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Back story | You Don't Say
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You Don't Say. Angelman Syndrome, AAC and everything in between. Skip to primary content. Skip to secondary content. About “You Don’t Say”. Because everyone has a story. NOW WE ARE TALKING. All about a horse. AAC and AS links. HERE’S MY CARD. Category Archives: Back story. Have dog, will travel. July 30, 2015. As soon as the words came out of my mouth, I knew I was doomed. This was so disrespectful! All about a horse. Princess and the pee. December 6, 2014. One of our favorite reads! She’s no angel.
meetthefamiliesofas.blogspot.com
Meet the Families of AS (Angelman Syndrome): Florida Angelman Family Fundraiser for FAST
http://meetthefamiliesofas.blogspot.com/2011/11/florida-angelman-families-fundraiser.html
Meet the Families of AS (Angelman Syndrome). Monday, November 28, 2011. Florida Angelman Family Fundraiser for FAST. Angelman Families get together for a lunch and social fundraiser for F.A.S.T at. BJ's Brewery and Restaurant in Tampa, Florida. On Saturday November 5th many Florida Angelman families came together for a great cause and to hear from Dr. Weeber. The adorable Angels ranged in ages from 3-21. I was laughing and crying with joy as I watched the ceremony online. Click to view: http:/ www.cu...
meetthefamiliesofas.blogspot.com
Meet the Families of AS (Angelman Syndrome): August 2012
http://meetthefamiliesofas.blogspot.com/2012_08_01_archive.html
Meet the Families of AS (Angelman Syndrome). Thursday, August 2, 2012. The Charlie Foundation - To Help Cure Pediatric Epilepsy. As a resource. So I looked them up and gave them a call. I discovered the amazing things they are doing so I had to share with you. As a fellow parent to a child with epilepsy, I wondered how Jim and Nancy could find the time and inspiration to start a foundation. Jim said "It all sort of started with a video they created to help raise awareness about the ketogenic diet and...
meetthefamiliesofas.blogspot.com
Meet the Families of AS (Angelman Syndrome): November 2012
http://meetthefamiliesofas.blogspot.com/2012_11_01_archive.html
Meet the Families of AS (Angelman Syndrome). Tuesday, November 27, 2012. Anticipating the FAST Gala 2012! It's almost here, The 2012 Foundation for Angelman Syndrome Therapeutics Gala! This much anticipated event, which we began immediate countdown after the 2011 Gala ended, will soon be here! Drinks and great conversation 'til 3am with people who "get it" meant the world to me! Many thanks to the team at FAST made up of volunteers, and most are also parents of children with Angelman Sydrome. My son Nath...
meetthefamiliesofas.blogspot.com
Meet the Families of AS (Angelman Syndrome): November 2011
http://meetthefamiliesofas.blogspot.com/2011_11_01_archive.html
Meet the Families of AS (Angelman Syndrome). Monday, November 28, 2011. Florida Angelman Family Fundraiser for FAST. Angelman Families get together for a lunch and social fundraiser for F.A.S.T at. BJ's Brewery and Restaurant in Tampa, Florida. On Saturday November 5th many Florida Angelman families came together for a great cause and to hear from Dr. Weeber. The adorable Angels ranged in ages from 3-21. I was laughing and crying with joy as I watched the ceremony online. Click to view: http:/ www.cu...
meetthefamiliesofas.blogspot.com
Meet the Families of AS (Angelman Syndrome): 90% Improvement in Seizures, My interview with Dr. Ron Thibert!
http://meetthefamiliesofas.blogspot.com/2012/12/90-improvement-in-seizures-my-interview.html
Meet the Families of AS (Angelman Syndrome). Sunday, December 30, 2012. 90% Improvement in Seizures, My interview with Dr. Ron Thibert! I recently had the opportunity to catch up with the Angelman communities very own trusted Neurologists Dr. Ron Thibert! Angelman Syndrome is so rare and when it comes to their brain and seizures, our kids need the best! They need someone who has experience to draw from when deciding the best treatments and medications. Dr Thibert and his team including Dr. Elizabeth ...
meetthefamiliesofas.blogspot.com
Meet the Families of AS (Angelman Syndrome): Anticipating the FAST Gala 2012!
http://meetthefamiliesofas.blogspot.com/2012/11/anticipating-fast-gala-2012.html
Meet the Families of AS (Angelman Syndrome). Tuesday, November 27, 2012. Anticipating the FAST Gala 2012! It's almost here, The 2012 Foundation for Angelman Syndrome Therapeutics Gala! This much anticipated event, which we began immediate countdown after the 2011 Gala ended, will soon be here! Drinks and great conversation 'til 3am with people who "get it" meant the world to me! Many thanks to the team at FAST made up of volunteers, and most are also parents of children with Angelman Sydrome. My son Nath...
meetthefamiliesofas.blogspot.com
Meet the Families of AS (Angelman Syndrome): December 2012
http://meetthefamiliesofas.blogspot.com/2012_12_01_archive.html
Meet the Families of AS (Angelman Syndrome). Sunday, December 30, 2012. 90% Improvement in Seizures, My interview with Dr. Ron Thibert! I recently had the opportunity to catch up with the Angelman communities very own trusted Neurologists Dr. Ron Thibert! Angelman Syndrome is so rare and when it comes to their brain and seizures, our kids need the best! They need someone who has experience to draw from when deciding the best treatments and medications. Dr Thibert and his team including Dr. Elizabeth ...
meetthefamiliesofas.blogspot.com
Meet the Families of AS (Angelman Syndrome): October 2011
http://meetthefamiliesofas.blogspot.com/2011_10_01_archive.html
Meet the Families of AS (Angelman Syndrome). Tuesday, October 25, 2011. Nutritional Therapy" - Carters' Story. I would like to share the story of another AS family that began using "Nutritional Therapies" to help their adorable little boy name Carter. This message is being shared by Carters' Mom Nealie Prewitt. Carter was diagnosed with Angelman Syndrome before he was 1 year old. I. The benefits of him not having Dairy and Gluten far out way how things taste and feel in the moment! Carter now understands...
meetthefamiliesofas.blogspot.com
Meet the Families of AS (Angelman Syndrome): January 2012
http://meetthefamiliesofas.blogspot.com/2012_01_01_archive.html
Meet the Families of AS (Angelman Syndrome). Saturday, January 14, 2012. We are pleased to introduce Angel Collin Preston! Meanwhile, I was having a terrible time nursing Collin. I was hell-bent on nursing and believed that was the most precious gift I could provide my son. He nursed so nicely (although ineffectively) in the hospital, and although you hear horror stories about breastfeeding, I really thought we had the hang of it. Ha! On top of all this, but not surprising, Collin had lost so much weight...
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