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awarenexs.blogspot.com

awareneXs

Fragile X Syndrome is a genetic disorder that we never even heard of until our son was born. FXS is the most common inherited form of intellectual impairment & the number one known single gene cause of autism. I'm here to raise awareneXs and blog our story.

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awareneXs | awarenexs.blogspot.com Reviews
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Fragile X Syndrome is a genetic disorder that we never even heard of until our son was born. FXS is the most common inherited form of intellectual impairment &amp;amp; the number one known single gene cause of autism. I&amp;#39;m here to raise awareneXs and blog our story.
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awareneXs | awarenexs.blogspot.com Reviews

https://awarenexs.blogspot.com

Fragile X Syndrome is a genetic disorder that we never even heard of until our son was born. FXS is the most common inherited form of intellectual impairment &amp;amp; the number one known single gene cause of autism. I&amp;#39;m here to raise awareneXs and blog our story.

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awarenexs.blogspot.com awarenexs.blogspot.com
1

awareneXs: January 2015

https://awarenexs.blogspot.com/2015_01_01_archive.html

Fragile X Syndrome is a genetic disorder. FXS is the most common inherited form of intellectual impairment and the number one known genetic cause of autism. Im here to raise awareneXs and blog our story. For starters, it is my distinguished honor and privilege to introduce you to Hayden. Clouds, May 2010. Tuesday, January 20, 2015. Why all the fuss. It's time for me to preach again. Because here in our little fragile x world (& beyond) we've had some very exciting happenings. Part One of the awesomeness.

2

awareneXs: July 2014

https://awarenexs.blogspot.com/2014_07_01_archive.html

Fragile X Syndrome is a genetic disorder. FXS is the most common inherited form of intellectual impairment and the number one known genetic cause of autism. Im here to raise awareneXs and blog our story. For starters, it is my distinguished honor and privilege to introduce you to Hayden. Clouds, May 2010. Tuesday, July 29, 2014. Are you an eXpert? About fragile x during Fragile X Awareness month! As July is soon to come to a close, I wonder. would YOU be able to answer this question:. What is fragile x?

3

awareneXs: August 2014

https://awarenexs.blogspot.com/2014_08_01_archive.html

Fragile X Syndrome is a genetic disorder. FXS is the most common inherited form of intellectual impairment and the number one known genetic cause of autism. Im here to raise awareneXs and blog our story. For starters, it is my distinguished honor and privilege to introduce you to Hayden. Clouds, May 2010. Tuesday, August 26, 2014. The next 48 hours. So for those who are part of my social media life, and have been witnessing the excessive amounts of pictures I've added lately, you know I have not been home.

4

awareneXs: happy tears

https://awarenexs.blogspot.com/2015/05/happy-tears.html

Fragile X Syndrome is a genetic disorder. FXS is the most common inherited form of intellectual impairment and the number one known genetic cause of autism. Im here to raise awareneXs and blog our story. For starters, it is my distinguished honor and privilege to introduce you to Hayden. Clouds, May 2010. Monday, May 4, 2015. I do not have the faintest idea why I am so emotional- good or not so good- in response to most things Hayden. Said no parent of a child with fx, ever. Cue more happy tears.). And s...

5

awareneXs: AD in DC for H

https://awarenexs.blogspot.com/2015/03/ad-in-dc-for-h.html

Fragile X Syndrome is a genetic disorder. FXS is the most common inherited form of intellectual impairment and the number one known genetic cause of autism. Im here to raise awareneXs and blog our story. For starters, it is my distinguished honor and privilege to introduce you to Hayden. Clouds, May 2010. Monday, March 9, 2015. AD in DC for H. Every year the first ask is for continued funding of Fragile X research from the NIH, CDC and DoD. Each budget year as funding is set, our goal is to get our M...

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kristin-thecarvers.blogspot.com kristin-thecarvers.blogspot.com

The Reluctant Adventurer: April 2013

http://kristin-thecarvers.blogspot.com/2013_04_01_archive.html

A boy with Fragile X Syndrome does not always try new things without some prompting and persuasion. Sunday, April 21, 2013. Clinic visit April 19. We had our fifth visit to Duke on Friday, April 19. I actually had to double check my calendar to make sure that was right.five visits are done! We only have one left, and that will be on May 8. The back seat buddies. The North Carolina Welcome Center. Another one of Ina's cocktail recipes. We arrived at Mary and Jim's in time for the evening news and cocktail...

kristin-thecarvers.blogspot.com kristin-thecarvers.blogspot.com

The Reluctant Adventurer: September 2013

http://kristin-thecarvers.blogspot.com/2013_09_01_archive.html

A boy with Fragile X Syndrome does not always try new things without some prompting and persuasion. Monday, September 2, 2013. I'm going to miss this view. Well, it was quite the summer. And I can't believe it's been almost 3 months since I've posted anything. Guess I spent a lot of time working on my tan! The biggest news for me is that at the end of June I was offered a job! I have been mostly okay with it, but here I am the night before the big day and I am scared spitless. Because while he is the...

kristin-thecarvers.blogspot.com kristin-thecarvers.blogspot.com

The Reluctant Adventurer: Way to go, little man!!!

http://kristin-thecarvers.blogspot.com/2014/03/way-to-go-little-man.html

A boy with Fragile X Syndrome does not always try new things without some prompting and persuasion. Monday, March 10, 2014. Way to go, little man! Wow, what a difference one person can make. Just over a month ago, I took Ian to see Dr. Mead who handles his medications. I expressed concerns about Ian's behavior at school and we discussed the possibility of making some changes in our routine and his dosage, etc. Since previous attempts to do this were not successful (disastrous is a better term! The only s...

kristin-thecarvers.blogspot.com kristin-thecarvers.blogspot.com

The Reluctant Adventurer: Other Stuff

http://kristin-thecarvers.blogspot.com/p/other-stuff.html

A boy with Fragile X Syndrome does not always try new things without some prompting and persuasion. Subscribe to: Posts (Atom). Blizzard 2016 Photo Dump. Why going to Conference is so important to me? View my complete profile. My Teacher Appreciation Week Project. We find after years of struggle that we do not take a trip: a trip takes us.". Simple template. Template images by MadCircles.

kristin-thecarvers.blogspot.com kristin-thecarvers.blogspot.com

The Reluctant Adventurer: Spring Break and 9 Weeks to Go

http://kristin-thecarvers.blogspot.com/2015/04/spring-break-and-9-weeks-to-go.html

A boy with Fragile X Syndrome does not always try new things without some prompting and persuasion. Sunday, April 12, 2015. Spring Break and 9 Weeks to Go. So, how was your Spring Break? Well, we did not go to Disney. Or the beach. But, we chilled and slept and basically recharged the batteries. Because there are only 9 weeks left until the end of the school year. 9 weeks! On Easter I made brunch with mimosas (of course), hot cross buns, sausage from the Lakeside Farmer's Market, and scrambled eggs.

kristin-thecarvers.blogspot.com kristin-thecarvers.blogspot.com

The Reluctant Adventurer: My Teacher Appreciation Week Project

http://kristin-thecarvers.blogspot.com/2015/05/my-teacher-appreciation-week-project.html

A boy with Fragile X Syndrome does not always try new things without some prompting and persuasion. Tuesday, May 5, 2015. My Teacher Appreciation Week Project. I thought this poem was perfect. Teacher Appreciation Week Project, 2015. So, a few years ago my friend Joyce Kreger was very complimentary of my gift bags for the teachers on Ian's 5th Grade Team. She even published it on her Cool Party Favors site! Well, this year is not quite the same level, but I decided to share it again. So, using discounted...

kristin-thecarvers.blogspot.com kristin-thecarvers.blogspot.com

The Reluctant Adventurer: Back to school and an IEP Meeting

http://kristin-thecarvers.blogspot.com/2015/04/back-to-school-and-iep-meeting.html

A boy with Fragile X Syndrome does not always try new things without some prompting and persuasion. Saturday, April 18, 2015. Back to school and an IEP Meeting. So, this week went pretty well. My co-worker Regan timed her maternity leave perfectly because baby Henry James arrived on Monday evening. What happy news! Can't wait to meet him. The substitute for two weeks is a very nice guy named Mr. Martin. Regan left great sub plans and Mr. Martin has fit in just fine. We love you Ms. Nidia! April, and hope...

the-dog-ate-my-blog.blogspot.com the-dog-ate-my-blog.blogspot.com

Life in the Pines..........: Blog tour.........Becoming Mrs. Rogers

http://the-dog-ate-my-blog.blogspot.com/2014/05/blog-tourbecoming-mrs-rogers.html

Life in the Pines. Tuesday, May 27, 2014. Blog tour.Becoming Mrs. Rogers. I'm thrilled to help in promoting Cindi Rogers' new book, Becoming Mrs. Rogers. By participating in the blog tour for the book. It's now available for purchase on Amazon.com here. This book was a labor of love for Cindi, as well as for her husband Chris. Becoming Mrs. Rogers. Please consider reading it, and/or sharing it with others in your life that might benefit from such a story! Becoming Mrs. Rogers. What is fragile X syndrome?

the-dog-ate-my-blog.blogspot.com the-dog-ate-my-blog.blogspot.com

Life in the Pines..........: May 2014

http://the-dog-ate-my-blog.blogspot.com/2014_05_01_archive.html

Life in the Pines. Thursday, May 29, 2014. This morning while doing a quick scan through my newsfeed on FB, I saw that two friends had both shared a link to a blog. Neither wrote any description of the shared link. I usually don't look at links that don't have any indication of their contents, but I did this time. The link was to a post. That's an eternity when waiting for a new heart. Tuesday, May 27, 2014. Blog tour.Becoming Mrs. Rogers. Becoming Mrs. Rogers. Is the true and heart-felt story of one cou...

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Learning how to reduce tension and move easier using the Alexander Technique and Exercise Therapies. Sunday, February 2, 2014. What if we each spent at least one hour a day to devote to wellness? What would that look like? Depends on what your psychophysical priorities or goals may be? Perhaps you need more emphasis on stress reduction or weight loss. Perhaps you have some tendencies toward fibromyalgia, osteoporosis, or just back pain? The list is yours to decide what makes your life well?

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awareneXs

Fragile X Syndrome is a genetic disorder that we never even heard of until our son was born. FXS is the most common inherited form of intellectual impairment and the number one known single gene cause of autism. Im here to raise awareneXs and blog our story. Clouds, May 2010. Thursday, March 8, 2018. In Like a Lion. In between power outages and snow storms, we made it to DC and back again just in time. This is called the National Fragile X Foundation Advocacy Day. Anyone. The first day is a training ...

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