siold.ch
Associations de patients - Swiss group for Interstitial and Orphan Lung Diseases
http://www.siold.ch/siold_home/siold-liens/siold-liens-associations-suisses.htm
Swiss group for Interstitial. And Orphan Lung Diseases. Professionels de la santé. Membres du Groupe SIOLD. Articles sur les maladies pulmonaires rares. Professionels de la santé. Maladies rares en général. Associations suisses pour les patients atteints de maladies pulmonaires rares. Ou pouvant avoir une composante pulmonaire rare). Association romande du syndrome de Sjögren ARSYS. Association suisse contre la sarcoïdose AScS. Association STB Suisse (Sclérose Tubéreuse de Bourneville). HTAP France l'ass...
hht-europe.org
HHT Europe Network
http://www.hht-europe.org/addresses.html
HHT CENTER - BUENOS AIRES. Servico de Clinica Medica. Hospital Italiano de Buenos Aires. Coordinador Clinico Unidad de Rendu Osler Weber/ HHT. Gascon 450, CP 1181 CABA Argentina. Contact: Dr. Marcelo Serra. Tel: 54 11 4959-0200 int 8201/8868/5377. Internet: www.hospitalitaliano.org.ar/hht. Patient Support Group: comunicacionhht@gmail.com. HHT CENTER - VICTORIA. Parkville, Victoria 3050  Australia. Tel: 61 (03) 9342 7151. Fax: 61 (03) 9342 4267. HHT CENTER - TORONTO. 30 Bond St., Room 6049. The Institu...
hhtcanada.com
Media | HHT Canada THH
http://hhtcanada.com/media
Menus list Insertion point. Languages list Insertion point. Lighting of the CN Tower on June 27, 2014. CSOHNS 68th Annual Meeting on May 11, 2014. Montreal Information Session Photos on October 1, 2013. HHT Canada THH Launch on June 26, 2013. We invite you to browse our site to learn more about HHT and the care available in Canada. This site contains information for Canadians with HHT, concerned family members and physicians involved in the care of patients with HHT. Asociación HHT España (Spain).
hhtcanada.com
HHT Canada THH Launch on June 26, 2013 | HHT Canada THH
http://hhtcanada.com/2013/06/hht-canada-thh-launch
Menus list Insertion point. Languages list Insertion point. HHT Canada THH Launch on June 26, 2013. June 26, 2013. June is HHT awareness month! The foundation will be reaching out to the media, medical community and general public. Stay tuned for updates! We invite you to browse our site to learn more about HHT and the care available in Canada. This site contains information for Canadians with HHT, concerned family members and physicians involved in the care of patients with HHT.
hhtcanada.com
Clinical Diagnosis Criteria | HHT Canada THH
http://hhtcanada.com/clinical-diagnosis-criteria
Menus list Insertion point. Languages list Insertion point. The established diagnostic criteria for HHT are:. Epistaxis), which are spontaneous and recurrent may be mild or severe. On the skin or mucous membranes(mucocutaneous). Telangiectases are small red spots that blanch under pressure, located at characteristic sites, including the lips, oral cavity, fingers, and nose. Visceral arteriovenous malformations (AVMs). Brother, sister, parent or child) with HHT, based on these diagnostic criteria.
hhtcanada.com
Information | HHT Canada THH
http://hhtcanada.com/information
Menus list Insertion point. Languages list Insertion point. The location of telangiectases and /or AVMs in the body determines what problem(s) someone with HHT might have. In most locations, and at any size, a telangiectasia or AVM has a greater… Learn More. There are several tests available for everyone who is known or suspected to have HHT. Since lung and brain AVMs can cause serious damage without warning, and they can be successfully… Learn More. Asociación HHT España (Spain).
favamulti.fr
Les associations de patients – FAVA-Multi | Filière santé maladies rares
http://www.favamulti.fr/qui/acteurs-de-la-filiere/associations-de-patients
FAVA-Multi Filière santé maladies rares. Maladies Vasculaires Rares avec atteinte Multisystémique. Pas encore de compte. Membres de la filière FAVA-Multi, connectez-vous à votre espace personnel pour accéder à des ressources supplémentaires. Passer vers le contenu. Les acteurs de la filière. Les centres de référence. Les centres de compétences. Les associations de patients. Les laboratoires de diagnostic approfondi. Les laboratoires de recherche. VASCERN, le réseau européen des maladies vasculaires rares.
respifil.fr
Les associations de patients - RespiFil
http://www.respifil.fr/index.php/la-filiere-respifil/composition/les-associations-de-patients
RespiFIL : qui sommes-nous? Les centres de référence. Les centres de compétences. Les associations de patients. Les associations de patients. Service d'aide aux patients. Education thérapeutique du patient (ETP). Les acteurs : les associations de patients. Association reconnue d’utilité publique qui regroupe plus de 200 associations de patients. Association de Défense et d’Entraide des Personnes Handicapées. Maladies Rares Info Services. Association pour les maladies respiratoires rares de l’enfant.
hhtcanada.com
HHT International 2014 Patient & Family National Conference on July 18-20, 2014 | HHT Canada THH
http://hhtcanada.com/2014/05/hht-international-2014-patient-family-national-conference-on-july-18-20-2014
Menus list Insertion point. Languages list Insertion point. HHT International 2014 Patient & Family National Conference on July 18-20, 2014. May 18, 2014. Takes place July 18-20 in Santa Carla, California. Visit the event page. We invite you to browse our site to learn more about HHT and the care available in Canada. This site contains information for Canadians with HHT, concerned family members and physicians involved in the care of patients with HHT. Asociación HHT España (Spain).
hhtcanada.com
Lighting of the CN Tower on June 27, 2013 | HHT Canada THH
http://hhtcanada.com/2013/06/lighting-of-the-cn-tower
Menus list Insertion point. Languages list Insertion point. Lighting of the CN Tower on June 27, 2013. June 27, 2013. In recognition of HHT awareness, Toronto’s CN Tower will be illuminated blue and red on June 27th, 2013. As it does each night, the CN Tower light show on June 27 will run for eight minutes at the top of every hour between 4 and 12 midnight. Asociación HHT España (Spain).
