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Welcome to ARM-NET,. ARM is the abbreviation for Ano-Rectal Malformations. Anorectal malformations are congenital malformations caused by embryonic aberration of the uro-rectal septum. These types of malformations occur in approximately 1: 2500 births. The ARM-NET Consortium is a group of professionals that aim to exchange data and knowledge. To improve clinical care and. Current members of the ARM-NET Consortium are clinicians, epidemiologists, geneticists and patient organizations involved in (research...

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Welcome to ARM-NET,. ARM is the abbreviation for Ano-Rectal Malformations. Anorectal malformations are congenital malformations caused by embryonic aberration of the uro-rectal septum. These types of malformations occur in approximately 1: 2500 births. The ARM-NET Consortium is a group of professionals that aim to exchange data and knowledge. To improve clinical care and. Current members of the ARM-NET Consortium are clinicians, epidemiologists, geneticists and patient organizations involved in (research...

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6 arm net history

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https://arm-net.eu

Welcome to ARM-NET,. ARM is the abbreviation for Ano-Rectal Malformations. Anorectal malformations are congenital malformations caused by embryonic aberration of the uro-rectal septum. These types of malformations occur in approximately 1: 2500 births. The ARM-NET Consortium is a group of professionals that aim to exchange data and knowledge. To improve clinical care and. Current members of the ARM-NET Consortium are clinicians, epidemiologists, geneticists and patient organizations involved in (research...

INTERNAL PAGES

arm-net.eu

1

Publications

http://arm-net.eu/index.php/publications

Schmiedeke E, de Blaauw I, Lacher M, Grasshoff-Derr S, Garcia-Vazquez A, Giuliani S, Midrio P, Gamba P, Iacobelli B, Bagolan P, Brisighelli G, Leva E, Cretolle C, Sarnacki S, Broens P, Sloots C, van Rooij I, Schwarzer N, Aminoff D, Haanen M, Jenetzky E. Towards the perfect ARM center: the European Union's criteria for centers of expertise and their implementation in the member states. A report from the ARM-Net. Pediatr Surg Int. 2015 Jul 26. [Epub ahead of print]. Van de Putte R, Wijers CHW, de Blaauw I,...

2

Links

http://arm-net.eu/index.php/links

SOMA e.V. (Germany): http:/ www.soma-ev.de/. AIMAR (Italy): http:/ www.aimar.eu/public/. Vereniging Anusatresie (The Netherlands): http:/ www.anusatresie.nl/. Cure-Net: http:/ www.cure-net.de. AGORA: http:/ www.agoraproject.nl. Orpha-Net: http:/www.orpha.net. Eurordis: http:/ www.eurordis.org.

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Home

http://arm-net.eu/index.php/home

Welcome to ARM-NET,. ARM is the abbreviation for Ano-Rectal Malformations. Anorectal malformations are congenital malformations caused by embryonic aberration of the uro-rectal septum. These types of malformations occur in approximately 1: 2500 births. The ARM-NET Consortium is a group of professionals that aim to exchange data and knowledge. To improve clinical care and. Current members of the ARM-NET Consortium are clinicians, epidemiologists, geneticists and patient organizations involved in (research...

4

Meetings

http://arm-net.eu/index.php/meetings

Padua, Italy (July 2010). Bonn, Germany (October 2010). Ankara, Turkey (June 2011). Heidelberg, Germany (October 2011). Rotterdam, the Netherlands (January 2012). Rome, Italy (June 2012). Würzburg, Germany (November 2012). Frankfurt, Germany (June 2013). Nijmegen, the Netherlands (November 2013). Dublin, Ireland (June 2014). Milan, Italy (June 2015). Nijmegen, the Netherlands (November 2015). Prague, Czech Republic (June 2016). Paris, France (November 2016).

5

Projects

http://arm-net.eu/index.php/projects

Interested institutions can apply for participation. Every participant has complete access to their own patients, only the database administrator has access to all patients. Prior to collaborative analyses an agreement must be made. The data are stored ciphered way in the database. The importance of a long-term multidisciplinary follow-up, including specialists from adults care and psychological support, is also stressed and schemes of care are provided. A genome-wide association study (GWAS) in nonsyndr...

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paediatricsurgeonlondon.net

Paediatric Surgeon London | About the doctor

http://www.paediatricsurgeonlondon.net/about-the-doctor

Consultant Neonatal, Paediatric and Adolescent Surgeon. FRCS (Eng), MD (Ita), MD (USA), PhD. Mr Giuliani is a substantive Consultant Paediatric Surgeon at St.George s Healthcare NHS Trust and Honorary Senior Lecturer at St.George s University of London. He also obtained the United States Medical Licence (USMLE) and he worked for 4 years at the University of Southern California (USC). Mr Giuliani has been living and working in London since 2010. He is focusing on advancing the field of paediatric surg...

agoraproject.nl

Resultaten onderzoek

http://www.agoraproject.nl/index.php/medewerkers/resultaten-onderzoek

Wat houdt deelname in. Wat gebeurt er met uw gegevens. Procedures op de werkvloer. Voor wetenschappelijk onderzoek naar een bepaalde aandoening is meestal een groot aantal patiënten nodig. Voor veel aandoeningen zijn we nog in de opbouw van het verzamelen van grote aantallen, dus elke deelname is van belang. Naar een aantal aandoeningen wordt op dit moment al onderzoek gedaan, namelijk naar:. Hypospadie (niet goed aangelegde plasbuis). Schisis (gespleten lip / gehemelte). Hypospadie wordt vaker gevonden ...

agoraproject.nl

Resultaten onderzoek

http://www.agoraproject.nl/index.php/deelnemers/resultaten-onderzoek

Wat houdt deelname in. Wat gebeurt er met uw gegevens. Procedures op de werkvloer. Voor wetenschappelijk onderzoek naar een bepaalde aandoening is meestal een groot aantal patiënten nodig. Voor veel aandoeningen zijn we nog in de opbouw van het verzamelen van grote aantallen, dus elke deelname is van belang. Naar een aantal aandoeningen wordt op dit moment al onderzoek gedaan, namelijk naar:. Hypospadie (niet goed aangelegde plasbuis). Schisis (gespleten lip / gehemelte). Hypospadie wordt vaker gevonden ...

agoraproject.nl

Links

http://www.agoraproject.nl/index.php/links

Wat houdt deelname in. Wat gebeurt er met uw gegevens. Procedures op de werkvloer. Radboud universitair medisch centrum:. Http:/ www.radboudumc.nl. Http:/ www.amaliakinderziekenhuis.nl/. Https:/ www.radboudumc.nl/Zorg/Afdelingen/Kinderurologie. Https:/ www.radboudumc.nl/Zorg/Afdelingen/Kinderchirurgie. Https:/ www.radboudumc.nl/Zorg/Afdelingen/kinderhemato-oncologie. Https:/ www.radboudumc.nl/Zorg/Afdelingen/kindernefrologie. Https:/ www.radboudumc.nl/Zorg/Afdelingen/neonatologie.

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Welcome to ARM-NET,. ARM is the abbreviation for Ano-Rectal Malformations. Anorectal malformations are congenital malformations caused by embryonic aberration of the uro-rectal septum. These types of malformations occur in approximately 1: 2500 births. The ARM-NET Consortium is a group of professionals that aim to exchange data and knowledge. To improve clinical care and. Current members of the ARM-NET Consortium are clinicians, epidemiologists, geneticists and patient organizations involved in (research...

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