missdiagnosis-rene.blogspot.com
Miss Diagnosis: Cortisol Production Post BLA
http://missdiagnosis-rene.blogspot.com/2012/04/cortisol-production-post-bla.html
My life as a mom and as the parent of a child with Cushing's Disease. Monday, April 23, 2012. Cortisol Production Post BLA. We are told that bilateral adrenalectomy is going to be "the cure" once and for all, and in most cases it truly is. But, I have been researching more on this subject sine Alex's recurrence. One of the articles I found. Once again, I have a theory. Assuming that the vast majority (90%? In the cyclic patient population we are seeing a higher number of patients experiencing problems wi...
missdiagnosis-rene.blogspot.com
Miss Diagnosis: Why Me? Why Indeed
http://missdiagnosis-rene.blogspot.com/2012/04/why-me-why-indeed.html
My life as a mom and as the parent of a child with Cushing's Disease. Saturday, April 28, 2012. Initially I thought "Why me; why Alex; what did we do to deserve this? I eventually moved on, to thinking God was trying to teach me a lesson about patience (it's a lesson I'm still working on). Finally, I concluded, God knew I could do this. He trusted me to take care of Alex. He trusted me to fight and find answers. He knew I had the strength even when I didn't know I had it. Hi, I'm Rene. Welcome to my blog!
missdiagnosis-rene.blogspot.com
Miss Diagnosis: Stretch Marks
http://missdiagnosis-rene.blogspot.com/2012/04/stretch-marks.html
My life as a mom and as the parent of a child with Cushing's Disease. Monday, April 16, 2012. This is what the stretch marks (striae) associated with Cushing's can look like. Prior to Alex's BLA these were popping up in the most unusual places, like her collar bones and behind her knees. Hi, I'm Rene. Subscribe to: Post Comments (Atom). Welcome to my blog! Hi, I'm Rene. View my complete profile. I know God will not give me anything I can not handle. I just wish he didn't trust me so much.". How Rare Is I...
missdiagnosis-rene.blogspot.com
Miss Diagnosis: Three Years Ago Today
http://missdiagnosis-rene.blogspot.com/2012/07/three-years-ago-today.html
My life as a mom and as the parent of a child with Cushing's Disease. Monday, July 16, 2012. Three Years Ago Today. Three years ago today Alex had her adrenal glands removed. Four weeks ago today she had an ablation done on the suspected area of rest tissue. It feels like today is a day I should do an update. Hi, I'm Rene. Subscribe to: Post Comments (Atom). Welcome to my blog! Hi, I'm Rene. View my complete profile. Cushing's Moxie: Fighting The Worst Disease You've Never Heard Of. The Journey of Jessica.
missdiagnosis-rene.blogspot.com
Miss Diagnosis: Unexplained Weight Gain
http://missdiagnosis-rene.blogspot.com/2012/04/unexplained-weight-gain.html
My life as a mom and as the parent of a child with Cushing's Disease. Sunday, April 15, 2012. In one of my earlier posts I talked about Googling "unexplained weight gain" and learning about Cushing's Syndrome. Today I want to talk a little more about that. Key to your problems? Personally we heard, "maybe your portion control is off", "she is sneaking food", "do you shop at Costco? She wasn't even allowed juice. Costco? Only to be called liars. Do I still have some anger? Hi, I'm Rene. Rene (& Brian, Ale...
missdiagnosis-rene.blogspot.com
Miss Diagnosis: Flying On Faith
http://missdiagnosis-rene.blogspot.com/2012/04/flying-on-faith.html
My life as a mom and as the parent of a child with Cushing's Disease. Tuesday, April 24, 2012. This morning when I called they were able to schedule an appointment for Friday, May 11th. But, they checked with our insurance and found that they can't even initiate. Authorization for the procedure until Alex actually meets, in person, with the doctor. They can'. T make any promises but. Is to try to get authorization as soon as the. Hi, I'm Rene. April 26, 2012 at 3:27 PM. Hi, I'm Rene. Ive actually booked ...
missdiagnosis-rene.blogspot.com
Miss Diagnosis: Korlym
http://missdiagnosis-rene.blogspot.com/2012/04/we-are-nearing-end-makers-of-korlym-are.html
My life as a mom and as the parent of a child with Cushing's Disease. Thursday, April 19, 2012. We are nearing the end! The makers of Korlym are donating $5.00 for ever person who clicks on the link. There is nothing to do but click; they. Make the donation that will support Cushing's awareness. Thank you! Http:/ cushingsawareness.korlym.com/. Hi, I'm Rene. Subscribe to: Post Comments (Atom). Welcome to my blog! Hi, I'm Rene. View my complete profile. The not-so-fabulous life of jessica. Be An Informed P...
missdiagnosis-rene.blogspot.com
Miss Diagnosis: It's Back...
http://missdiagnosis-rene.blogspot.com/2013/02/its-back.html
My life as a mom and as the parent of a child with Cushing's Disease. Thursday, February 7, 2013. We spoke with Dr. Friedman this week and he confirmed what we already knew. Alex is producing cortisol, yet again. She had both a pituitary MRI and an adrenal CT recently and both came back clear. As much as that sounds like good news our Cushie friends know this is not. Without a surgical target nothing can be done. In the meantime we hope the weight gain abates, she tries another round of. Hi, I'm Rene.
missdiagnosis-rene.blogspot.com
Miss Diagnosis: A Thousand Words
http://missdiagnosis-rene.blogspot.com/2012/04/thousand-words.html
My life as a mom and as the parent of a child with Cushing's Disease. Tuesday, April 17, 2012. In lieu of an in depth post today I give you photos. These were taken only 6 months apart, way back when I first asked a doctor to test for Cushing's. Alex's original tests came back negative because she was cyclic. The doctor said "it's just a bad picture". Hi, I'm Rene. Subscribe to: Post Comments (Atom). Welcome to my blog! Hi, I'm Rene. View my complete profile. The not-so-fabulous life of jessica. Be An In...
missdiagnosis-rene.blogspot.com
Miss Diagnosis: The Financial Aspects
http://missdiagnosis-rene.blogspot.com/2012/04/financial-aspects.html
My life as a mom and as the parent of a child with Cushing's Disease. Sunday, April 29, 2012. I know, personally, the monetary impact a chronic illness can have on a family, and I'm reminded time and time again, as I see friends who have no other choice but to declare bankruptcy over medical bills. As if illness isn't enough of a burden on these families the financial strain can be devastating. Deductibles that must be met. In an article from CNN Health. According to a report that will be published in th...