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ASAP » American Syringomyelia & Chiari Alliance Project

Speakers confirmed for the ASAP Chiari & Syringomyelia Conference to be held at the Gaylord Resort in Orlando, Florida July 25-28. Clicking on the name will

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CONTACTS AT ASAP.ORG

American Syringomyelia Alliance Project

Michael Scarpone

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Lon●●●iew , TX, 75606-1586

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American Syringomyelia Alliance Project, Inc.

Ryan Patterson

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Lon●●●iew , TX, 75606-1586

US

1.90●●●●7079
1.90●●●●7456
cg●●●●●●●●@cgamesplay.com

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American Syringomyelia Alliance Project, Inc.

Ryan Patterson

PO B●●●●1586

Lon●●●iew , TX, 75606-1586

US

1.90●●●●7079
1.90●●●●7456
cg●●●●●●●●@cgamesplay.com

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ASAP » American Syringomyelia & Chiari Alliance Project | asap.org Reviews

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Speakers confirmed for the ASAP Chiari & Syringomyelia Conference to be held at the Gaylord Resort in Orlando, Florida July 25-28. Clicking on the name will

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Store | ASAP » American Syringomyelia & Chiari Alliance Project

http://asap.org/index.php/store

Charges are calculated based on the total of your merchandise charges. 20 - add $5.00. 21-$50 - add $8.00. 81-$110 - add $12.00. Over $110 - add $14.00. Kids For A Cure Club. Register Your Support Group. Marcy Speer Research Memorial Fund. ASAP’s L.E.A.R.N! Together We Can Walk & Roll. More Ways To Help. 2013 American Syringomyelia and Chiari Alliance Project.

2

Together We Can Walk & Roll | ASAP » American Syringomyelia & Chiari Alliance Project

http://asap.org/index.php/get-involved/together-we-can-walk-roll

Great Expectations - Together We Can Walk & Roll. To your local community about Chiari and syringomyelia by holding an awareness event or a walk-a-thon or join one of these. Join ASAP in bringing national awareness for Chiari and syringomyelia in 2017 by hosting a Syringo-my-What? Steps Across the States. Or Together We Can Walk & Roll for a Cure. Or Kicks & Licks Tied Together for One Cause. Walk Contact Patrice Schaublin 585-747-9651 or Patrice Schaublin@ASAP.org. Date: Saturday, April 22, 2017. If you...

3

ASAP’s L.E.A.R.N! Points Program | ASAP » American Syringomyelia & Chiari Alliance Project

http://asap.org/index.php/get-involved/asaps-l-e-a-r-n-points-program

Great Expectations - ASAP’s L.E.A.R.N! Leadership, Education, Awareness, Research, Now! Always seeking to remain true to our mission statement, To improve the lives of persons affected by syringomyelia, Chiari malformation and related disorders while we find the cure , ASAP is pleased to announce the introduction of:. Leadership, Education, Awareness, Research, Now! We are pleased to invite you to participate in this program, and urge you join us in our mission. ASAP’s L.E.A.R.N! Rules Of The Program.

4

www.ASAP.org • Index page

http://asap.org/forum

Providing Research, Education and Support for Chiari Malformation and Syringomyelia. It is currently Thu Apr 06, 2017 4:18 am. All About Chiari, Syringomyelia, and Related Disorders. Have a question about a symptom, procedure, medication, diagnosis, research, or coping? Ask questions and share what you know with others. Wed Feb 08, 2017 11:12 am. Sun Mar 12, 2017 4:20 am. Have a child with SM/Chiari? Share issues unique to children and their caregivers. Tue Jan 12, 2016 3:11 pm. Share Your Success Story!

5

Chiari Malformation | ASAP » American Syringomyelia & Chiari Alliance Project

http://asap.org/index.php/disorders/chiari-malformation

Conditions - Chiari Malformation. Audio clip: Adobe Flash Player (version 9 or above) is required to play this audio clip. Download the latest version here. You also need to have JavaScript enabled in your browser. In normal anatomy, the cerebellar tonsils are located just above this. Line called the foramen magnum. But in an individual with Chiari, the tonsils hang below the line (herniate) into the spinal canal. The degree to which the tonsils extend can vary tremendously. Visual problems such as nysta...

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sheilaschiarijourney.blogspot.com sheilaschiarijourney.blogspot.com

Sheilas Chiari Journey: 1/25/09 - 2/1/09

http://sheilaschiarijourney.blogspot.com/2009_01_25_archive.html

Virginia Beach, Virginia, United States. Wellcome to my journey into discovering all I can about my disorders and try to bring awareness and maybe share a laugh with someone and let them know that they too will never have to travel this road alone. View my complete profile. Many images of suffering and healing. Wednesday, January 28, 2009. Public Announcement for Chiari and the people who love and take care of them for thier Doctors too. From sheilas family and stuff. Subscribe to: Posts (Atom). Namitha ...

sheilaschiarijourney.blogspot.com sheilaschiarijourney.blogspot.com

Sheilas Chiari Journey: 8/31/08 - 9/7/08

http://sheilaschiarijourney.blogspot.com/2008_08_31_archive.html

Virginia Beach, Virginia, United States. Wellcome to my journey into discovering all I can about my disorders and try to bring awareness and maybe share a laugh with someone and let them know that they too will never have to travel this road alone. View my complete profile. Many images of suffering and healing. Friday, September 5, 2008. When chronicily ill you have to laugh when. Let's face it. . . chronic illness can have its humorous moments if we look for them. You know you have a chronic illness when.

loloschiari.blogspot.com loloschiari.blogspot.com

lolo's chiari blog: January 2009

http://loloschiari.blogspot.com/2009_01_01_archive.html

Sunday, January 11, 2009. We have been packing when and what we can. We will be moving to my moms the end of Feb. Surgery is 2 weeks after that. Michael got a nice raise at work.We feel very blessed by that because so many are lossing their jobs. Going to my moms isn't the ideal situation but we also feel blessed there because so many are lossing their homes and have no where to go.This move is going to allow all of us to pay off some credit cards and in the end save some money. I hope everyone is well.

littlebrothermax.blogspot.com littlebrothermax.blogspot.com

Little brother Max: April 2007

http://littlebrothermax.blogspot.com/2007_04_01_archive.html

Sunday, April 29, 2007. We're on our way. Home sweet home! Our two beautiful sleeping sweetie pies on the ride home. So sorry we haven't posted in a while but we have been busy enjoying our lives and our great children. Max has also had a few doctors appointments and it is expected he will have the surgery for his palate in about a month. We will know more about his surgery and the evaluations by the specialists soon. Frank playing with Max again. Max absolutely loves Frank and smiles at him often. Dan, ...

bobbyjonesopen.com bobbyjonesopen.com

Bobby Jones Open

http://www.bobbyjonesopen.com/OldSites.html

American Syringomyelia Alliance Project. The 2013 Bobby Jones Open. The 35th annual Bobby Jones Open was held at the Inn at Pocono Manor June 24-26, 2013. Bugs was our host Bob. The 2012 Bobby Jones Open. The 34th annual Bobby Jones Open was held in Grand Rapids, Michign June 11-13, 2012. We played the Thousand Oaks Golf Club. And stayed at the Amway Grand Plaza Hotel. Look for coverage on the Golf Channel on July 16, 2012! Thanks to Arjay and Diane for hosting! The 2010 Bobby Jones Open.

myleegrace.com myleegrace.com

Butterfly princess

http://www.myleegrace.com/Butterfly_princess.html

Mylee always stumped the medical community. For the longest time her doctors would joke she would be. Written in medical journals as having "Mylee syndrome"! All jokes aside, her brain started to deteriorate in December of 2009. I will never forget the words her neurologist used, Mylee ha s a neurodegenerative progressive disease. Years she frequently spent time in and out. Of the hospital and worked with therapists each week to improve her different abilities. Click on the image below to learn how you c...

chiarilifeline.blogspot.com chiarilifeline.blogspot.com

Chiari Lifeline: Testing For Chiari: (by TCI)

http://chiarilifeline.blogspot.com/2008/01/tci-treatments.html

Created as a source of support to those whose lives are affected by Chiari Malformation, Ehlers-Danlos Syndrome, Tethered Cord Syndrome, Syringomyelia and other related disorders. Welcome To Chiari Lifeline.". M affects about 1 in 1,000 people and this number continues to grow. Still many are left suffering and go years without a proper diagnosis as many doctors are yet unfamiliar with this condition. F you or a loved one is affected by Chiari please visit the links provided below. Together, we. This tes...

123chiari.blogspot.com 123chiari.blogspot.com

It Is Well With My Soul... A Life Journey of Living Out James 1:2-3: Chiari Malformation

http://123chiari.blogspot.com/p/chiari.html

It Is Well With My Soul. A Life Journey of Living Out James 1:2-3. Consider it pure joy, my brothers and sisters, when you face trials of many kinds, because you know that the testing of your faith develops perseverance." James 1:2-3. Learn About my Conditions. Like My Page On Facebook. Visit My Caring Bridge Profile. Ust 19, 2013. I have been known for living the "123 Chiari Journey", the "123" being from James 1:2-3. Want to know more about Chiari Malformation? Go to these links:.

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