alittlemageinthefamily.blogspot.com
DEIRDRE MEDINA's DIARY: A LITTLE MAGE in the FAMILY: What will never be
http://alittlemageinthefamily.blogspot.com/2015/03/what-will-never-be.html
DEIRDRE MEDINA's DIARY: A LITTLE MAGE in the FAMILY. In loving memory of a 5 year old diva with Spinal Muscular Atrophy Type 1 who changed our lives forever. Tuesday, March 17, 2015. What will never be. How I miss you, Dee. You made life so much better. How sad is each day. You were my sunflower field. You were my inspiration. and my hero. I miss you. Subscribe to: Post Comments (Atom). Diagnosed with SMA type 1 in January 2008. SMA is a GENETIC, fatal illness, the # 1 killer of babies. My 5th B-Day 2012.
sophiascurefoundation.org
Get Every SMA Kid an iPad | Sophia's Cure Foundation
http://www.sophiascurefoundation.org/get-involved-blog/get-every-sma-kid-an-ipad
You are here: Home. Get Every SMA Kid an iPad. Get Every SMA Kid an iPad. February 2, 2011. We are launching an incredible, amazing, spectacular campaign! Get every SMA KID an Ipad! We have all seen how amazing Ipad’s are for our SMA Kids. Here is how it works anyone who sells anything on ebay. Can choose what portion of the proceeds go to our EBAY Store Sophia’s Cure Foundation. Let’s all do a Virtual Garage sale and get rid of some clutter in our lives! Filed Under: Get Involved. Hola, primero queria f...
alifeforkaitlyn.blogspot.com
Kaitlyn Hatchard (Spinal Muscular Atrophy-Type 1): Home for Christmas 2010!
http://alifeforkaitlyn.blogspot.com/2011/01/home-for-christmas-2010.html
Kaitlyn Hatchard (Spinal Muscular Atrophy-Type 1). Hello and welcome. My name is Kaitlyn Anne and I have Spinal Muscular Atrophy Type 1. Children born with SMA 1 gradually lose strength in their nervous systems and die, usually by the age of two. There is no known cure or long-term treatment. SMA not only affects the muscles that help me move, but it also affects those that allow me to breathe, swallow and clear my airway. Friday, January 7, 2011. Home for Christmas 2010! Just in time for Christmas!
alifeforkaitlyn.blogspot.com
Kaitlyn Hatchard (Spinal Muscular Atrophy-Type 1): Happy Mother's Day
http://alifeforkaitlyn.blogspot.com/2011/05/happy-mothers-day.html
Kaitlyn Hatchard (Spinal Muscular Atrophy-Type 1). Hello and welcome. My name is Kaitlyn Anne and I have Spinal Muscular Atrophy Type 1. Children born with SMA 1 gradually lose strength in their nervous systems and die, usually by the age of two. There is no known cure or long-term treatment. SMA not only affects the muscles that help me move, but it also affects those that allow me to breathe, swallow and clear my airway. Monday, May 9, 2011. Our doctors felt that the scans wouldn't be much help? I'm no...
alifeforkaitlyn.blogspot.com
Kaitlyn Hatchard (Spinal Muscular Atrophy-Type 1): Feeding Intolerance or Bacterial Overgrowth in the Small Bowel ???
http://alifeforkaitlyn.blogspot.com/2010/11/feeding-intolerance-or-bacterial.html
Kaitlyn Hatchard (Spinal Muscular Atrophy-Type 1). Hello and welcome. My name is Kaitlyn Anne and I have Spinal Muscular Atrophy Type 1. Children born with SMA 1 gradually lose strength in their nervous systems and die, usually by the age of two. There is no known cure or long-term treatment. SMA not only affects the muscles that help me move, but it also affects those that allow me to breathe, swallow and clear my airway. Sunday, November 21, 2010. Kaitlyn had a few days before we started treating for b...
alifeforkaitlyn.blogspot.com
Kaitlyn Hatchard (Spinal Muscular Atrophy-Type 1): November 2011
http://alifeforkaitlyn.blogspot.com/2011_11_01_archive.html
Kaitlyn Hatchard (Spinal Muscular Atrophy-Type 1). Hello and welcome. My name is Kaitlyn Anne and I have Spinal Muscular Atrophy Type 1. Children born with SMA 1 gradually lose strength in their nervous systems and die, usually by the age of two. There is no known cure or long-term treatment. SMA not only affects the muscles that help me move, but it also affects those that allow me to breathe, swallow and clear my airway. Monday, November 21, 2011. Oh my dear.what has it been? Where did we leave off?
alifeforkaitlyn.blogspot.com
Kaitlyn Hatchard (Spinal Muscular Atrophy-Type 1): January 2010
http://alifeforkaitlyn.blogspot.com/2010_01_01_archive.html
Kaitlyn Hatchard (Spinal Muscular Atrophy-Type 1). Hello and welcome. My name is Kaitlyn Anne and I have Spinal Muscular Atrophy Type 1. Children born with SMA 1 gradually lose strength in their nervous systems and die, usually by the age of two. There is no known cure or long-term treatment. SMA not only affects the muscles that help me move, but it also affects those that allow me to breathe, swallow and clear my airway. Monday, January 25, 2010. Help Kaitlyn Get Her Wheels! As Kaitlyn's condition is d...
alifeforkaitlyn.blogspot.com
Kaitlyn Hatchard (Spinal Muscular Atrophy-Type 1): March 2011
http://alifeforkaitlyn.blogspot.com/2011_03_01_archive.html
Kaitlyn Hatchard (Spinal Muscular Atrophy-Type 1). Hello and welcome. My name is Kaitlyn Anne and I have Spinal Muscular Atrophy Type 1. Children born with SMA 1 gradually lose strength in their nervous systems and die, usually by the age of two. There is no known cure or long-term treatment. SMA not only affects the muscles that help me move, but it also affects those that allow me to breathe, swallow and clear my airway. Thursday, March 24, 2011. It was so good of her to see us! If her hypercalcemia is...
asonginthisworld.blogspot.com
Spinal Muscular Atrophy Canada: January 2014
http://asonginthisworld.blogspot.com/2014_01_01_archive.html
Spinal Muscular Atrophy Canada. Saturday, January 11, 2014. MASTERY OF MIND OPENS AVENUES OF HOPE. Change your attitude, look past yourself and deliver the care your child needs. Remember it's not the caregiver who is sick and needs help it's the patient. We have to move past anticipatory grief, spend time with our children that is where our healing lies in the time we spend with our children. All that we are is the result of what we have thought. 8211; The Buddha. Subscribe to: Posts (Atom). I am a sing...
