Juvenile Dermatomyositis, Adult Dermatomyositis & Polymyositis, Inclusion Body Myositis (IBM) | myositis.org.uk Reviews
https://myositis.org.uk
Charity London Marathon Places 2015, Myositis UK is a registered charity providing information and support to individuals and their families affected by Dermatomyositis, Polymyositis, Inclusion Body Myositis and Juvenile Dermatomyositis.
myositis.org.uk
Myositis UK | Juvenile Dermatomyositis, Adult Dermatomyositis & Polymyositis, Inclusion Body Myositis (IBM)
http://myositis.org.uk/index.asp
Fundraising, Events and Donations. Myositis UK is a registered charity providing information and support to individuals and their families affected by Dermatomyositis, Polymyositis, Inclusion Body Myositis and Juvenile Dermatomyositis. The charity raises funds to promote medical research to improve the diagnosis, treatment, management and understanding of these rare inflammatory myopathies. Read more about Myositis UK (formerly Myositis Support Group). Raquo; More info. Raquo; More info. Raquo; More info.
Myositis UK | Juvenile Dermatomyositis, Adult Dermatomyositis & Polymyositis, Inclusion Body Myositis (IBM)
http://myositis.org.uk/meetings.asp
Fundraising, Events and Donations. The AGM and Conference is free to members of the charity and is held in July. Throughout the year the charity also attends other meetings and various hospital departments hold meetings for their patients. Members who wish to hold mini-meetings or informal meet-ups are welcome to send details for inclusion here. Raquo; View details. Raquo; View details. Raquo; View details. Raquo; View details. Raquo; View details. Raquo; View details. International Conference on Myositis.
Myositis UK | Juvenile Dermatomyositis, Adult Dermatomyositis & Polymyositis, Inclusion Body Myositis (IBM)
http://myositis.org.uk/support.asp
Fundraising, Events and Donations. Support Us Fundraise, Event, Donations and Shop. Our income is achieved by donations and fundraising and to sustain the charity and fund research we rely on the generous financial help of our supporters. Myositis UK to date has received no funding from Government, National Lottery, or Pharmaceutical grants. If you wish to help support the work of Myositis UK please consider a donation or fundraising. Raquo; One off donations. Raquo; Regular donating. Raquo; British 10K.
Myositis UK | Juvenile Dermatomyositis, Adult Dermatomyositis & Polymyositis, Inclusion Body Myositis (IBM)
http://myositis.org.uk/JDM-survey.htm
Fundraising, Events and Donations. Survey for the Development of an Internationally agreed Minimal Dataset for JDM. The JDM Minimal Dataset Study Group are looking for UK respondents to their online survey. From the JDM Minimal Dataset Study Group:-. We are currently running a research project about Juvenile Dermatomyositis (JDM). A child or young person with Juvenile Dermatomyositis (JDM). An adult who developed Dermatomyositis as a child. A parent of a child with Juvenile Dermatomyositis. We expect tha...
Myositis UK | Juvenile Dermatomyositis, Adult Dermatomyositis & Polymyositis, Inclusion Body Myositis (IBM)
http://myositis.org.uk/meetings-details.asp?Meeting_ID=11
Fundraising, Events and Donations. Meetings / AGM and Conference July 2015. The AGM and Conference 2015 will be on Sunday 12th July at the Oxford Belfry Hotel, Milton Common, near Thame, Oxford. The format for the day is as for previous years with the charities AGM being held alongside the Conference which will again include separate Break Out sessions for Juvenile Dermatomyositis, Dermatomyositis and Polymyositis, and Inclusion Body Myositis. The AGM will start at TBC. The conference will start at TBC.
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Useful Resources | Data4Health
http://www.data4health.co.uk/the-campaign/useful-resources
The ABPI represents innovative research-based biopharmaceutical companies, large, medium and small, leading an exciting new era of biosciences in the UK. CASMI is a partnership between Oxford University and UCL, created to develop new models for medical innovation. A national charity of over 150 patient organisations supporting all those affected by genetic conditions. European Conferences on Rare Diseases bring together a range of stakeholders from industry, government and acedemia. Created by people af...
Ironman Rob: July 2011
http://ironmanrob.blogspot.com/2011_07_01_archive.html
Monday, 25 July 2011. Putting it all in perspective. This weekend has been a tough one. We had some people over on Friday night to watch the final mountain stage of the Tour de France up Alpe D’Huez which was great fun although saddened significantly by the news that one of the coaches at Tri-Alliance, John Cornish, had been killed in a bike accident on Beach road. Rest in Peace JC, may the wind be forever on your back. Subscribe to: Posts (Atom). Putting it all in perspective. Ive now done 4 x Ironman t...
Ironman Rob: June 2011
http://ironmanrob.blogspot.com/2011_06_01_archive.html
Friday, 10 June 2011. Always a positive topic to write about. Post triathlon season the focus had been on running in preparation for the Gold Coast Marathon. I’ve now downgraded that to the half (at least in my head I have – must email the race organiser! More on the reasons for that later. Meanwhile I’ve had a couple of short sharp races / time trials to see where my running has got to and was please to put down a couple of new PB’s. Http:/ connect.garmin.com/activity/88091507. 25 weeks to go until IMWA...
Ironman Rob: Ironman Melbourne 2013
http://ironmanrob.blogspot.com/2013/03/ironman-melbourne-2013.html
Friday, 22 March 2013. After the debacle that was my attempt at Ironman New Zealand in 2012 and the infamous “weather bomb”, plenty has happened in my world (he’s called Archie! Race day is the culmination of so much hard work and I’m really looking forward to cheering everyone on and seeing some great results, so notable mentions:. I know Kristy’s training was impacted by the ‘Sunny’ incident but am sure the smiling assassin will still be doing her best to mow down the opposition on th...8211; I suspect...
Information – Dr Nathan Hasson
https://www.drhasson.co.uk/information
Consultant Paediatrician and Paediatric Phumatologist. How to make an appointment. The Wellington Diagnostics & Outpatients Centre. Fees and insurance costs. The multi disciplinary team. Below we have some information that our patients have found useful, feel free to use this as an information resource. CHAT a guide for parents. CHAT 2 Arthritis in teenagers. CHAT 2 A teachers guide to juvenile arthritis. A day with Sam. Benign Joint Hypermobility Syndrome. Knee Pain in Young Adults. 2016 Dr Nathan Hasson.
Useful Links – General Information – The Myositis Association – Australia INC
http://myositis.org.au/useful-links-general-information
0421 314 138 Anita Chalmers. A Physician’s Guide to Inflammatory Myopathies. Inclusion Body Myositis info. Useful Links General Information. Mobility Aids Useful links. Clinical Trial Update – July 2016. Exercise – Use It Or Lose It? Improvement in Aerobic Capacity After an Exercise. Johnson L home exercise program in IBM. List 0f Health Professionals. A Physician’s Guide to Inflammatory Myopathies. Inclusion Body Myositis info. Useful Links General Information. Mobility Aids Useful links. National Disab...
LisaS – Lisanne's Fibro Blog
https://lisannesfibroblog.com/author/lkscales
Lisanne's Fibro Blog. A look into a life with fibromyalgia, chronic pain, and other invisible illnesses. Toxic People and How To Handle Them. August 18, 2016. We’ve all come across them at one point or another in our lives. The colleague who seems to have it in for you, the friend who always has a drama they want to involve you in, the difficult neighbour, or the family member who wears you out every time you see or speak to them. It’s important to protect yourself from toxic people. It also enables you ...
Ironman Rob: December 2010
http://ironmanrob.blogspot.com/2010_12_01_archive.html
Saturday, 18 December 2010. So nearly 2 weeks on from Ironman WA, thoughts have turned to next year and what events to focus on. The rough plan at the moment looks a bit like this. Early 2011 = mainly sprint distance racing:. Feb / March = XOSIZE Tri Series races 4 and 5. Feb 13 - Falls Creek Long Course. Feb 20 - Geelong Olympic Distance. Going to have a go at a few Crit races when I have the time SKCC Crit racing. Then I'll start moving to having more of a running focus:. Mid April - Run for the Kids.
Ironman Rob: February 2012
http://ironmanrob.blogspot.com/2012_02_01_archive.html
Thursday, 16 February 2012. Wow, IMNZ has come around so fast. It was always going to be challenging backing up IMWA with another race just 13 weeks later and it has definitely been a learning experience in listening to my body and adapting my training to suit. Essentially since Busso I had 3 weeks of almost complete rest with next to no training, then a solid 7 week block. I’m now into week 8 and starting to ease down a bit before the real taper begins with 2 weeks to go. That’s not to say I haven...
TOTAL LINKS TO THIS WEBSITE
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myositis.com - Myositis Resources and Information.
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TMA - The Myositis Association
Muscle or Skin Biopsy. New treatments under study. Find a Physical Therapist. Patients Living with Myositis. TMA Grants and Fellowships. Long Term Investment fund. More Ways To Help. 2018 Annual Patient Conference. September 6-9, 2018 Read more. Read past and current issues of TMA's quarterly newsletter Read more. TMA awards nearly $7 million in myositis research funding. 2017 Annual Patient Conference - Presentations. Try the purple search button above. Read more. 2018 Annual Patient Conference. April 2...
The Myositis Association – Australia INC – The Myositis Association – Australia is run entirely by volunteers and is a non profit organisation
A Physician’s Guide to Inflammatory Myopathies. Inclusion Body Myositis info. Myositis Exercise/Safety Info for Physios, OT’s and Nurses. Clinical Trial Update July 2016. Exercise Use It Or Lose It? Mobility Aids Useful links. Useful Links General Information. Improvement in Aerobic Capacity After an Exercise. Johnson L home exercise program in IBM. List 0f Health Professionals. Exercise/Safety brochure for Physios, OT’s and Nurses. Congratulations Anita Chalmers OAM. Inclusion Body Myositis info. Reduci...
Myositis UK | Juvenile Dermatomyositis, Adult Dermatomyositis & Polymyositis, Inclusion Body Myositis (IBM)
Fundraising, Events and Donations. Myositis UK is a registered charity providing information and support to individuals and their families affected by Dermatomyositis, Polymyositis, Inclusion Body Myositis and Juvenile Dermatomyositis. The charity raises funds to promote medical research to improve the diagnosis, treatment, management and understanding of these rare inflammatory myopathies. Read more about Myositis UK (formerly Myositis Support Group). Raquo; More info. Raquo; More info. Raquo; More info.
myositis.secure.nonprofitsoapbox.com
TMA - The Myositis Association
Muscle or Skin Biopsy. New treatments under study. Find a Physical Therapist. Patients Living with Myositis. TMA Grants and Fellowships. Long Term Investment fund. More Ways To Help. Scroll to the bottom of the homepage and click on Resources or About TMA. Read more. 2015 Annual Patient Conference. Sept 10-13, Updated Conference Agenda now Available! Read past and current issues of TMA's quarterly newsletter Read more. Do you have IBM and are attending the 2015 Annual Patient Conference? Novartis is acti...
Holy Cow We're Doing It! | 9 months at play
Holy Cow We're Doing It! 9 months at play. Asymp; 1 Comment. 8221; Ouch, Noah takes offence and deflates, stomping off. “We’re in an apartment shhh! 8221;, ” shhhh” I hiss, I hear her stomp loudly down the stairs our elevator stops at floor 5. “That was Chloe pressing the button” Noah says. I say “Noah that’s why wars are started people jumping to conclusions. How do you know it was Chloe? Chloe getting a bucket of cold water thrown on her by Noah. Rainy day in Tuilleries Garden. Noah reading Horrible Hi...
Myositis and Me
Monday, March 19, 2012. 15 Years since it began. It's been a very long time since I posted anything to this blog, but I had a brief conversation on Twitter over the weekend that made me think about it again. It's been 15 years since my myositis journey began and I took a few minutes to browse through a few of my posts as a reminder of how far I have come. I still struggle with the prednisone weight. I'm not the same person I was before this came into my life. Wednesday, October 6, 2010. So Dr Jeff got hi...
www.myositisaustralia.com
Some more of my ramblings......
Some more of my ramblings. Well I'm new to this so treat me kindly. I'm not going to be a regular blogger but just when I think I've got something to say. Please feel free to comment on anything I write. Friday, 28 February 2014. Rare Disease Day 2014. Today, 28th February 2014, is Rare Disease Day. There are over 6,000 rare diseases and these effect 1 in 20 of the population. That's 3,500,000 people here in the UK. Limited Cutaneous Systemic Sclerosis Overlap. Pulmonary Fibrosis (NSIP Stable). I use a B...
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