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Read It and Weep | Jen's Journey
https://jensalsjourney.wordpress.com/2010/05/17/read-it-and-weep
A mom living with ALS. May 17, 2010. Read It and Weep. Posted in Medical Updates. At 3:14 pm by jensalsjourney. Well the word is in and my drug trial was a bust. The drug was found to be safe, but ineffective. Oh well, so much for that! On the plus side, that’s six fewer pills I have to take every day, and no more of that drugged out feeling in the afternoon. Still no word on whether I was on the placebo. The news release is here. I’ll be back soon with good news and pictures from the ALS walk.
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The Flip Side | Jen's Journey
https://jensalsjourney.wordpress.com/2010/04/20/the-flip-side
A mom living with ALS. April 20, 2010. Posted in Random Observations. At 3:31 pm by jensalsjourney. I feel like my last post was sort of a downer, so I decided it would only be fair to acknowledge that being sick does have its benefits. Here’s a list of good things about having ALS:. 1 Sit around all day but no one can accuse me of being lazy. 2 Finally have the pretty nails I’ve wanted all my life, as since I barely use my hands my nails don’t break and my polish doesn’t chip. 9 Waited on hand and foot.
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It’s Good to Be the Queen | Jen's Journey
https://jensalsjourney.wordpress.com/2010/06/28/its-good-to-be-the-queen
A mom living with ALS. June 28, 2010. It’s Good to Be the Queen. Posted in Various Reasons ALS Sucks. At 1:35 pm by jensalsjourney. I need to stop thinking of having a total stranger giving me a shower as a humiliating episode and start pretending I’m some sort of ancient queen who has minions attending to my every need. All I can say is thank goodness for the whole referral to hospice episode. 2 Comments ». June 28, 2010 at 10:42 pm. Hey there, Jen! It was so good to read your writing again. I reall...
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Jen's Journey | A mom living with ALS. | Page 2
https://jensalsjourney.wordpress.com/page/2
A mom living with ALS. April 16, 2010. Posted in Various Reasons ALS Sucks. At 6:20 pm by jensalsjourney. So this week I had a visit with my neurologist. I heart him for many reasons, not least of which is that after a year and a half of anxiety and visits with other specialists who had no answers, on my first visit with Dr. K he told me right away what he thought was wrong with me. Granted, it was not the answer I wanted — you know when you’re. But either he’s really,. April 9, 2010. 8220;I know I’ve be...
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I Thank the Lord There’s People Out There Like You | Jen's Journey
https://jensalsjourney.wordpress.com/2010/06/02/i-thank-the-lord-theres-people-out-there-like-you
A mom living with ALS. June 2, 2010. I Thank the Lord There’s People Out There Like You. Posted in ALS Awareness. At 6:44 pm by jensalsjourney. Best of all was coming back to the city I love so much. It was a beautiful day and my family and friends were with me to walk along the Hudson River from the Village to 55th Street. (I couldn’t believe how much the West Side had changed since the bad old 80s! This is my favorite song about New York City. 3 Comments ». June 2, 2010 at 6:48 pm. Welcome to My Journey.
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What’s Up Doc? | Jen's Journey
https://jensalsjourney.wordpress.com/2010/04/24/whats-up-doc
A mom living with ALS. April 24, 2010. What’s Up Doc? Posted in ALS Awareness. At 10:06 pm by jensalsjourney. Here’s a promo video for the Packard Center for ALS Research at Johns Hopkins, featuring my doctor there, Jeffrey Rothstein. 2 Comments ». April 25, 2010 at 6:26 pm. What a wonderful facility and doctor you have – they deserve all of the funding available – they are doing such great work. I am happy that you are in such good, caring and supportive hands. April 25, 2010 at 8:24 pm. Build a website...
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“You’ve got to ask yourself one question: ‘Do I feel lucky?’” | Jen's Journey
https://jensalsjourney.wordpress.com/2010/07/04/“youve-got-to-ask-yourself-one-question-do-i-feel-lucky
A mom living with ALS. July 4, 2010. You’ve got to ask yourself one question: ‘Do I feel lucky? Posted in ALS Awareness. At 2:46 pm by jensalsjourney. July 4, 1939. Fans, for the past two weeks you have been reading about the bad break I got. Yet today I consider myself the luckiest man on the face of this earth. I have been in ballparks for seventeen years and have never received anything but kindness and encouragement from you fans. Also, the builder of baseball’s greatest empire, Ed Barrow? ALS Clinic...
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Beth’s Gift | Jen's Journey
https://jensalsjourney.wordpress.com/2010/09/09/beths-gift
A mom living with ALS. September 9, 2010. Posted in You're the Inspiration. At 9:21 am by jensalsjourney. Please read this amazing article. About a wonderful woman. From our ALS community. 1 Comment ». September 10, 2010 at 8:48 am. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. You are commenting using your Twitter account. ( Log Out. Walk to Defeat ALS.
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Play Ball! | Jen's Journey
https://jensalsjourney.wordpress.com/2010/06/30/play-ball
A mom living with ALS. June 30, 2010. Posted in ALS Awareness. At 10:38 am by jensalsjourney. This July 4th will mark the anniversary of Lou Gehrig’s famous “luckiest man” speech. Amazingly, 71 years later doctors still don’t understand what causes ALS. There is still no cure and no treatment. People, that just blows! Once again this year, Major League Baseball is stepping up to the plate and you can help. Visit this website. What could be more American on Independence Day than baseball? Enter your email...
