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actionforalex.org

Action for Alex -

March 16, 2017. Frustration doesn’t even come close to describing the level of emotion I have been feeling lately. The journey to getting Alexander treated has tested our patience, wrecked our emotions, and induced anger towards an overly complicated and cruel process. We were elated to find out the FDA approved Spinraza for the treatment of SMA shortly … [Read more…]. Everyday Struggles: Playing in the Bathtub. February 20, 2017. Eating, Swallowing, and Weight Gain. February 5, 2017. January 12, 2017.

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Action for Alex - | actionforalex.org Reviews
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March 16, 2017. Frustration doesn’t even come close to describing the level of emotion I have been feeling lately. The journey to getting Alexander treated has tested our patience, wrecked our emotions, and induced anger towards an overly complicated and cruel process. We were elated to find out the FDA approved Spinraza for the treatment of SMA shortly … [Read more…]. Everyday Struggles: Playing in the Bathtub. February 20, 2017. Eating, Swallowing, and Weight Gain. February 5, 2017. January 12, 2017.
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1 home / blog
2 about sma
3 my family
4 the actionmobile
5 give to alex
6 frustration
7 by kandi boggs
8 posted in uncategorized
9 by jamie
10 cautious hope
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Action for Alex - | actionforalex.org Reviews

https://actionforalex.org

March 16, 2017. Frustration doesn’t even come close to describing the level of emotion I have been feeling lately. The journey to getting Alexander treated has tested our patience, wrecked our emotions, and induced anger towards an overly complicated and cruel process. We were elated to find out the FDA approved Spinraza for the treatment of SMA shortly … [Read more…]. Everyday Struggles: Playing in the Bathtub. February 20, 2017. Eating, Swallowing, and Weight Gain. February 5, 2017. January 12, 2017.

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1

jamie, Author at Action for Alex

https://www.actionforalex.org/author/jamie

Everyday Struggles: Playing in the Bathtub. February 20, 2017. Alexander likes playing in water and enjoys his time in the bathtub. He can move his little legs and feet a little in the water and he likes that extra freedom. He struggles to keep his head up and needs his bath chair for support to sit. He doesn’t have a lot of strength to … [Read more…]. Eating, Swallowing, and Weight Gain. February 5, 2017. Nationwide Children’s Hospital. December 3, 2016. Can it be treated? If so, how and where? Someone ...

2

Lots of updates. Busy week. - Action for Alex

https://www.actionforalex.org/2016/08/lots-of-updates-busy-week

Lots of updates. Busy week. August 13, 2016. I updated our facebook page with exciting news a couple of days ago, but neglected to post a blog about it. For starters, UPS dropped off this big brown box a couple of days ago. What was in this large box? This has been a very exciting week for the Boggs household. School started back for Alexander’s two older brothers, Owen and Ethan. Big brother Ethan started first grade and biggest brother Owen started 2nd grade this week. Click to share on Google (Opens i...

3

Everyday Struggles: Playing in the Bathtub - Action for Alex

https://www.actionforalex.org/2017/02/everyday-struggles-playing-bathtub

Everyday Struggles: Playing in the Bathtub. February 20, 2017. Alexander likes playing in water and enjoys his time in the bathtub. He can move his little legs and feet a little in the water and he likes that extra freedom. He struggles to keep his head up and needs his bath chair for support to sit. He doesn’t have a lot of strength to play with his toys, but you can see that he is still having a blast! Click to share on Twitter (Opens in new window). Click to share on Facebook (Opens in new window).

4

Uncategorized Archives - Action for Alex

https://www.actionforalex.org/category/uncategorized

March 16, 2017. Frustration doesn’t even come close to describing the level of emotion I have been feeling lately. The journey to getting Alexander treated has tested our patience, wrecked our emotions, and induced anger towards an overly complicated and cruel process. We were elated to find out the FDA approved Spinraza for the treatment of SMA shortly … [Read more…]. Everyday Struggles: Playing in the Bathtub. February 20, 2017. Eating, Swallowing, and Weight Gain. February 5, 2017. January 12, 2017.

5

Nationwide Children's Hospital - Action for Alex

https://www.actionforalex.org/2016/12/nationwide-childrens-hospital

Nationwide Children’s Hospital. December 3, 2016. The time finally came. We’ve spent a lot of time after our diagnosis reading up about SMA. What is the science behind it? Can it be treated? If so, how and where? A lot of our research kept leading us to Nationwide Children’s Hospital. In Columbus, OH. The blue squared car insurance company? We made our trip the night before our visit. We were told that the orientation visit could take 4 hours. Or more. 4 hours? That sounded intense. In retrospect, ou...

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Action for Alex -

March 16, 2017. Frustration doesn’t even come close to describing the level of emotion I have been feeling lately. The journey to getting Alexander treated has tested our patience, wrecked our emotions, and induced anger towards an overly complicated and cruel process. We were elated to find out the FDA approved Spinraza for the treatment of SMA shortly … [Read more…]. Everyday Struggles: Playing in the Bathtub. February 20, 2017. Eating, Swallowing, and Weight Gain. February 5, 2017. January 12, 2017.

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