nzord.org.nz
NZORD - HomeRare disease information gateway, support groups directory, practical advice, health and disability resources, research information, news and issues.
http://nzord.org.nz/
Rare disease information gateway, support groups directory, practical advice, health and disability resources, research information, news and issues.
http://nzord.org.nz/
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NZORD - Home | nzord.org.nz Reviews
https://nzord.org.nz
Rare disease information gateway, support groups directory, practical advice, health and disability resources, research information, news and issues.
NZORD - Other New Zealanders’ stories
https://www.nzord.org.nz/introduction/other-new-zealanders-stories
Skip to Primary Navigation. Skip to Secondary Navigation. Skip to Main Content. Skip to Utility Menu. Find a support group. Explore the NZORD site. How we can help. Living with a rare disease. What is a rare disease? Other New Zealanders’ stories. Stories from around the world. Press releases and submissions. Send us your story. Living with a rare disease. What is a rare disease? Other New Zealanders’ stories. Stories from around the world. Other New Zealanders’ stories. Read about their fundraising effo...
NZORD - Patient services
https://www.nzord.org.nz/helpful-information/patient-services
Skip to Primary Navigation. Skip to Secondary Navigation. Skip to Main Content. Skip to Utility Menu. Find a support group. Explore the NZORD site. How we can help. Living with a rare disease. What is a rare disease? Other New Zealanders’ stories. Stories from around the world. Press releases and submissions. Send us your story. Living with your condition. Participating in your community. Publicly funded services you may be referred to. Coping with Your Condition. Participating in Your Community.
NZORD - Helpful information
https://www.nzord.org.nz/helpful-information
Skip to Primary Navigation. Skip to Secondary Navigation. Skip to Main Content. Skip to Utility Menu. Find a support group. Explore the NZORD site. How we can help. Living with a rare disease. What is a rare disease? Other New Zealanders’ stories. Stories from around the world. Press releases and submissions. Send us your story. To find online information provided by New Zealand support groups about specific conditions, we suggest you go to our support groups directory. There are many ways to find out wh...
NZORD - Genetics
https://www.nzord.org.nz/helpful-information/genetics
Skip to Primary Navigation. Skip to Secondary Navigation. Skip to Main Content. Skip to Utility Menu. Find a support group. Explore the NZORD site. How we can help. Living with a rare disease. What is a rare disease? Other New Zealanders’ stories. Stories from around the world. Press releases and submissions. Send us your story. The New South Wales Genetics Education Programme. Sponsored by the University of Utah provides excellent educational resources on its website, including resources designed for ch...
NZORD - Connecting with others
https://www.nzord.org.nz/introduction/connecting-with-others
Skip to Primary Navigation. Skip to Secondary Navigation. Skip to Main Content. Skip to Utility Menu. Find a support group. Explore the NZORD site. How we can help. Living with a rare disease. What is a rare disease? Other New Zealanders’ stories. Stories from around the world. Press releases and submissions. Send us your story. Living with a rare disease. What is a rare disease? Other New Zealanders’ stories. Stories from around the world.
TOTAL PAGES IN THIS WEBSITE
19
Congenital Adrenal Hyperplasia Support Group - Our Supporters
http://www.cah.org.nz/our_supporters
Congenital Adrenal Hyperplasia Support Group. Explore the SUBGROUP NAME site. Congenital Adrenal Hyperplasia Support Group of New Zealand.
NZ Organisations - MelNet
http://melnet.org.nz/resources/nz-organisations
Conferences, Seminars and Events. Call for Sunbed Ban. Standards of Service Provision for Melanoma Patients in New Zealand Provisional. NZ Skin Cancer Primary Prevention and Early Detection Strategy 2014 to 2017. NZ Vitamin D and Sun Exposure Consensus Statement. High Suspicion of Cancer Definitions. Tools for Skin Lesion Diagnosis. 2015 Stocktake of Melanoma-Related Research in New Zealand. Minor Surgery. A visual guide for office-based surgery from beginner to expert. Tools for Skin Lesion Diagnosis.
Tuberous Sclerosis Complex New Zealand - Resources
http://www.tsc.org.nz/resources
Keep up to date with TSCNZ events and news through our Facebook Page. Talk with other people and families who have Tuberous Sclerosis at the Discussions of Tuberous Sclerosis in Australia and New Zealand (a closed facebook group) Discussions of Tuberous Sclerosis in Australia and New Zealand. Surveillance and Management Guidelines. Balloons with the TSCNZ logo. Contact us if you would like these resources sent to you free of charge or print them off this website. Peer-Reviewed, Published Consensus Papers.
XLH :: Links
http://xlhnetwork.org/index.php/technical-information/links-technical-information
Other XLH Related Sites. Database of PHEX mutations. Yale Center for X-Linked Hypophosphatemia. Your Genes, Your Choices Exploring the Issues Raised by Genetic Research. Online Mendelian Inheritance in Man (OMIM) page on XLH. Bone Biology for Kids. EMedicine page on Hypophosphatemic Rickets. The Merck Manual page on Hypophosphatemic Rckets. Rare Disorder Resource Websites. Canadian Organization for Rare Disorders (CORD). National Organization for Rare Disorders (NORD). NIH Office of Rare Diseases. We com...
Rare Voices Australia - Partner Organisations
http://www.rarevoices.org.au/page/30/partner-organisations
Round Table of Companies. What Is A Rare Disease? Living With a Rare Disease. A-Z of Support Organisations. A-Z of Rare Diseases. What Is An Orphan Drug? Access to Orphan Drugs. Current Approved Oprhan Drugs. Miracles from Heaven" - Exclusive Movie Preview - 14th March. Join Hand Prints Across Australia Campaign. Hands Across Australia 2016. Hands Across Australia 2015. Rare Disease Day Events. Rare Disease Day Banners and Logos. Ways to Get Involved. Become an RVA Member. Create a Fundraising Page.
Organizations | Orthostatic Tremor
https://www.orthostatictremor.org/organization_links.html
Visit the OT Forum. Information, News, Research, and Discussion. The History of OT. Join a group, start a group, look for answers and help. The National Organization for Rare Disorders (NORD). A French-speaking organization for essential tremor, rare tremors, myoclonus, and orthostatic tremor. Is a non-governmental patient-driven alliance of patient organisations representing 624 rare disease patient organisations in 58 countries. The Genetic and Rare Diseases Information Center (GARD). Website of the In...
Genetic Counselling
http://www.geneticcounselling.eu/support_groups.html
There are several ways to search for a rare disease patient organisation. Most will list patient groups by country:. 1 NORD (National Organization for Rare Disorders) is the American national alliance. 2 ORD (Office of Rare Diseases), a service of the NIH (National Institutes of Health). 1 CORD (Canadian Organization for Rare Disorders) is the Canadian national alliance. 1Orphanet: the Orphanet website lists many patient organisations in different European countries and Morocco.
helpforsweetssyndromeuk.wordpress.com
Trials – Help for Sweet's Syndrome, UK
https://helpforsweetssyndromeuk.wordpress.com/medical-and-trial/trials
Help for Sweet's Syndrome, UK. Please BEE sweet and buzz for Sweet's. Help us spread the word. Key info: what you need to know. What is Sweet’s syndrome? What kind of condition is Sweet’s syndrome? What causes Sweet’s syndrome? What are the symptoms of Sweet’s syndrome? How is Sweet’s syndrome diagnosed? What is the treatment for Sweet’s syndrome? Medical Articles & Trials. Free Clinical Papers (1). Free Clinical Papers (2). Useful info: contact us & resources. Support Groups & Forum. This study is curre...
helpforsweetssyndromeuk.wordpress.com
What is the treatment for Sweet’s syndrome? – Help for Sweet's Syndrome, UK
https://helpforsweetssyndromeuk.wordpress.com/key-information/what-is-the-treatment-for-sweets-syndrome
Help for Sweet's Syndrome, UK. Please BEE sweet and buzz for Sweet's. Help us spread the word. Key info: what you need to know. What is Sweet’s syndrome? What kind of condition is Sweet’s syndrome? What causes Sweet’s syndrome? What are the symptoms of Sweet’s syndrome? How is Sweet’s syndrome diagnosed? What is the treatment for Sweet’s syndrome? Medical Articles & Trials. Free Clinical Papers (1). Free Clinical Papers (2). Useful info: contact us & resources. Support Groups & Forum. Steroids are most c...
TOTAL LINKS TO THIS WEBSITE
78
Dental and Oral Health Therapists - NZ Dental & Oral Health Therapists
Maintaining Good Oral Health. Caring for Children's Oral Health. What is a Dental Therapist? What is a Dental Hygienist? Publications and Research Reviews. Students and Graduates Information. Study Group Sessions, Case Studies, Peer Reviews. Links to Other Organisations. Maintaining Good Oral Health. Caring for Children's Oral Health. What is a Dental Therapist? What is a Dental Hygienist? Publications and Research Reviews. Students and Graduates Information. Links to Other Organisations.
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NZORD - Home
Skip to Primary Navigation. Skip to Secondary Navigation. Skip to Main Content. Skip to Utility Menu. Find a support group. Explore the NZORD site. How we can help. Living with a rare disease. What is a rare disease? Communicating with your GP. Other New Zealanders’ stories. Stories from around the world. Applying for PHARMAC funding. News and press releases. New Horizons: The New Zealand Rare Disease Day Symposium. View the speakers' presentations. NZORD and the Minister of Health. NZORD continues to fi...
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NZORD - Welcome
Skip to Primary Navigation. Skip to Main Content. Skip to Utility Menu. Explore the NZORD Site. Health Care and Support. Find us on Facebook. Subscribe to press releases and newsletters. Follow us on YouTube. NZORD accepts donations through Givealittle. New Zealand Organisation for Rare Disorders. PO Box 38-538,. 64 4 471 2226. Charities Commission Registration CC22512. NZORD, the New Zealand Organisation for Rare Disorders, provides New Zealands central starting point for information about rare diseases.
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Community
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