swcar.org
SWCAR: Support Groups
http://www.swcar.org/support-group-links.html
From 1 April 2015 we are part of Public Health England. We are still maintaining this website until further notice. How to notify us. Page is printer friendly. Support group web links. Showing 149 web links:. Contact a Family:support group for all conditions,syndromes and disorders. UK Self Help Groups. Acoustic Neuroma Association BANA. Addison's Disease Self Help Group (UK). Agenesis Corpus Callosum CORPAL. Androgen Insensitivity Syndrome AIS. Ante-natal Results and Choices ARC. Eye Conditions Visually...
raredisease.org.uk
Supporters
http://www.raredisease.org.uk/members.htm
What is a rare disease? Rare Disease UK (RDUK) has over 2,000 registered supporters including academics, clinicians, industry, individual members and patient organisations. For more information and to join RDUK please click here. Our industry supporters for 2016 are: Aegerion, Alexion, Amgen, Amicus Therapeutics, Bio Marin, Chiesi, CSL Behring, Genzyme, GlaxoSmithKline, Healx, Novartis, Pfizer, PTC Therapeutics, Raptor, Roche, Shire, Sigma-Tau Rare Disease, SOBI, UCB and Vertex. Alpha 1 UK Support Group.
a-t.org.il
קישורים רלוונטיים - העמותה למאבק במחלת ה A-T
http://www.a-t.org.il/אודות-המחלה/קישורים-רלוונטיים
בדיקת נשאות במגזר הערבי. גן ה-A-T וחלבון ה-ATM. פרופ’ יוסי שילה. דבר מנהל ביה ח ספרא. בדיקת נשאות במגזר הערבי. גן ה-A-T וחלבון ה-ATM. פרופ’ יוסי שילה. דבר מנהל ביה ח ספרא. A-T Children’s Project. בדיקת נשאות במגזר הערבי. גן ה-A-T וחלבון ה-ATM. גן ה-A-T וחלבון ה-ATM. פרופ’ יוסי שילה. דבר מנהל ביה ח ספרא. כל הזכויות שמורות לעמותה למאבק במחלת הA-T.
ateurope.org
ATEurope - Prevalence
http://www.ateurope.org/en/ataxia-telangiectasia/who-is-concerned/prevalence.html
Possible delays pour diagnosis. DNA, chromosomes and genes. Skin - Mucous membranes. The computer as a tool. About the disease AT. About the ATM gene. Clinical research: Cambridge 2012. Credit card - Paypal. Your energy and skills. Acknowledgments: E. CAVACIUTI, biostats, Inst. Curie. In Europe, 1 in 100 000 people suffers from ataxia telangiectasia. There are no ethnic, economic, geographic or education criteria to be suffering from AT. Girls and boys are affected the same way. Note that these very low ...
razemzdazymy.org.pl
Razem Zdążymy :: linki
http://razemzdazymy.org.pl/linki
Oddział Immunologii IP CZD w Warszawie. Molecular pathology of ataxia telangiectasia, J Clin Pathol 2005;58:1009 1015. Nasi przyjaciele na świecie. Jeffrey modell foundation, USA. A-T Children's Project, USA. AT Society, Wielka Brytania. L'APRAT, Francja. L'ACAF, Kanada.
papworthhospital.nhs.uk
Transitions - Transitions
http://www.papworthhospital.nhs.uk/transitioning
Take a tour of Papworth with Giorgia. Where is Papworth Hospital? Accommodation for family and friends. Cambridge Centre for Lung Infection. UK Primary Immunodeficiency Patient Support. Papworth Hospital NHS Foundation Trust. Find your transition team contact on the. Meet the team pages.
glosna.org.uk
Neurology charities and other organisations
http://glosna.org.uk/others.htm
Neurology charities and other organisations. Most of the organisations listed here are not currently in contact with GlosNA and therefore do not enjoy the full benefits of GlosNA's working relationship with the Gloucestershire CCG. If you are a regional or local representative of a neurological charity. And you would like your views (or those of your organisation) to be taken into account by GlosNA and ultimately by the Gloucestershire CCG, then we invite you to contact GlosNA. Brain and Spine Foundation.
fondationalexandredeschamps.weebly.com
Links, videos and inspirations - Fondation Alexandre Deschamps Foundation
http://fondationalexandredeschamps.weebly.com/links-videos-and-inspirations.html
Follow me through my journey. Thank you for your prayers and thoughts. My life isn't easy, but it's worth it! Fondation Alexandre Deschamps Foundation. Breaking down the name of A-T. How common is A-T? How is A-T inherited? What are the symptoms of A-T? How is the diagnosis of A-T made? What is the prognosis for A-T? What kind of group support is available after the diagnosis of A-T? To the typical siblings of a brother or sister with a disability. Links, videos and inspirations. À nos amis francophones.
swcar.org.uk
SWCAR: Support Groups
http://swcar.org.uk/support-group-links.html
From 1 April 2015 we are part of Public Health England. We are still maintaining this website until further notice. How to notify us. Page is printer friendly. Support group web links. Showing 149 web links:. Contact a Family:support group for all conditions,syndromes and disorders. UK Self Help Groups. Acoustic Neuroma Association BANA. Addison's Disease Self Help Group (UK). Agenesis Corpus Callosum CORPAL. Androgen Insensitivity Syndrome AIS. Ante-natal Results and Choices ARC. Eye Conditions Visually...
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