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Sh%* No One Has Said About ALS « Ten Years Living With ALS By Augie NietoTen Years Living With ALS By Augie Nieto
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Ten Years Living With ALS By Augie Nieto
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Ask Me Anything – My “No Holds Bar” Interview « Sh%* No One Has Said About ALS
https://augienieto.wordpress.com/2016/02/01/ask-me-anything-my-no-holds-bar-interview
Sh%* No One Has Said About ALS. Ten Years Living With ALS By Augie Nieto. Ask Me Anything – My “No Holds Bar” Interview. The results are in! Thank you to everyone who responded to my Facebook post and asked me some interesting (and challenging) questions. I was overwhelmed with the amount of responses and questions I received. I apologize for taking an extra week to post. I wanted to be sure I answered each of your questions in a thoughtful manner. Now, without further ado…. Question is 87% of all donati...
Augie’s Quest « Sh%* No One Has Said About ALS
https://augienieto.wordpress.com/augies-quest
Sh%* No One Has Said About ALS. Ten Years Living With ALS By Augie Nieto. Augie’s Quest and ALS TDI. The purpose of Augie’s Quest has always been to fund research and drug development aimed at ending ALS, Lou Gehrig’s disease. Since 2007, Augie’s Quest has raised over $44 million in support of finding effective ALS treatments- making it the largest individual fundraising program for ALS! Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:.
Sh%* No One Has Said About ALS « Ten Years Living With ALS By Augie Nieto « Page 2
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Sh%* No One Has Said About ALS. Ten Years Living With ALS By Augie Nieto. Newer posts →. 10 Memorable Moments from the Past Decade. I am often asked, What has it been like living with ALS for ten years? To be frank, it’s been f%*#ing nuts. Living with ALS for a decade has been a tidal wave of emotions and experiences – much too hard to sum up in one blog post, but I’m going to take a stab at it. Life pumped the breaks, and now, I’m riding around in a wheelchair accessible mini-van. How life changes.
Augie’s “Top Ten” Inspirational Blogs about ALS « Sh%* No One Has Said About ALS
https://augienieto.wordpress.com/2015/09/01/augies-top-ten-inspirational-blogs-about-als
Sh%* No One Has Said About ALS. Ten Years Living With ALS By Augie Nieto. Augie’s “Top Ten” Inspirational Blogs about ALS. Now that I have become a “blogger” I would like to acknowledge some of the blogs that have inspired me from people fighting the same fight I am. We, pALS, are all in this fight together and I am sure I am not the only one who has found inspirations from other members of the ALS community. Http:/ www.beyondals.org/. Http:/ www.alifestoryfoundation.org/blog/. Andrea was diagnosed in Ma...
Top 10 Life Hacks for ALS According to Lynne « Sh%* No One Has Said About ALS
https://augienieto.wordpress.com/2015/07/10/top-10-life-hacks-for-als-according-to-lynne
Sh%* No One Has Said About ALS. Ten Years Living With ALS By Augie Nieto. Top 10 Life Hacks for ALS According to Lynne. CAUTION: The following post was written by my wife Lynne and is NOT intended for folks with no sense of humor. Please do not continue reading if you are easily offended by potty talk or the ability to make light of ALS. For the rest of you….(drum roll please), here is the “Top 10 Life Hacks for ALS According to Lynne”! I’m going to be really pissed if Augie dies by ice cream. ...5- Boto...
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Medical | Ok, so far
https://pattysoksofar.com/category/medical
Ok, so far. Figuring out this ALS thing as I go. April 18, 2016. Kristina here, typing for my mom. You may also know me as Daughter #2. That’s it from me. The rest is mom’s. We went to our UCSD ALS clinic appointment the other day. I continue to lose weight, but I don’t recommend ALS as a weight-loss program. In the three and a half years we … Continue reading →. April 11, 2016. February 24, 2016. Zzzzz (Yawn) … I’m awake! January 31, 2016. My eyes are open! Really, I am awake now! January 22, 2016.
July News…and a Tribute | Ok, so far
https://pattysoksofar.com/2015/07/10/july-news-and-a-tribute
Ok, so far. Figuring out this ALS thing as I go. July News…and a Tribute. July 10, 2015. Summer is in full swing. It’s been a relatively mild one so far. The tourists are complaining about the persistent cloud cover at the beaches. We have sunny afternoons inland where we live, though, and that is enough to prove that, yes, it IS July in southern California. I want to tell the world about the brother I grew up with. I was a pesky little sister, I admit. But my brother has always been kindhearted....Doug ...
Resources | Ok, so far
https://pattysoksofar.com/resources
Ok, so far. Figuring out this ALS thing as I go. Below is a list of resources for those affected by amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s disease. In the UK it is called motor neurone disease (MND.). Last updated February 2 20. Information about Amyotrophic Lateral Sclerosis. National Institutes of Health ALS page. University of California San Diego ALS Center. ALS Association: What is ALS? Muscular Dystrophy Association ALS overview. Mayo Clinic ALS page. April’s ALS Blog.
Videos | Augie's Quest
http://www.augiesquest.org/videos
Stay connected with Augie. Stay connected with Augie. Nancy O'Dell attends 2015 Tradition of Hope. Orange County Man Uses his 'Empire' To Fight ALS. CNN Augie Nieto’s Story. Exploring the science behind the cause and the cure). Zumba-United We Dance to Cure ALS. MDA Show of Strength 2012. Augie’s Quest BASH 2011 video. Ty Hendron featuring former NFL player and current ALS patient Kevin Turner. Augie on Telethon 2010 (focus on MDA's ALS Research Initiative). Augie’s Quest BASH 2010. March 30, 2009. 2007 ...
Partners | Augie's Quest
http://www.augiesquest.org/partners
Stay connected with Augie. Stay connected with Augie. Absolute Sponsors ($5 Million ). Titanium Sponsors ($1 Million ). Diamond Sponsors ($500,000 ). Platinum Sponsors ($250,000 ). Ruby Sponsors ($100,000 ). Gold Sponsors ($50,000 ). Silver Sponsors ($25,000 ). Bronze Sponsors ($10,000 ). Daily Pilot - Aug 2014. Orange County Register - Aug 2014. Orange County Register - Aug 2014. Augie's Conquest - June 2013. Nieto Gives Demo of Progress on ALS - March 2013. CSHA Newsletter - Winter/Spring 2012.
Faith | Ok, so far
https://pattysoksofar.com/category/faith-2
Ok, so far. Figuring out this ALS thing as I go. February 24, 2016. It is strange how sometimes I am able to use Tobii to write what’s on my mind despite all of the powerful drugs coursing through my veins. I am aware that many dear friends, and strangers too, are praying. That must be the reason. I have been thinking about our friend Betty, one of our … Continue reading →. To My Loving Creator. February 4, 2016. January 22, 2016. Trigger warning : panic attack, anxiety Terrifying? Is that the right word?
Sneaky Little Changes | Ok, so far
https://pattysoksofar.com/2015/04/14/sneaky-little-changes
Ok, so far. Figuring out this ALS thing as I go. April 14, 2015. Sneaky. This incredibly slow moving progression is so sneaky. I get lulled into thinking my ALS symptoms are pretty stable. Then…wham! Shortly before I got my feeding tube last fall, I had been experiencing some occasional choking episodes while taking pills. Of course, as soon as I had the tube, pills began sliding down my throat without a problem. Accompanied by a nice big spoonful of pudding! Soon we will begin using the g-tube for its i...
About ALS | Ok, so far
https://pattysoksofar.com/about-als
Ok, so far. Figuring out this ALS thing as I go. Here’s what happens: There is progressive degeneration of motor nerve cells in both the brain (upper motor neurons) and spinal cord (lower motor neurons). As a result, motor neurons lose the ability to communicate with muscles. When the muscles do not contract they begin to atrophy, or waste away. This results in weakness. ALS does not affect a person’s ability to move their eyes, or to hear, taste, smell, or sense touch. In most cases, the mind ...That...
GM604: It’s Complicated | Ok, so far
https://pattysoksofar.com/2015/04/06/gm604-its-complicated
Ok, so far. Figuring out this ALS thing as I go. GM604: It’s Complicated. April 6, 2015. The ALS community has been abuzz with some news about a potential new treatment called GM604. I have refrained from writing about this here for reasons I will explain later in this post. Just what is this drug? How did it come about? How does it affect disease progression? Where are we in the trial process? When can we PALS get it? Over-simplified Knowledge, Somewhat Organized, Fairly Accurate, Reduced. On the other ...
Speaking of Dogs | Ok, so far
https://pattysoksofar.com/2015/07/16/speaking-of-dogs
Ok, so far. Figuring out this ALS thing as I go. July 16, 2015. I really am spoiled rotten, you know. When I (greedily) asked if I could meet another of our hospice’s therapy dogs, I was surprised when they said, “Sure! 8221; So in addition to my regular visits from Buster, the treat-snarfing wonder schnoodle, I’ve also had two visits from sweet Indra. Was here somewhere. Her efforts were in vain. Henry spends most days in the garage. Especially if he knows there’s a dog in the house. Get licked in the f...
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Augustana Mirror
Venture through Augustana’s art and literary talent. March 1, 2018. Bull; 0 Comments. GRACE WALLIN gmwallin17@ole.augie.edu When students think of publications associated with Augustana, most think of the school newspaper, The Mirror or the yearbook, Edda, but another publication coming to the forefront of students minds is Venture, a publication a little more…. Read more →. Find weather-adaptable spring styles at Chelsea’s. March 1, 2018. Bull; 0 Comments. Read more →. March 1, 2018. Bull; 0 Comments.
Augie and Mo in Africa 10-07
Augie and Mo in Africa 10-07. Thursday, October 25, 2007. If it starts looking like we're not lifting off, throw out some of the baggage. You looking at me? Two days without a buffalo, and these tourists start looking tasty. More babysitting. Let the leopards have them, I'm too tired to care. Chobe, Botswana and Namibia. Botswana border chameleon. Stands guard at immigration office. A sunset with elephants? What happens when you fall behind the group. Japanese tourists and elephants. see above. In the af...
Augiemomma's Weblog | Just another WordPress.com weblog
Second half of life. June 13, 2013 at 4:56 am ( Uncategorized. So it happened. I wasn’t ready for it, but it happened anyway. I am officially 40. Officially over the hill. And for the official record, I feel great! Indoor skydiving with good friends. Dinner with more good friends. Lots of laughter and smiles and cheers for the birthday girl. All in all, a great and glorious day. Here is to a great year. A great decade. A great second half of life. Not what i expected. This is not what I expected. I am si...
Welcome to AugieMoto
Loading the player . Program Billet Main Caps. Ferrea 1mm Oversized Valves. Ferrea Springs, Retainers, Lockers and Keepers. Mild Port and Polish and 3-Angle Valve Job. Precision PT8285 CEA GT42 Style. Tial MV-R 44MM Wastegate (2x). GReddy 4-Row Front Mount Intercooler. Custom 3-Inch Intercooler Feed Pipe. TIAL Blow Off Valve. 12AN Feed into Dual -8AN to Fuel Rail. Ken Bell Boost a Pump. Titan Motec PNP Harnes. NGK Iridium Spark Plugs BKR9EIX. GReddy 2BAR Boost Gauge in Factory Clock Location.
Augustine L. Munoz Cancer Research Fund
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Sh%* No One Has Said About ALS « Ten Years Living With ALS By Augie Nieto
Sh%* No One Has Said About ALS. Ten Years Living With ALS By Augie Nieto. Ask Me Anything – My “No Holds Bar” Interview. The results are in! Thank you to everyone who responded to my Facebook post and asked me some interesting (and challenging) questions. I was overwhelmed with the amount of responses and questions I received. I apologize for taking an extra week to post. I wanted to be sure I answered each of your questions in a thoughtful manner. Now, without further ado…. Question is 87% of all donati...
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UX and UI Design | Augie Park
Mobile game UX and UI. Website UX research, design, and dev. Small business logo and branding. Research center identity and environment. Pavilion identity and environment. Tales of The Missing Moon Jar. Visual concept of a mobile gaming app. For the full research and process of the project. UX research, design, and development. The final product was coded on Wordpress with HTML5, CSS3, JavaScript, PHP, and SASS. UX research and design, and UI Design. Branding and identity for a small company. A tea shop ...
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