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All That Hath Life and Breath | The story of our little Evie

The story of our little Evie

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The story of our little Evie
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All That Hath Life and Breath | The story of our little Evie | allthathathlife.wordpress.com Reviews

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The story of our little Evie

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1

Just Intensity | All That Hath Life and Breath

https://allthathathlife.wordpress.com/2014/04/08/just-intensity

All That Hath Life and Breath. Makes My Heart Burst →. April 8, 2014. Usually in life we gauge experiences on a kind of scale system. The good versus the bad. The sorrow versus the joy. We determine if something was overall good or overall bad by which was experienced more. And typically the two balance one another out some. A very good experience is lessened some by the bad. A bad experience is lessened some by the good. But what about our journey has ever been typical? Grief and Joy Together. It’s not ...

2

Three Years of Happiness | All That Hath Life and Breath

https://allthathathlife.wordpress.com/2014/05/08/three-years-of-happiness

All That Hath Life and Breath. Swallow Study →. Three Years of Happiness. May 8, 2014. Can you believe it’s been three years. How did that happen? I still feel like. We’re coming up to her 2nd birthday. I was her mother and I was helpless. Those feelings will probably always be there on her birthday. There will always be joy that we got to spend another year with her, but sadness as we relive her first few days, weeks, and months with us. I am not going to try to get rid of those emotions, but I. You are...

3

The Diagnosis is Not the Person | All That Hath Life and Breath

https://allthathathlife.wordpress.com/2012/12/11/the-diagnosis-is-not-the-person

All That Hath Life and Breath. We’re Not Special Parents. Worth the Wait →. The Diagnosis is Not the Person. December 11, 2012. Ty and I have been talking lately about how incredibly bad. Evie looks on paper. There’s a reason every single person who has read Evie’s list of diagnoses is shocked to no end when they actually meet her. She’s NEVER what they expect. No You won’t see those. Things in her medical records. In a culture where it only takes a doctor sharing a possible. Struggles, all your. So why ...

4

We’re Not Special Parents | All That Hath Life and Breath

https://allthathathlife.wordpress.com/2012/12/08/were-not-special-parents

All That Hath Life and Breath. Cue Sigh of Hope. The Diagnosis is Not the Person →. We’re Not Special Parents. December 8, 2012. Special kids go to special parents. That cliché. I know it’s supposed to be a compliment, but I think this statement does more harm than good for the parents, the kids, and the special needs community as a whole. Same thing in parents with typical kids. Second, this statement is incredibly discouraging to parents just starting the journey. Cause ya know what? And so children wa...

5

All That Hath Life and Breath | The story of our little Evie | Page 2

https://allthathathlife.wordpress.com/page/2

All That Hath Life and Breath. Newer posts →. November 20, 2015. How different things are from last year! This time last year we were in the hospital still trying to figure out what the problem was with Evie’s intestines. Dark days. Now she’s a giant! And she’s doing so great! Her first four years, she wasn’t even CLOSE to be on the growth charts. Even when she was growing, she still was just barely curving upwards. I plugged in her current height and weight today:. Can you BELIEVE that? November 9, 2015.

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The Petersen's: Laynie's palate surgery

http://trevandcali.blogspot.com/2015/07/laynie-palate-surgery.html

Saturday, July 18, 2015. The time came that we were all dreading. Laynie's hard palate surgery:(. We had an appointment the day before with her ENT because he was going to do a few procedures as well! We left Drake and Daphne with my mom. We decided last minute to leave Daphne but we are so glad we did and we are so thankful for my mom to watch them. It was nice to be able to just focus on Laynie and give her all our attention. Look at this sassy girl. She posed like this by herself! Surgery lasted about...

marsolan.blogspot.com marsolan.blogspot.com

Ronan Reflections: July 2013

http://marsolan.blogspot.com/2013_07_01_archive.html

Our little boy arrived in August 2011. Soon after his birth, we found out he had a congenital heart defect along with several other issues. He was later diagnosed with CHARGE Syndrome. We are navigating the world of syndromes, genetics, heart defects, and hearing loss. all the while watching our little boy amaze everyone. Wednesday, July 24, 2013. And, away we go! These friends will have to say goodbye for a few days. What parent has to do that? At 6 weeks and 23 months. I remember the turning point for ...

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Links - Jaxon Ott

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August 27, 2016. Foundation for Faces of Children. CHARGE Syndrome Facebook Group. CHARGE Syndrome Listserv (Yahoo). All That Hath Life and Breath. The Adventures of Kennedy. The Adventures of Mighty Max. Click to share on Facebook (Opens in new window). Click to share on Twitter (Opens in new window). Click to share on Google (Opens in new window). Click to email this to a friend (Opens in new window). Hi, I’m Jaxon. Send to Email Address. Post was not sent - check your email addresses!

trevandcali.blogspot.com trevandcali.blogspot.com

The Petersen's: August 2015

http://trevandcali.blogspot.com/2015_08_01_archive.html

Friday, August 28, 2015. Soaking up the last bit of summer. We are trying hard to soak up the last bit of summer. We are soooooooo sad it's almost over:(. We went to Jackson Hole on a last minute impromptu trip and had a blast! It was such a fun day! This is how you keep this girl happy in the car! We went to the splash pad with the Halls and had a great day! The kids had so much fun! Laynie loved the carousel! Summer we are going to miss you so much. Please don't leave us quite yet! You amaze me so much!

marsolan.blogspot.com marsolan.blogspot.com

Ronan Reflections: October 2013

http://marsolan.blogspot.com/2013_10_01_archive.html

Our little boy arrived in August 2011. Soon after his birth, we found out he had a congenital heart defect along with several other issues. He was later diagnosed with CHARGE Syndrome. We are navigating the world of syndromes, genetics, heart defects, and hearing loss. all the while watching our little boy amaze everyone. Wednesday, October 16, 2013. When do expectations become unrealistic? It was just too overwhelming. Having fun at PT! As part of that, we want him to walk. We want him to talk. ...One o...

trevandcali.blogspot.com trevandcali.blogspot.com

The Petersen's: March 2015

http://trevandcali.blogspot.com/2015_03_01_archive.html

Wednesday, March 18, 2015. I am really LOVING this stage. 9 months is FUN! She is happy, active, fun, and cuddly. She definitely loves her mom and dad and has bad stranger danger. She just stares down people and WON'T crack a smile. It is pretty funny, but I'm sure everyone thinks she is the grumpiest baby ever! I just love my little Daphne and we think she is the cutest baby in town! Decorating Valentine cookies from Grandpa and Grandma Zachary! I love it when I catch them playing well together! I am ac...

trevandcali.blogspot.com trevandcali.blogspot.com

The Petersen's: Summer happenings

http://trevandcali.blogspot.com/2015/07/summer-happenings.html

Friday, July 10, 2015. Most of these pictures are from Instagram. We are loving summer! We wish it was longer. It is already half way over! For part of Breanne's bachelorette party we went painting. It was so fun! I love my Idaho painting:). Just playing some catch with his Dad! Playing dress up with Elmer. He is so patient with the kids! We had a neighborhood party and it was a lot of fun! The kids are all watching a movie! Subscribe to: Post Comments (Atom). Welcome to our World! Catch Up June 2016.

marsolan.blogspot.com marsolan.blogspot.com

Ronan Reflections: And, away we go!

http://marsolan.blogspot.com/2013/07/and-away-we-go.html

Our little boy arrived in August 2011. Soon after his birth, we found out he had a congenital heart defect along with several other issues. He was later diagnosed with CHARGE Syndrome. We are navigating the world of syndromes, genetics, heart defects, and hearing loss. all the while watching our little boy amaze everyone. Wednesday, July 24, 2013. And, away we go! These friends will have to say goodbye for a few days. What parent has to do that? At 6 weeks and 23 months. I remember the turning point for ...

marsolan.blogspot.com marsolan.blogspot.com

Ronan Reflections: December 2012

http://marsolan.blogspot.com/2012_12_01_archive.html

Our little boy arrived in August 2011. Soon after his birth, we found out he had a congenital heart defect along with several other issues. He was later diagnosed with CHARGE Syndrome. We are navigating the world of syndromes, genetics, heart defects, and hearing loss. all the while watching our little boy amaze everyone. Friday, December 28, 2012. Hope for the Holidays. Well, little Ronan, we have sure had an eventful last few weeks. And of course, you have taken the path we did not expect. Ronan will g...

samuelbeachy.blogspot.com samuelbeachy.blogspot.com

strength for today: Samuel's 5th Birthday

http://samuelbeachy.blogspot.com/2013/02/samuels-5th-birthday.html

For keeping up to date on the life and happenings of little Samuel Patton Beachy. Wednesday, February 27, 2013. We have been surrounded by family and friends - who not only watched our son die with us but also prayed and sang Samuel into the Kingdom of heaven and would not leave until we did; who have held us, prayed for us, and cleaned our house (twice! Who have taken Colin to soccer practice, Anna Catherine on fun girls dates and both of them bowling! These photos were all taken on Dec 5, 2012.). My na...

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All That Hath Life and Breath. The story of our little Evie. Hanging Out with the Birthday Girl. May 12, 2015. We’re still waiting for her bowels to wake up, but she’s comfortable and in good spirits. We even walked around the unit a bit and she showed off her jumping skills for all the staff. EVERYONE seems to know her now. Alright, on to the pictures! I haven’t even gotten all of the cards opened and hung yet! It’s just crazy! May 8, 2015. Can you believe it? This Day Last Year. Three Years of Happiness.

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