chargesyndrome.blogspot.com
The Adventures of Kennedy: December 2012
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Chronicling the adventures of one amazing, funny, sweet, outrageous young lady, who happens to have CHARGE syndrome! Friday, December 7, 2012. Kennedy with her "Scenes" group from HVHS, performing in Footloose! First stage performance of high school.we were super proud. Best part? She had a BALL! Posted by Lisa and Kennedy. Subscribe to: Posts (Atom). A welcome message from a young Kennedy circa 2006! Click to support Team Kennedy! What is CHARGE Syndrome? 12th International CHARGE Syndrome Conference.
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The Adventures of Kennedy: May 2014
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Chronicling the adventures of one amazing, funny, sweet, outrageous young lady, who happens to have CHARGE syndrome! Thursday, May 29, 2014. HVHS Chorale Ensemble Spring Concert. Tonight was the spring concert - Kennedy is on the far right of the front row in each of the three videos. Changamano (Join Together) by Sally K. Albrecht. Dona Nobis Pacem (Traditional). Some Nights by Fun. Posted by Lisa and Kennedy. Wednesday, May 28, 2014. My beauty surrounded by the Grand Canyon. She once again worked extre...
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The Adventures of Kennedy: CHARGE Through The Year 2015 Calendar
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Chronicling the adventures of one amazing, funny, sweet, outrageous young lady, who happens to have CHARGE syndrome! Monday, August 18, 2014. CHARGE Through The Year 2015 Calendar. One of the phenomenal moms I have met through the online CHARGE syndrome world, Anna Miller, has put together the 2nd CHARGE Through The Year calendar. For 2015. This was a sell-out fundraiser and awareness raiser for CHARGE syndrome and the CHARGE Syndrome Foundation. Last year and promises to be another huge success this year.
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The Adventures of Kennedy: Guys and Dolls - Fall Production at HVHS
http://chargesyndrome.blogspot.com/2014/10/guys-and-dolls-fall-production-at-hvhs.html
Chronicling the adventures of one amazing, funny, sweet, outrageous young lady, who happens to have CHARGE syndrome! Wednesday, October 8, 2014. Guys and Dolls - Fall Production at HVHS. Most nights she (and we) will be at school until about 11pm. It's so wonderful seeing her participate and enjoy this experience though! Here are some shots of the scenes my New York "doll"is in from the tech dress rehearsal (she's in a grey dress with black hat). You can click on the picture to enlarge it. Guys and Dolls...
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The Adventures of Kennedy: Pies & Ice - the IceBucket Challenge with a CHARGE Twist
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Chronicling the adventures of one amazing, funny, sweet, outrageous young lady, who happens to have CHARGE syndrome! Saturday, August 23, 2014. Pies and Ice - the IceBucket Challenge with a CHARGE Twist. Check out this video where I take a pie in the face for every surgery Kennedy has ever had for CHARGE awareness and then an ice bucket for ALS! Click on this Post. Visit chargesyndrome.org to learn more and/or donate to support the CHARGE Syndrome Foundation! Posted by Lisa and Kennedy. Mom on a Mission.
chargesyndrome.blogspot.com
The Adventures of Kennedy: December 2011
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Chronicling the adventures of one amazing, funny, sweet, outrageous young lady, who happens to have CHARGE syndrome! Thursday, December 22, 2011. EMNS Middle School Sign Language Club Holiday Concert Performance. Kennedy with her Sign Language Club, performing "Mary's Boy Child".you'll notice she's the one to give a big bow, wave to the crowd and make a 'heart hand' to them. No shyness here. ). For those of you not on facebook, here is the link to the youtube video:. Posted by Lisa and Kennedy.
chargesyndrome.blogspot.com
The Adventures of Kennedy: November 2011
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Chronicling the adventures of one amazing, funny, sweet, outrageous young lady, who happens to have CHARGE syndrome! Monday, November 28, 2011. Empty Stocking Fund 2011. PS - it does zoom in after a bit so you can actually see her better! Posted by Lisa and Kennedy. Thursday, November 17, 2011. Kennedy Channeling Sally Brown. Not that we haven't been doing too much, I have just been doing too much, that's the problem. Kennedy's monologue is a classic piece from The Great Pumpkin. You blockhead. What ...
chargesyndrome.blogspot.com
The Adventures of Kennedy: October 2014
http://chargesyndrome.blogspot.com/2014_10_01_archive.html
Chronicling the adventures of one amazing, funny, sweet, outrageous young lady, who happens to have CHARGE syndrome! Wednesday, October 8, 2014. Guys and Dolls - Fall Production at HVHS. Most nights she (and we) will be at school until about 11pm. It's so wonderful seeing her participate and enjoy this experience though! Here are some shots of the scenes my New York "doll"is in from the tech dress rehearsal (she's in a grey dress with black hat). You can click on the picture to enlarge it. Guys and Dolls...
chargesyndrome.blogspot.com
The Adventures of Kennedy: Segregation and Discrimination - Alive and Well in St. Augustine, Florida
http://chargesyndrome.blogspot.com/2015/02/segregation-and-discrimination-alive.html
Chronicling the adventures of one amazing, funny, sweet, outrageous young lady, who happens to have CHARGE syndrome! Wednesday, February 11, 2015. Segregation and Discrimination - Alive and Well in St. Augustine, Florida. Please take a minute to watch this newscast:. Http:/ www.wsbtv.com/news/news/national/mother-says-girl-scouts-discriminated-against-her-/nj8hg/. Um er newsflash: that's not. Inclusion. Merriam Webster. Defines inclusion as: the act of including. The state of being included. Maybe there ...
chargesyndrome.blogspot.com
The Adventures of Kennedy: May 2012
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Chronicling the adventures of one amazing, funny, sweet, outrageous young lady, who happens to have CHARGE syndrome! Sunday, May 27, 2012. The first weekend Krissy arrived, the trampoline went up and the jumping began! Oh and cat-grooming on the trampoline as well, a chore that the two Ks do together). Summer chat together on the wharf at Hatfield Point. She is very eager to be the best VIKING she can be. Another year of cheerleading has finished - she actually won all-star at one of the competitions!
