npkua.org

awpku.connectwithemerge.net

Adults With PKU > Managing Your Diet > Returning To The PKU Diet

http://awpku.connectwithemerge.net/ManagingYourDiet/ReturningToThePKUDiet.aspx

Attention deficit hyperactivity disorder (ADHD): A disorder that may be characterized by a pattern of inattention (inability to concentrate) sometimes combined with hyperactivity and impulsivity that is persistent and developmentally inappropriate, and occurs in at least two different settings. Blood-brain barrier (BBB) is a selective barrier than prevents some microscopic particles from entering the brain through the bloodstream. Executive functioning refers to high-level abilities that influence proces...

necpad.org

New England Connection for PKU and Allied Disorders Links and Resources

http://www.necpad.org/links.php

The New England Connection for PKU and Allied Disorders. Disorders of Amino Acid Metabolism. Disorders of Carbohydrate Metabolism. Disorders of Fatty Acid Metabolism. National Organization for Rare Disorders. New England Consortium of Metabolic Programs. New England Regional Genetics Group. Mid-Atlantic Connection for PKU and Allied Disorders. PKU Organization of Illinois. Children’s PKU Network. BioMarin Pharmaceuticals PKU Web Portal. NECPAD's list of Medications that have Phenylalanine.

pkugirl.blogspot.com

Phenylketonuric Here!: March 2014

http://pkugirl.blogspot.com/2014_03_01_archive.html

Wednesday, March 26, 2014. The other day I was talking to a bunch of my friends, and I'm not sure how it came up, but we were talking about my diet. They were going off about how limited it was, and how sorry they were, and how someday in heaven they were going to force me to eat all sorts of foods. It was fine. I've had lots of conversations that mimic this one almost word for word. I just play along, no harm done. In fact, I didn't think anything about it. Until. I was touched. Really. I like talking a...

anpadnews.org

ANPAD News | Arizona Network for PKU and Allied Disorders

http://anpadnews.org/posts

August 19, 2016. Night Under the Stars. A Special Thanks…. Dinner and Golf 2014. Camp Knot a Phe. Camp Knot a Phe 2016! Camp Knot a Phe Map, Packing List and more. Camp Knot a Phe Pow Pow Leaders. On-Line FOOD LIST – How much Phe? Come Cook with Us. The challenges of PKU. Continue Reading →. Raising Awareness for Rare Disease Day. We’re thankful for you. Enjoy Sweets and Treats the Low-Protein way. New Foods and Good Finds. Help Other People Endure. Come Cook with Us. The challenges of PKU.

thericefamilyexperience.blogspot.com

Our PKU Life: December 2013

http://thericefamilyexperience.blogspot.com/2013_12_01_archive.html

Tales of the Rice Family life experience. Tuesday, December 3, 2013. National PKU Awareness Day. There are many reasons why I have abandoned my blog efforts for the past few months. I cannot get into those in this post, but just know that I am trying to jump back on this wagon now! Carson is still doing great with his diet. He is finally showing more interest in other foods (SALAD! But he also is becoming curious about foods he cannot eat, thanks to his grabby little sister! Subscribe to: Posts (Atom).

thefilesofatravelingdaydreamer.wordpress.com

About PKU | the files of a traveling daydreamer

https://thefilesofatravelingdaydreamer.wordpress.com/where-am-i-going-next

The files of a traveling daydreamer. Where I've been, where I am, where I'll go, and where I dream about. About My Photos and Videos. Where Am I Going Next? I am living with a metabolic disorder called Phenylketonuria, or PKU. Unless you studied genetics in college, you probably haven’t heard of it, and that’s okay. Here’s the basic crash course:. PKU is a genetic condition in which a person lacks a certain liver enzyme that is needed to break down a harmful part of protein, called phenylalanine (or phe).

medicalfood.com

http://www.medicalfood.com/learning-center/community--events

To optimize your experience on our website, please tell us which of the following best describes you:. Caregiver of infant (ages 0-1). Caregiver of young child (ages 1-4). Caregiver of child (ages 5-12). Adult (ages 18 ). Caregiver of infant (ages 0-1). Caregiver of young child (ages 1-4). Caregiver of child (ages 5-12). Adult (ages 18 ). Healthcare Professionals ›. Sign Up for Email Updates ›. Our Products Formula and Low Protein Foods. Learning Center Education and Resources. Low Pro Living Blog. Venue...

breezeporter.blogspot.com

Life's a Breeze: May 2013

http://breezeporter.blogspot.com/2013_05_01_archive.html

Friday, May 17, 2013. Holy cow where does the time go? My answer is this. Maybe, but why would I wish something on my child that will make their life hard just so that Breeze will have that in common with her sibling? I will keep you posted about baby #2! Subscribe to: Posts (Atom). Be our friend facebook! We are the happy family of three plus two dogs. Adam and I have been married going on eight years! Note to self- If today sucks, there is always tomorrow. PKU (low protein) pumpkin pie. Emele Porter&#4...

thericefamilyexperience.blogspot.com

Our PKU Life: June 2013

http://thericefamilyexperience.blogspot.com/2013_06_01_archive.html

Tales of the Rice Family life experience. Friday, June 21, 2013. Friday Fun: Lazy Summer Days. Cats: The epitome of laziness! Today is the first official day of summer, the longest day of the year. However, most people celebrate the beginning of summer as the end of school, which happened a few short weeks ago. And here in the Deep South, it almost always feels like summer already anyway! Some yummy summer refreshments, and a lot of fun, with more to come! My hard-working little girl! I first want to apo...