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Disjointed

I have Hypermobility Type Ehlers Danlos Syndrome, Undifferentiated Connective Tissue Disease, and a basket full of other health crap. When everything keeps falling out of place, it's important to have somewhere to keep track of where it falls. What the heck is EDS? Twenty-four year old writer still trying to chase down the winds. View my complete profile. My Pain Level Key. Not easy but doable. 4 It's an average day. All but simple tasks take effort. Likely not walking well. 8 This is stupid. I'm positiv...

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Disjointed | alldisjointed.blogspot.com Reviews
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I have Hypermobility Type Ehlers Danlos Syndrome, Undifferentiated Connective Tissue Disease, and a basket full of other health crap. When everything keeps falling out of place, it's important to have somewhere to keep track of where it falls. What the heck is EDS? Twenty-four year old writer still trying to chase down the winds. View my complete profile. My Pain Level Key. Not easy but doable. 4 It's an average day. All but simple tasks take effort. Likely not walking well. 8 This is stupid. I'm positiv...
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Disjointed | alldisjointed.blogspot.com Reviews

https://alldisjointed.blogspot.com

I have Hypermobility Type Ehlers Danlos Syndrome, Undifferentiated Connective Tissue Disease, and a basket full of other health crap. When everything keeps falling out of place, it's important to have somewhere to keep track of where it falls. What the heck is EDS? Twenty-four year old writer still trying to chase down the winds. View my complete profile. My Pain Level Key. Not easy but doable. 4 It's an average day. All but simple tasks take effort. Likely not walking well. 8 This is stupid. I'm positiv...

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alldisjointed.blogspot.com alldisjointed.blogspot.com
1

Disjointed: April 2010

http://alldisjointed.blogspot.com/2010_04_01_archive.html

I have Hypermobility Type Ehlers Danlos Syndrome, Undifferentiated Connective Tissue Disease, and a basket full of other health crap. When everything keeps falling out of place, it's important to have somewhere to keep track of where it falls. What the heck is EDS? Twenty-four year old writer still trying to chase down the winds. View my complete profile. Three days until Tufts. I carry a cane. My hand is patriotic. Hey, Hand- this blog is supposed to be about EDS. Why you gotta be this way? We've been t...

2

Disjointed: June 2010

http://alldisjointed.blogspot.com/2010_06_01_archive.html

I have Hypermobility Type Ehlers Danlos Syndrome, Undifferentiated Connective Tissue Disease, and a basket full of other health crap. When everything keeps falling out of place, it's important to have somewhere to keep track of where it falls. What the heck is EDS? Twenty-four year old writer still trying to chase down the winds. View my complete profile. At least Im still good at lowering my standards. My ID says Radioactive. Warning: woozy, rambling post. Sometimes its hard to be a patient patient.

3

Disjointed: September 2010

http://alldisjointed.blogspot.com/2010_09_01_archive.html

I have Hypermobility Type Ehlers Danlos Syndrome, Undifferentiated Connective Tissue Disease, and a basket full of other health crap. When everything keeps falling out of place, it's important to have somewhere to keep track of where it falls. What the heck is EDS? Twenty-four year old writer still trying to chase down the winds. View my complete profile. 2010 National Invisible Chronic Illness Awareness . My Pain Level Key. Not easy but doable. 4 It's an average day. All but simple tasks take effort.

4

Disjointed: June 2011

http://alldisjointed.blogspot.com/2011_06_01_archive.html

I have Hypermobility Type Ehlers Danlos Syndrome, Undifferentiated Connective Tissue Disease, and a basket full of other health crap. When everything keeps falling out of place, it's important to have somewhere to keep track of where it falls. What the heck is EDS? Twenty-four year old writer still trying to chase down the winds. View my complete profile. Ups and downs = Middle ground? My Pain Level Key. Not easy but doable. 4 It's an average day. All but simple tasks take effort. Likely not walking well.

5

Disjointed: July 2010

http://alldisjointed.blogspot.com/2010_07_01_archive.html

I have Hypermobility Type Ehlers Danlos Syndrome, Undifferentiated Connective Tissue Disease, and a basket full of other health crap. When everything keeps falling out of place, it's important to have somewhere to keep track of where it falls. What the heck is EDS? Twenty-four year old writer still trying to chase down the winds. View my complete profile. Holy Social Security, Batman! For real now- this is kind of insane. Results are in- and survey says. My Pain Level Key. Not easy but doable. My claim h...

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Links | eye + fork = unadvisable

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Eye fork = unadvisable. The scatterbrained blog of a starving artist. If anyone would feel so inclined to do so, please do! And lemme know below in the comments, so I can thank you properly and maybe do a link swap! Url: https:/ eyeplusfork.wordpress.com/. 8211; Rad Artists –. A href= http:/ cocoaspen.deviantart.com/Jorge. 8211; Boss Shops –. Fatzombie – The ART of the Tattoo Artist. FrozenFire – Handblown Borosilicate Glass Body Jewelry. 8211; Fab Blogs –. Will work for tattoo money. 3. Spam in a can.

lifeisalittletwisted.blogspot.com lifeisalittletwisted.blogspot.com

A Little Twisted: Life with Ehlers-Danlos Syndrome: Rainy Day Rant

http://lifeisalittletwisted.blogspot.com/2011/05/rainy-day-rant.html

Me, My Fam and Livin The Twisted Life. Ehlers-Danlos mama trying not to twist things up *too* much! Tuesday, May 17, 2011. Someday I'd like to believe I won't have to apologize for the length of time between posts. (Absence makes the heart grow fonder? I wrote an entire post about my ankle fusion. Which went off without a hitch on April 28. And go for: “Dear EDS, Fuck You.”. Why, then, can't I just look forward to the nicely-fused, cast-free future (i.e. May 31. 9 am, not that anyone's keeping track)?

lifeisalittletwisted.blogspot.com lifeisalittletwisted.blogspot.com

A Little Twisted: Life with Ehlers-Danlos Syndrome: A Birthday

http://lifeisalittletwisted.blogspot.com/2011/08/birthday.html

Me, My Fam and Livin The Twisted Life. Ehlers-Danlos mama trying not to twist things up *too* much! Thursday, August 11, 2011. But as time has passed, the days, even the birthdays, aren’t as sad. Sometimes the grief still swallows me, overpowers me, but today I just enjoyed the sunshine. Still…I wish you were here, buddy. I miss your sweet face. August 11, 2011 at 2:08 AM. Im sure Atiyyah made today sunny, just for his family. Sending love and juju xx. Subscribe to: Post Comments (Atom).

lifeisalittletwisted.blogspot.com lifeisalittletwisted.blogspot.com

A Little Twisted: Life with Ehlers-Danlos Syndrome: November 2010

http://lifeisalittletwisted.blogspot.com/2010_11_01_archive.html

Me, My Fam and Livin The Twisted Life. Ehlers-Danlos mama trying not to twist things up *too* much! Wednesday, November 3, 2010. There have been about a million things that I've wanted to blog about in the past few weeks, but by the time everyone is taken care of, fed, changed, medicated, and in bed, my fingers are just too tired. Big news for today: my Social Security Disability was approved! First time. No re-application, no appeal, no court, no fighting. What a relief! Links to this post.

lifeisalittletwisted.blogspot.com lifeisalittletwisted.blogspot.com

A Little Twisted: Life with Ehlers-Danlos Syndrome: September 2010

http://lifeisalittletwisted.blogspot.com/2010_09_01_archive.html

Me, My Fam and Livin The Twisted Life. Ehlers-Danlos mama trying not to twist things up *too* much! Wednesday, September 29, 2010. Surgery tomorrow. The overly friendly caller informed me that I should arrive at the hospital at 6 am, having had nothing to eat or drink after midnight. Bring nothing valuable. I've been through this many, many times. I've been through this exact surgery before, save the iliac crest harvesting. Links to this post. Tuesday, September 28, 2010. Wheels for One of Us. I used to ...

lifeisalittletwisted.blogspot.com lifeisalittletwisted.blogspot.com

A Little Twisted: Life with Ehlers-Danlos Syndrome: Nuvigil Update

http://lifeisalittletwisted.blogspot.com/2011/09/nuvigil-update.html

Me, My Fam and Livin The Twisted Life. Ehlers-Danlos mama trying not to twist things up *too* much! Thursday, September 15, 2011. Wow Was this really all I’d needed for so long? Things have settled down. I’m awake-ish. I’m sure the Nuvigil has some benefit, as I haven’t had those scary falling asleep driving moments. I’m hoping to get more info from the MSLT on October 1. And fine tune the meds. So all in all, Nuvigil is no panacea, but it ain’t half bad. I hope you’re all well. It’s a compilation ...

lifeisalittletwisted.blogspot.com lifeisalittletwisted.blogspot.com

A Little Twisted: Life with Ehlers-Danlos Syndrome: January 2011

http://lifeisalittletwisted.blogspot.com/2011_01_01_archive.html

Me, My Fam and Livin The Twisted Life. Ehlers-Danlos mama trying not to twist things up *too* much! Friday, January 21, 2011. Good Bones, Bad Bones and My Beef with Winter. If only things could ever go as planned. For now I'm back in a walking boot with a rocker sole, so at least the audible clunking and associated waves of nausea have subsided. My fear of requiring emergency surgery, at least, was allayed. The boot allows me to walk and keep up with life, a privilege I don't take lightly. People who kno...

lifeisalittletwisted.blogspot.com lifeisalittletwisted.blogspot.com

A Little Twisted: Life with Ehlers-Danlos Syndrome: Me, My Fam & Livin' The Twisted Life

http://lifeisalittletwisted.blogspot.com/p/me-my-fam-livin-twisted-life.html

Me, My Fam and Livin The Twisted Life. Ehlers-Danlos mama trying not to twist things up *too* much! Me, My Fam and Livin' The Twisted Life. So it turns out, I'm far from alone in this world. My partner "Cam" and I have been together for 12 years and during that time we were able to adopt 4 amazing children. Sadly, our oldest child, Atiyyah,. Passed away in 2008. In 2009, Cam gave birth to "The Poodle," so we now have 4 young children at home and one in our hearts and minds. 65279; . Our fiercely indepen...

lifeisalittletwisted.blogspot.com lifeisalittletwisted.blogspot.com

A Little Twisted: Life with Ehlers-Danlos Syndrome: Wake Up Call

http://lifeisalittletwisted.blogspot.com/2011/08/normal-0-false-false-false.html

Me, My Fam and Livin The Twisted Life. Ehlers-Danlos mama trying not to twist things up *too* much! Thursday, August 11, 2011. I have come to expect to wait two months to see my daughter’s motility specialist, one of two in the entire country. But I’ve rarely had to wait two weeks, much less two months for any type of study at this hospital, which touts itself as being ranked #1 in the state in Patient Satisfaction for {Some Number of Years} Running! For a few days, I was almost ok with that. After a...

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I have Hypermobility Type Ehlers Danlos Syndrome, Undifferentiated Connective Tissue Disease, and a basket full of other health crap. When everything keeps falling out of place, it's important to have somewhere to keep track of where it falls. What the heck is EDS? Twenty-four year old writer still trying to chase down the winds. View my complete profile. My Pain Level Key. Not easy but doable. 4 It's an average day. All but simple tasks take effort. Likely not walking well. 8 This is stupid. I'm positiv...

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