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Welcome To The Alkaptonuria Society - AKU Society

Shopping cart is empty. Learn more about AKU, its symptoms and treatments. Learn more about the AKU Society and our supporters. Learn more about what help is available to AKU patients. For volunteers, fundraisers, or to join our events. Register here for the. Reach out to AKU. Patients around the world. Get in touch with the AKU team. Looking Forward to 2017. With Christmas all but over and the New Year well underway, we take a look at all the exciting p. .more. Ann and Rory's Bristol Coffee Morning.

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Welcome To The Alkaptonuria Society - AKU Society | aku-society.diglimited.co.uk Reviews

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Shopping cart is empty. Learn more about AKU, its symptoms and treatments. Learn more about the AKU Society and our supporters. Learn more about what help is available to AKU patients. For volunteers, fundraisers, or to join our events. Register here for the. Reach out to AKU. Patients around the world. Get in touch with the AKU team. Looking Forward to 2017. With Christmas all but over and the New Year well underway, we take a look at all the exciting p. .more. Ann and Rory's Bristol Coffee Morning.

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1 register with us

2 menu

3 what is aku

4 aku explained

5 treatments

6 patient stories

7 for healthcare professionals

8 online learning module

9 history of aku

10 about us

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register with us,menu,what is aku,aku explained,treatments,patient stories,for healthcare professionals,online learning module,history of aku,about us,our mission,our history,our team,our funders,sister societies,media resources,blog,get support,calendar

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Welcome To The Alkaptonuria Society - AKU Society | aku-society.diglimited.co.uk Reviews

https://aku-society.diglimited.co.uk

Shopping cart is empty. Learn more about AKU, its symptoms and treatments. Learn more about the AKU Society and our supporters. Learn more about what help is available to AKU patients. For volunteers, fundraisers, or to join our events. Register here for the. Reach out to AKU. Patients around the world. Get in touch with the AKU team. Looking Forward to 2017. With Christmas all but over and the New Year well underway, we take a look at all the exciting p. .more. Ann and Rory's Bristol Coffee Morning.

INTERNAL PAGES

aku-society.diglimited.co.uk

1

AKU Our History

http://aku-society.diglimited.co.uk/aku-our-history.html

Shopping cart is empty. Our history is one of perseverance, dedication and innovation. It demonstrates how rare disease patients and their relatives can be empowered to take control of their condition and actively drive forwards their own healthcare and treatment prospects, in partnership with medical experts. Founded in 2003 by AKU patient, Bob Gregory, and biochemist, Prof. L. Ranganath. At the same time, the Department of Health agreed to fund a. National Alkaptonuria Centre (NAC). Today the scope of ...

2

AKU Explained

http://aku-society.diglimited.co.uk/aku-explained.html

Shopping cart is empty. AKU stops patients' bodies from breaking down a chemical called homogentisic acid (HGA) which the body naturally produces during the digestion of food. Due to this, HGA builds up in the body and, over time, leads to black and brittle bones and cartilage, and early onset osteoarthritis. The build up of HGA in the body can also lead to other, sometimes more serious health complications. Please click below to find more in-depth explanations of the symptoms of AKU. Reach out to AKU.

3

AKU National Alkaptonuria Centre

http://aku-society.diglimited.co.uk/aku-national-aku-centre.html

Shopping cart is empty. The National Alkaptonuria Centre. Many people diagnosed with alkaptonuria (AKU), have difficulty accessing efficient and effective care to treat their AKU. For some, there has been a lack of local expertise and knowledge when dealing with such a rare disease, resulting in the failure to detect complications of AKU and an inability to make appropriate treatments available. Patients who attend the National AKU Centre will receive:. A full health assessment and treatment of AKU.

4

AKU Treatments

http://aku-society.diglimited.co.uk/aku-treatments.html

Shopping cart is empty. A Potential Drug - Nitisinone. The drug nitisinone is being researched as the first potential treatment for alkaptonuria (AKU). Previous research has shown that nitisinone can reduce the levels of homogentisic acid (HGA) by up to 95 %. Animal models have shown that, if administered early enough, nitisinone could potentially prevent the disease from developing. Further information can also be found on our clinical trials microsite, www.developakure.eu. If you are an AKU patient in ...

5

Free Will Writing

http://aku-society.diglimited.co.uk/free-will-writing

Shopping cart is empty. Here at the AKU Society we are committed to providing a wide range of support and advice to our patients and supporters. Recommended to us by one of our patients, we have partnered with McClure Solicitors, a nation-wide law firm, to offer our supporters three key services for free or at a discounted rate: free will writing, free will reviews and half price Power of Attorney. McClure have offices in 7 UK locations, but also offer home consultations. Our CEO, Oliver Timmis. It was a...

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Welcome To The Alkaptonuria Society - AKU Society

Shopping cart is empty. Learn more about AKU, its symptoms and treatments. Learn more about the AKU Society and our supporters. Learn more about what help is available to AKU patients. For volunteers, fundraisers, or to join our events. Register here for the. Reach out to AKU. Patients around the world. Get in touch with the AKU team. Looking Forward to 2017. With Christmas all but over and the New Year well underway, we take a look at all the exciting p. .more. Ann and Rory's Bristol Coffee Morning.

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