alportstudy.com
Resources and Links
http://www.alportstudy.com/clinical-studies-resources.html
What is Alport syndrome? Find out more about Alport syndrome, kidney disease, clinical studies, and patient support materials on these websites:. Alport Syndrome Information and Patient Advocacy Groups. Alport Foundation of Australia. Alport Support Group - Germany. Alport Syndrome Hope for the Cure Foundation. Federation of European Association of Patients affected by Renal Genetic Diseases (FEDERG). Genetics Home Reference, Your Guide to Understanding Genetic Conditions- Alport Syndrome.
alportuk.org
other organisations alport uk - a brighter future for people living with Alport Syndrome
http://www.alportuk.org/info-alport-syndrome/other-alport-organisations
Why we are here. What is Alport Syndrome? For teenagers and young adults. Find your way through the NHS. Questions & answers. There are many organisations around the world with information on Alport Syndrome, for patients and children. Alport Syndrome Foundation – http:/ www.alportsyndrome.org/. Alport Syndrome Foundation of Australia – http:/ www.alport.org.au/. AIRG France – http:/ www.airg-france.fr/. AIRG Belgium – http:/ www.airg-belgique.org/. Rare Disease Week 2016. February 18th, 2016. July 2nd, ...
kidgen.org.au
Meetings & Links - KidGen - kidneys, genes, generations
http://www.kidgen.org.au/meetings--links.html
2016 Renal Genetics Symposium. 3rd and 4th November. For those travelling from interstate or overseas a limited number of rooms have been held in the Larwill hotel adjacent to the Royal Children’s Hospital. These can be booked (before the end of August) by ringing the reservations team (03 9032 9111) or emailing reservations larwill@artserieshotels.com.au. And quoting the meeting name “Renal Genetics Symposium”. For general enquiries please contact Dr Cathy Quinlan at. Register for the 2016 Renal Genetic...
alport-study.com
Resources and Links
http://www.alport-study.com/clinical-studies-resources.html
What is Alport syndrome? Find out more about Alport syndrome, kidney disease, clinical studies, and patient support materials on these websites:. Alport Syndrome Information and Patient Advocacy Groups. Alport Foundation of Australia. Alport Support Group - Germany. Alport Syndrome Hope for the Cure Foundation. Federation of European Association of Patients affected by Renal Genetic Diseases (FEDERG). Genetics Home Reference, Your Guide to Understanding Genetic Conditions- Alport Syndrome.
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