nspku.org

NSPKU | The National Society for Phenylketonuria

The National Society for Phenylketonuria. The National Society for Phenylketonuria. What is the NSPKU? Posted Wednesday 11th April 2018. Watch Rizzle Kicks Harley Sylvester, Radio 1s Danny Howard, YouTuber Jake Boys and singer Hobbie Stuart battle it out on the football. Read More. International PKU Day 2018. Posted Monday 9th April 2018. Edale Activity Weekend 2018. Posted Monday 9th April 2018. Posted Thursday 22nd March 2018. NSPKU Launch New Research Grants. Posted Friday 23rd March 2018.

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NSPKU | The National Society for Phenylketonuria | nspku.org Reviews

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The National Society for Phenylketonuria. The National Society for Phenylketonuria. What is the NSPKU? Posted Wednesday 11th April 2018. Watch Rizzle Kicks Harley Sylvester, Radio 1s Danny Howard, YouTuber Jake Boys and singer Hobbie Stuart battle it out on the football. Read More. International PKU Day 2018. Posted Monday 9th April 2018. Edale Activity Weekend 2018. Posted Monday 9th April 2018. Posted Thursday 22nd March 2018. NSPKU Launch New Research Grants. Posted Friday 23rd March 2018.

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NSPKU | The National Society for Phenylketonuria | nspku.org Reviews

https://nspku.org

The National Society for Phenylketonuria. The National Society for Phenylketonuria. What is the NSPKU? Posted Wednesday 11th April 2018. Watch Rizzle Kicks Harley Sylvester, Radio 1s Danny Howard, YouTuber Jake Boys and singer Hobbie Stuart battle it out on the football. Read More. International PKU Day 2018. Posted Monday 9th April 2018. Edale Activity Weekend 2018. Posted Monday 9th April 2018. Posted Thursday 22nd March 2018. NSPKU Launch New Research Grants. Posted Friday 23rd March 2018.

INTERNAL PAGES

nspku.org

1

News & Views | NSPKU

http://www.nspku.org/publications/newsandviews

The National Society for Phenylketonuria. The National Society for Phenylketonuria. What is the NSPKU? News and Views is a quarterly newsletter that is distributed to all NSPKU members. It contains news, comments, advice, recipes and letters. A CD-ROM is available to purchase from the publications officer price 2 that contains the first 100 issues. See the order form for more details. Available for download here are issues 101 to date.

2

History | NSPKU

http://www.nspku.org/information/history

The National Society for Phenylketonuria. The National Society for Phenylketonuria. What is the NSPKU? The National Society for Phenylketonuria (United Kingdom) Limited (NSPKU) exists to support people with phenylketonuria (PKU), their families and carers. It is the oldest PKU support organisation in the world. To provide people with information about PKU, the NSPKU has developed - and is continuing to extend - an extensive range of literature. Each publication is targeted for a specific need, eg&#46...

3

Join our Email Mailing List | NSPKU

http://www.nspku.org/information/mailinglist

The National Society for Phenylketonuria. The National Society for Phenylketonuria. What is the NSPKU? Join our Email Mailing List. We have an email mailing list primarily set up to notify dietitians of news relating to updated information on this web site, difficulties obtaining products or mislabelled products. Anyone is welcome to join. To join send an email to nspku news-subscribe@yahoogroups.co.uk. Alternatively you can join on-line. Nspku news@yahoogroups.co.uk. What is the NSPKU?

4

How To Join by Post | NSPKU

http://www.nspku.org/information/howtojoin

The National Society for Phenylketonuria. The National Society for Phenylketonuria. What is the NSPKU? How To Join by Post. There are three types of membership:- Family Membership, Literary Subscription, and Guarantor Membership. Please print out the relevant application forms and follow their instructions. If you pay UK tax, please download the Gift Aid form from below to allow us to claim tax back on your gift. Family Membership for families with children with PKU. Membership application form for use b...

5

Publications | NSPKU

http://www.nspku.org/publications

The National Society for Phenylketonuria. The National Society for Phenylketonuria. What is the NSPKU? The publications are available to order from the NSPKU Publications Officer at the address shown on the order form. Or available to download from the sections below. Please note that the contact details on some of these publications are now out of date. Always refer to the web site for the current details. These booklets give information about the phenylalanine content of many different foods.

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swisspku.ch

GEMEINSCHAFTEN & ORGANISATIONEN | SWISS PKU

http://swisspku.ch/leben-mit-pku/gemeinschaften-organisationen

GEMEINSCHAFTEN & ORGANISATIONEN. Deutsche Interessengemeinschaft PKU und verwandte Stoffwechselstörungen e.V. (DIG-PKU). Österreichische Gesellschaft für angeborene Stoffwechselstörungen O E G A ST. Association de parents d’enfants phénylcétonuriques A.P.E.P. PKU forening for Danmark. National Society for Phenylketonuria. PKU Félagið á Íslandi. Associazione Prevenzione Malattie Metaboliche Congenite A.pmM.C. Associazione Studio Malattie Metaboliche Ereditarie ONLUS Cometa A.S.M.M.E. Stiftung Denk an mich.

iranpku.ir

جامعه فنیل کتونوری ایران - پی کی یو - Iranian PKU Society > اخبار و رویدادها

http://www.iranpku.ir/list.php?cate=3

شنبه 27 آگوست 2016 - 6 شهريور 1395. National Society for Phenylketonuria. انجمن حمايت از كودكان. انجمن فنیل کتونوری استان همدان. جشن روز جهانی pku در باغ عفیف آباد شیراز. پنجشنبه 30 ژوئن 2016 - 10 تير 1395. به مناسبت بزرگداشت روز جهانی پی کی یو در روز چهارشنبه نهم تیر ماه جشنی در تالار باغ عفیف آباد شیراز برگزار شد. هشتم تیر ماه روز جهانی پی کی یو گرامی باد. سهشنبه 28 ژوئن 2016 - 8 تير 1395. گزارش تصویری دیدار جمعی از خانواده های پی کی یو با مسئولین. برگزاری نمایشگاه نقاشی به نفع کودکان پی کی یو در شیراز.

iranpku.ir

جامعه فنیل کتونوری ایران - پی کی یو - Iranian PKU Society

http://www.iranpku.ir/index.php

شنبه 27 آگوست 2016 - 6 شهريور 1395. National Society for Phenylketonuria. انجمن حمايت از كودكان. انجمن فنیل کتونوری استان همدان. از آنجا كه في يك آمينو اسيد است، مقدار زيادي از آن در غذاهاي با پروتئين بالا، مانند گوشت وتخم مرغ وجود دارد. افراد مبتلا به پي كي يو بايد در رژيم غذايي خود از غذاهايي با فنيل كمتر استفاده كنند. آنها بايد از غذاهاي پر فنيل اجتناب كنند و رژيم غذايي خود را محدود به غذاهاي كم فنيل نمايند. طرز تهیه رول پوره. یک غذای فست فودی متفاوت برای افراد پی کی یو. جشن روز جهانی pku در باغ عفیف ...

iranpku.ir

جامعه فنیل کتونوری ایران - پی کی یو - Iranian PKU Society > تماس با ما

http://www.iranpku.ir/page2.php?name=contact

شنبه 27 آگوست 2016 - 6 شهريور 1395. National Society for Phenylketonuria. انجمن حمايت از كودكان. انجمن فنیل کتونوری استان همدان. نام و نام خانوادگی :. شهر و کشور :.

iranpku.ir

جامعه فنیل کتونوری ایران - پی کی یو - Iranian PKU Society > درباره ما

http://www.iranpku.ir/goto.php?id=7

شنبه 27 آگوست 2016 - 6 شهريور 1395. National Society for Phenylketonuria. انجمن حمايت از كودكان. انجمن فنیل کتونوری استان همدان. اين سايت سعي دارد با ترجمه مقالات علمي دنيا ، اطلاعات مربوط به اين بيماري را در اختيار خانواده ها قرار دهد . همچنين بخش آشپزي اين سايت ، كه منتخبي از بهترين غذاهاي كم پروتئين است ، با تنوع فراوان ، تحمل رژيم محدود را آسانتر مي كند . Iranpku.ir جايي است كه افراد مي توانند تجارب شخصي خود در مورد پي كي يو را به اشتراك بگذارند و در مورد افكار و احساساتشان صحبت كنند .

learningtopku.blogspot.com

Learning to PKU: September 2010

http://learningtopku.blogspot.com/2010_09_01_archive.html

I am a very lucky Mum to two beautiful daughters, known here as Moomin and Gremlin. My second gorgeous girl, Gremlin (above), has PKU (Phenylketonuria) and has introduced us to a whole new world! This blog is intended to record our journey with regards it, particularly focusing on food and eating. View my complete profile. Thursday, 30 September 2010. And she ate a few of those, but that was that. Game over. Wednesday, 29 September 2010. Moomin quite liked it and I think Alex did too! I think I've touche...

learningtopku.blogspot.com

Learning to PKU: Whoop Whoop

http://learningtopku.blogspot.com/2011/02/whoop-whoop.html

I am a very lucky Mum to two beautiful daughters, known here as Moomin and Gremlin. My second gorgeous girl, Gremlin (above), has PKU (Phenylketonuria) and has introduced us to a whole new world! This blog is intended to record our journey with regards it, particularly focusing on food and eating. View my complete profile. Thursday, 10 February 2011. Tonight we had the best tea we've had in ages. Subscribe to: Post Comments (Atom). How to survive your childrens' childhood.

learningtopku.blogspot.com

Learning to PKU: December 2010

http://learningtopku.blogspot.com/2010_12_01_archive.html

I am a very lucky Mum to two beautiful daughters, known here as Moomin and Gremlin. My second gorgeous girl, Gremlin (above), has PKU (Phenylketonuria) and has introduced us to a whole new world! This blog is intended to record our journey with regards it, particularly focusing on food and eating. View my complete profile. Tuesday, 21 December 2010. We've had big problems with tummy bug virus, constipation and teething this week, so all meals have been massive challenge, but we are muddling through and s...

nutricia.co.uk

Nutricia Advanced Medical Nutrition UK - uk.nutricia.com

http://nutricia.co.uk/about/partnerships

UK Head Office: 01225 711 688. Already have an account. Jul 26, 2016 - 12:44 PM. Day symposium Infantile spasms and dravet syndrome Dr Anastasia Dressler, Assistant Professor, Department of Neonataology, Paediatric Intensive. Jul 26, 2016 - 12:40 PM. Evening symposium Dietary management of paediatric PKU; do we need to change practice? Consideration of the EU. Nutrison Energy Multi Fibre Vanilla - NEW. Feb 22, 2016 - 12:42 PM. Jul 26, 2016. Jul 26, 2016. Consideration of the EU. Feb 22, 2016. Aug 26, 2015.

learningtopku.blogspot.com

Learning to PKU: July 2010

http://learningtopku.blogspot.com/2010_07_01_archive.html

I am a very lucky Mum to two beautiful daughters, known here as Moomin and Gremlin. My second gorgeous girl, Gremlin (above), has PKU (Phenylketonuria) and has introduced us to a whole new world! This blog is intended to record our journey with regards it, particularly focusing on food and eating. View my complete profile. Thursday, 29 July 2010. Well today it happened. The thing I have been dreading (well, aside from the carraway seeds incident last month! Thursday, 22 July 2010. Thursday, 15 July 2010.

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Národní sdružení PKU a jiných dědičných metabolických poruch

Vážení členové, dovolujeme si Vás upozornit na to, že dne 8.1.2018 Vám byly mailem zaslány platební údaje pro platbu ročního členského příspěvku Národního sdružení PKU a jiných DMP, z.s., pro rok 2018. Osobám bez mailů byly tyto údaje zaslány poštou koncem prosince 2017. Jeho výše činí 400,- Kč, příp. i jinou, Vámi určenou částku vyšší, a k tomu, abyste zůstali řádnými členy sdružení je nutno tento poplatek uhradit nejpozději do 31. 3. 2018. Pozvánku a bližší informace k tomuto kursu naleznete zde. Metab...

nspku.org

NSPKU | The National Society for Phenylketonuria

The National Society for Phenylketonuria. The National Society for Phenylketonuria. What is the NSPKU? Posted Wednesday 11th April 2018. Watch Rizzle Kicks Harley Sylvester, Radio 1s Danny Howard, YouTuber Jake Boys and singer Hobbie Stuart battle it out on the football. Read More. International PKU Day 2018. Posted Monday 9th April 2018. Edale Activity Weekend 2018. Posted Monday 9th April 2018. Posted Thursday 22nd March 2018. NSPKU Launch New Research Grants. Posted Friday 23rd March 2018.

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Národné združenie pre PKU

Národné združenie pre PKU. Každý človek niekedy potrebuje pomoc. Letný rekondičný pobyt 2015. Letný rekondičný pobyt 2014. Letný edukačný pobyt Orava2013. Dieťa s PKU ide do školy. Kde kúpiť diétne potraviny. Celoslovenské stretnutie fenylketonurikov v Banskej Bystrici. V Banskej Bystrici sa stretneme pri odbornom progranme a neformálnych diskusiách v dňoch od 12. do. Pozvánka na letný edukačný pobyt 2013. Podľa výsledkov ankety účastníkov predchádzajúcich pobytov na Ranči u Edyho, sa Orava stala. V dňoc...

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