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The Australian Galactosaemia Support Network | Supporting the treatment of galactosaemia

The Australian Galactosaemia Support Network. Supporting the treatment of galactosaemia. Skip to primary content. Skip to secondary content. Australian Galactosaemia Support Network. SUPPORT THE AGSN AND GALACTOSAEMIA COMMUNITY! Wear an AGSN T-shirt and support Galactosaemia. Check out the designs below. AGSN Cocktail Reception 2012 – Presentations. Contribute to this website – s. End us your story, favourite recipe or other ideas. Get involved – volunteer Advisory Committee positions available. With the...

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The Australian Galactosaemia Support Network | Supporting the treatment of galactosaemia | agsn.org.au Reviews

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The Australian Galactosaemia Support Network. Supporting the treatment of galactosaemia. Skip to primary content. Skip to secondary content. Australian Galactosaemia Support Network. SUPPORT THE AGSN AND GALACTOSAEMIA COMMUNITY! Wear an AGSN T-shirt and support Galactosaemia. Check out the designs below. AGSN Cocktail Reception 2012 – Presentations. Contribute to this website – s. End us your story, favourite recipe or other ideas. Get involved – volunteer Advisory Committee positions available. With the...

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The Australian Galactosaemia Support Network | Supporting the treatment of galactosaemia | agsn.org.au Reviews

https://agsn.org.au

The Australian Galactosaemia Support Network. Supporting the treatment of galactosaemia. Skip to primary content. Skip to secondary content. Australian Galactosaemia Support Network. SUPPORT THE AGSN AND GALACTOSAEMIA COMMUNITY! Wear an AGSN T-shirt and support Galactosaemia. Check out the designs below. AGSN Cocktail Reception 2012 – Presentations. Contribute to this website – s. End us your story, favourite recipe or other ideas. Get involved – volunteer Advisory Committee positions available. With the...

INTERNAL PAGES

agsn.org.au

1

What is Galactosaemia? | The Australian Galactosaemia Support Network

http://www.agsn.org.au/what-is-galactosaemia

The Australian Galactosaemia Support Network. Supporting the treatment of galactosaemia. Skip to primary content. Skip to secondary content. Galactose in the blood. Galactosaemia is a genetic condition that affects the body’s ability to process galactose. Galactose is a naturally occurring sugar found in a number of human organs and other living things. It is also a part of lactose, the main sugar found in animal milks. Please click here for more details. On the diet for galactosaemia. The bacterial infe...

2

Dallas 2012 | The Australian Galactosaemia Support Network

http://www.agsn.org.au/dallas-2012

The Australian Galactosaemia Support Network. Supporting the treatment of galactosaemia. Skip to primary content. Skip to secondary content. In 2012 the AGSN attended the Galactosemia Foundation’s conference in Dallas. Details of our experience are shared below and in the attached documents. For ease of reference we have provided information on the key themes separately below. If anyone wants more information on any particular topics please email us at agsn@agsn.org.au.

3

Our Stories | The Australian Galactosaemia Support Network

http://www.agsn.org.au/our-stories

The Australian Galactosaemia Support Network. Supporting the treatment of galactosaemia. Skip to primary content. Skip to secondary content. We don’t know what the future holds for Holly, but we do know that we want to give her every opportunity to live a happy and fulfilling life. We hope the AGSN will be able to help Holly and other children with galactosaemia. Morning broke and Milla was given her first Soy Formula bottle. She loved it. The Paediatrician and Metabolic Doctor were both in to se...Almos...

4

Food and Diet | The Australian Galactosaemia Support Network

http://www.agsn.org.au/food-and-diet

The Australian Galactosaemia Support Network. Supporting the treatment of galactosaemia. Skip to primary content. Skip to secondary content. At present the main treatment for galactosaemia is diet based. Since galactosaemics cannot breakdown galactose, the treatment focuses on reducing galactose from the diet as far as possible. The following foods (and foods that contain the following) should be avoided:. Lactose free products (lactose free milk, cream, yoghurt and custard still contain galactose).

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Useful Links | The Australian Galactosaemia Support Network

http://www.agsn.org.au/useful-links

The Australian Galactosaemia Support Network. Supporting the treatment of galactosaemia. Skip to primary content. Skip to secondary content. Women’s and Children’s Hospital, North Adelaide. The Children’s Hospital at Westmead. Human Genetics Society of Australia. Galactosemia Foundation (formerly, Parents of Galactosemic Children, Inc.) (USA). The Galactosaemia Support Group (UK). Canadian Families with Galactosemia. Galactosemia Support Group (QLD). Fundraising & Research.

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gsnv.org.au

Genetic Support Network Victoria (GSNV) - Support Groups - Support Groups

http://gsnv.org.au/support-groups/support-groups.aspx

Genetic Support Network Victoria (GSNV). Find a Genetics Service. Support services for young people. 2016 Annual General Meeting. Our Vision and Mission. Find a genetics clinic or support service. Further information and resources. Resources for parents and families. Cant Find a Group? Genetics in Family Medicine. Taking Part in Research. Genetics in the Media. Cant Find a Group? Support Group / Individual. 4P Aussie Kidz - Helping children with Wolf Hirschhorn Syndrome. Albinism Fellowship of Australia.

gsnv.org.au

Genetic Support Network Victoria (GSNV) - Support Groups

http://gsnv.org.au/support-groups.aspx

Genetic Support Network Victoria (GSNV). Find a Genetics Service. Support services for young people. 2016 Annual General Meeting. Our Vision and Mission. Find a genetics clinic or support service. Further information and resources. Resources for parents and families. Cant Find a Group? Genetics in Family Medicine. Taking Part in Research. Genetics in the Media. Cant Find a Group? Support Group / Individual. 4P Aussie Kidz - Helping children with Wolf Hirschhorn Syndrome. Albinism Fellowship of Australia.

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Links | GalNet

http://www.galnet.mumc.betawerk.eu/links

European Comission expert on rare diseases. International Rare Disease Research Consortium - IRDiRC. Classic galactosemia or Type I galactosemia. GALK deficiency or Type II galactosemia. GALE deficiency or Type III galactosemia. National Organization for Rare Disorders - NORD:. Classic galactosemia and related disorders. European Galactosaemia Society - EGS. Australian Galactosaemia Support Network - AGSN. Galactosemia Association of Midwest America - GAMA. Galactosemic Families of Minnesota - GFMN.

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Links | GalNet

https://www.galactosemianetwork.org/links

European Comission expert on rare diseases. International Rare Disease Research Consortium - IRDiRC. Classic galactosemia or Type I galactosemia. GALK deficiency or Type II galactosemia. GALE deficiency or Type III galactosemia. National Organization for Rare Disorders - NORD:. Classic galactosemia and related disorders. European Galactosaemia Society - EGS. Australian Galactosaemia Support Network - AGSN. Galactosemia Association of Midwest America - GAMA. Galactosemic Families of Minnesota - GFMN.

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The Australian Galactosaemia Support Network | Supporting the treatment of galactosaemia

The Australian Galactosaemia Support Network. Supporting the treatment of galactosaemia. Skip to primary content. Skip to secondary content. Australian Galactosaemia Support Network. SUPPORT THE AGSN AND GALACTOSAEMIA COMMUNITY! Wear an AGSN T-shirt and support Galactosaemia. Check out the designs below. AGSN Cocktail Reception 2012 – Presentations. Contribute to this website – s. End us your story, favourite recipe or other ideas. Get involved – volunteer Advisory Committee positions available. With the...

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