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Oxalosis & Hyperoxaluria Foundation

Stepping Stones to a Cure

http://www.ohf.org/

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CONTACTS AT OHF.ORG

The Oxalosis and Hyperoxaluria Foundation

Kim Hollander

201 Eas●●●●●●● Street

New●●●ork , New York, 10003

US

1.21●●●●0470
ne●●●●●●●●@ohf.org

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The Oxalosis and Hyperoxaluria Foundation

Kim Hollander

201 Eas●●●●●●● Street

New●●●ork , New York, 10003

US

1.21●●●●0470
ne●●●●●●●●@ohf.org

View this contact

The Oxalosis and Hyperoxaluria Foundation

Kim Hollander

201 Eas●●●●●●● Street

New●●●ork , New York, 10003

US

1.21●●●●0470
ne●●●●●●●●@ohf.org

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Oxalosis & Hyperoxaluria Foundation | ohf.org Reviews
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Stepping Stones to a Cure
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4 diagnosis
5 treatment
6 dialysis
7 research
8 clinical trials
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10 get involved
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Oxalosis & Hyperoxaluria Foundation | ohf.org Reviews

https://ohf.org

Stepping Stones to a Cure

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1

Oxalosis & Hyperoxaluria Foundation » News

https://ohf.org/category/news

Organ Donation & Transplants. Grants & Funding. Organ Donation & Transplants. Grants & Funding. In Honor of Joshua Derrick Moose. My name is Donna Kays, and my son Joshua Moose was diagnosed with Primary Hyperoxaluria and passed away from his disease in. OHF Research: University of Alabama at Birmingham! By Sonia Fargue, MD, PhD I am happy to introduce you to my lab! We are based across the Atlantic, in the. OHF Stories: The Ouimet Family Part 4. Allena Pharmaceuticals, Inc. OHF Stories is a new initiati...

2

Oxalosis & Hyperoxaluria Foundation » Dialysis

https://ohf.org/dialysis

Organ Donation & Transplants. Grants & Funding. Organ Donation & Transplants. Grants & Funding. Depending on the severity of your hyperoxaluria, your kidneys may eventually stop working. Dialysis is a treatment used to replace some of the kidney’s function of cleaning the blood of toxins and removing extra fluids. There are two types of dialysis. Shop at any of our 100 online retail partners, including Amazon and Target, who will donate to us for every purchase through this button! New York, NY 10003.

3

Oxalosis & Hyperoxaluria Foundation » Clinical Trials

https://ohf.org/clinical-trials

Organ Donation & Transplants. Grants & Funding. Organ Donation & Transplants. Grants & Funding. Patients who volunteer to participate in observational studies and clinical research trials make it possible for new drugs and therapies to be developed. From observational studies to clinical trials, you can help researchers unlock the secrets of Primary Hyperoxaluria. By participating in a clinical trial, you may benefit by. Gaining access to new treatments that are not yet available to the public. OHF Resea...

4

Oxalosis & Hyperoxaluria Foundation » Grants & Funding

https://ohf.org/grants-funding

Organ Donation & Transplants. Grants & Funding. Organ Donation & Transplants. Grants & Funding. Grants & Funding. Application Deadline: November 1st Midnight EST. The OHF seeks to support research that will ultimately lead to new diagnostics, treatments, and a cure for Primary Hyperoxaluria and related Hyperoxaluria conditions. OHF will award up to $200,000 total cost per project after a competitive process to select the most meritorious projects. OHF Global Registry Initiative. The Rare Kidney Stone Con...

5

Oxalosis & Hyperoxaluria Foundation » Learn

https://ohf.org/overview

Organ Donation & Transplants. Grants & Funding. Organ Donation & Transplants. Grants & Funding. Eating a diet of high oxalate content foods can cause high levels of oxalate in the urine and can increase your risk of hyperoxaluria or kidney stones. Generally, if diet changes are made the urine oxalate will then decrease. Ask your doctor or dietitian for a list of high-oxalate foods. The enzymes involved in the three disorders are as follows:. PH1: alanine-glyoxylate aminotransferase, or AGT. Very large am...

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rarekidneystones.org rarekidneystones.org

Primary Hyperoxaluria - Rare Kidney Stone Consortium

http://www.rarekidneystones.org/hyperoxaluria

Dawn S. Milliner, MD. Mayo Clinic, Rochester, MN. Liz Lorenz, MD Mayo Clinic, Rochester, MN. John Lieske, MD Mayo Clinic, Rochester, MN. Hatem Amer, MD Mayo Clinic, Rochester, MN. Peter Harris, PhD Mayo Clinic, Rochester, MN. Candice Granberg, MD Mayo Clinic, Rochester, MN. Craig Langman Northwestern University / Lurie Children's Hospital of Chicago, Chicago, IL. Ellen Brooks, PhD Northwestern University / Lurie Children's Hospital of Chicago, Chicago, IL. Julie Olson, RN (Study Coordinator). The Registr...

hyperoxaluria-center.com hyperoxaluria-center.com

Hyperoxalurie Zentrum Deutschland

http://www.hyperoxaluria-center.com/links.html

Unterstützt durch PH Selbsthilfe e.V. Oxalosis and Hyperoxaluria Foundation. USA www.ohf.org. German Primary hyperoxaluria self support group. Mayo Clinic Hyperoxaluria Center. Rochester, MN, USA www.mayoclinic.org/nephrology-rst/hyperoxaluriacenter.html. Earth System Science Research Centre. Institut fuer Geowissenschaften, http:/ www.biomin.uni-mainz.de. Experts in Stone Disease. Biopharmaceutical therapy for treatment of Primary Hyperoxaluria. Prof Dr. Bernd Hoppe. Telefon: 49 (0)228 2873 3259.

ph-selbsthilfe.org ph-selbsthilfe.org

PH Selbsthilfe e.V.

http://www.ph-selbsthilfe.org/ueberuns.html

PH Selbsthilfe e.V. HILFE nach SGB 2 IX. Die Selbsthilfegruppe hat sich auf der Sitzung am 16.09.2005 in Köln gegründet. Wir sind ein gemeinnütziger, registrierter Verein mit dem Vereinsitz in Köln. Vereinregisternummer 15071. Gründungsmitglieder sind sowohl Familien betroffener Kinder und Personen, die mit der Krankheit in Verbindung stehen. Die Ärzte aus Köln, Hamburg, Frankfurt und Freiburg sitzen im Beirat, und stehen im engen Kontakt miteinander. Somit ist es trotz intensiver Diagnostik oft nur ein ...

ph-selbsthilfe.de ph-selbsthilfe.de

PH Selbsthilfe e.V.

http://www.ph-selbsthilfe.de/helpcard.html

PH Selbsthilfe e.V. HILFE nach SGB 2 IX. So wird Gutes tun ganz einfach! Gestalten Sie Ihre eigene HelpCard. Ist eine soziale Geschenkkarte zur Unterstützung unserer Hilfsprojekte. Hier können Sie ganz individuell Ihre eigene HelpCard gestalten. Wählen Sie das Motiv, den Wert und formulieren Sie einen individuellen Text. Und schon haben Sie ein sehr persönliches Geschenk und können gleichzeitig damit Gutes tun. Für ganz Eilige: die E-HelpCard. Dann wäre die E-HelpCard. Wählen Sie nun die mögliche Zahlung...

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PH Selbsthilfe e.V. Spenden

http://www.ph-selbsthilfe.de/spenden.html

PH Selbsthilfe e.V. HILFE nach SGB 2 IX. Altruja - Social Fundraising. Wir sind Mitglied bei ACHSE e.V. Wir unterstützen - nephro.TV. Unser Verein wird gefördert durch die GKV - Gemeinschaftsförderung der Selbsthilfe.

ph-selbsthilfe.org ph-selbsthilfe.org

PH Selbsthilfe e.V.

http://www.ph-selbsthilfe.org/international.html

PH Selbsthilfe e.V. HILFE nach SGB 2 IX. Primäre Hyperoxalurie in Europa und den USA. Prof Dr. Pierre Cochat. Département de Pédiatrie and Inserm U820. Centre de Référence des Maladies Rénales Héréditaires Hôpital Edouard-Herriot and Université Lyon 1. 69437 Lyon cedex 03, France. Email: pierre.cochat@chu-lyon.fr. Tel : 33 4 72110346. Fax : 33 4 72110343. HYPEROXALURIE PRIMAIRE ET SECONDAIRE. William Van't Hoff, MD. Email: VANTHW@gosh.nhs.uk. Phone: 0044 (0)2074059200 Ext 5583. SC Nefrologia e Dialisi.

ph-selbsthilfe.org ph-selbsthilfe.org

PH Selbsthilfe e.V. Spenden

http://www.ph-selbsthilfe.org/spenden1.html

PH Selbsthilfe e.V. HILFE nach SGB 2 IX. Wir freuen uns, über Ihre Unterstützung von Menschen mit Primärer Hyperoxalurie. Herzlichen Dank! Helfen Sie uns durch eine Überweisung auf folgendes Konto:. IBAN: DE47 4401 0046 0759 9414 61. Bei Fragen nehmen Sie bitte Kontakt mit uns auf:. Wir danken allen Spendern für ihre wertvolle Unterstützung! Wir sind Mitglied bei ACHSE e.V. Wir unterstützen - nephro.TV. Unser Verein wird gefördert durch die GKV - Gemeinschaftsförderung der Selbsthilfe.

ph-selbsthilfe.org ph-selbsthilfe.org

PH Selbsthilfe e.V.

http://www.ph-selbsthilfe.org/ziele.html

PH Selbsthilfe e.V. HILFE nach SGB 2 IX. Über die Stoffwechselstörung Primäre Hyperoxalurie zu verbreiten und die Krankheit in das Bewusstsein der Menschen zu bringen, um somit beim Auftreten einzelner Symptome schon im Kindesalter entsprechend reagieren zu können. Zwischen betroffenen Familien untereinander und den behandelnden Ärzten zu fördern, um den Patienten den Umgang mit der Krankheit zu erleichtern. Eine bessere Unterrichtung der Ärzte und anderer Therapeuten. Wir sind Mitglied bei ACHSE e.V.

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