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Braden Mark Wilson's BlogLiving with Leigh's Disease - Born: April 25th, 2006
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Living with Leigh's Disease - Born: April 25th, 2006
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Living with Leigh's Disease - Born: April 25th, 2006
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Braden Mark Wilson's Blog: 10-10-10 Reflections
http://baby-braden.blogspot.com/2010/10/10-10-10-reflections.html
Braden Mark Wilson's Blog. Living with Leigh's Disease - Born: April 25th, 2006. Sunday, October 10, 2010. As this special date in history occurs, and as Braden's half-birthday approaches, I've been reflecting quite a bit on our life. I certainly understand what it means to live the expression "No rest for the weary". You know how I was telling you taking care of a medically involved child like Braden is like having a newborn - all the time? 1 Seizures - are they under control? 5 Body Temp - is he too wa...
Braden Mark Wilson's Blog: A DAY IN OUR LIFE
http://baby-braden.blogspot.com/2013/03/a-day-in-our-life.html
Braden Mark Wilson's Blog. Living with Leigh's Disease - Born: April 25th, 2006. Sunday, March 24, 2013. A DAY IN OUR LIFE. Pic of Braden at the HPC Easter Eggstravaganza. 10 pm Braden didn’t pee 3x today, so we have to catheterize him again before we hit the sack. I wonder how many more times we will have to do this before his body gets with the program. Should we add meds to help him go? 1:30 am Pulse-ox goes off. He pulled off the sensor and it wasn’t reading right. 6:30 am We go to feed him, but noti...
Braden Mark Wilson's Blog: January 2015
http://baby-braden.blogspot.com/2015_01_01_archive.html
Braden Mark Wilson's Blog. Living with Leigh's Disease - Born: April 25th, 2006. Sunday, January 25, 2015. Overdue update and a 22-month anniversary celebration. We are at home with our son, grateful for quiet time with him. Appreciative we are in our own home. Awestruck that his machines can keep his body going when he physically can’t, or his brain doesn’t tell the body to function automatically like ours does. Kodi L. Wilson. Subscribe to: Posts (Atom). Follow me on Twitter. Kodi L. Wilson.
Braden Mark Wilson's Blog: Celebrate Good Times - 24 month NEW anniversary!!
http://baby-braden.blogspot.com/2015/03/celebrate-good-times-24-month-new.html
Braden Mark Wilson's Blog. Living with Leigh's Disease - Born: April 25th, 2006. Wednesday, March 18, 2015. Celebrate Good Times - 24 month NEW anniversary! For those new to our story, we really never went much more than 3 or 4 months in the past without an admission. Occasionally we would make 6 to 8 months without a visit. This two year anniversary is quite monumental. She is living proof, like my own family, that it's not the circumstances that determine the life you live - it's how you handle and dea...
Braden Mark Wilson's Blog: March 2015
http://baby-braden.blogspot.com/2015_03_01_archive.html
Braden Mark Wilson's Blog. Living with Leigh's Disease - Born: April 25th, 2006. Wednesday, March 18, 2015. Celebrate Good Times - 24 month NEW anniversary! For those new to our story, we really never went much more than 3 or 4 months in the past without an admission. Occasionally we would make 6 to 8 months without a visit. This two year anniversary is quite monumental. She is living proof, like my own family, that it's not the circumstances that determine the life you live - it's how you handle and dea...
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Welcome to Our Lives!: A Sacrifice....
http://baby-jackson.blogspot.com/2011/06/sacrifice.html
Welcome to Our Lives! 4 years in our journey with Arthrogryposis and one amazing miracle! Tuesday, June 21, 2011. You can check out the whole story here. I did and will ALWAYS choose my child (and my family). I'm am thankful to have a flexible job now, but in the work I do, I can't tell you how many parents and/or caregivers I speak to who have to make a choice to quit their job and care for their child to only be told they still don't qualify for services! Doris Glass Heckert - Jackson's Mommy.
Welcome to Our Lives!: Bright Green Straps
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Welcome to Our Lives! 4 years in our journey with Arthrogryposis and one amazing miracle! Monday, April 11, 2011. I know it's been a long time since I posted, but we have been super busy. Today, we went to pick up Jackson's new braces and when we asked him what color straps he wanted, he picked the loudest color in the place and it was of course a shade of green! Thanks for checking in on us! Doris Glass Heckert - Jackson's Mommy. I was born with a rare life threatening disease. May 15, 2011 at 5:18 PM.
Welcome to Our Lives!: I never knew....
http://baby-jackson.blogspot.com/2009/11/i-never-knew.html
Welcome to Our Lives! 4 years in our journey with Arthrogryposis and one amazing miracle! Monday, November 16, 2009. There are a many things I never knew until I had a child, especially one who is differently abled, most of the things I have learned along the way are happy things, like sheer joy and a love like I never knew before. But today, I learned something I thought I knew before, but really didn't. Today, I learned what a true broken heart felt like. Doris Glass Heckert - Jackson's Mommy. View my ...
Welcome to Our Lives!: whew!
http://baby-jackson.blogspot.com/2010/03/whew.html
Welcome to Our Lives! 4 years in our journey with Arthrogryposis and one amazing miracle! Monday, March 22, 2010. I won't say that this is a decision that makes me or Jon happy, but it is a decision we are (well, at least for me) slowly coming to terms with. It will be tough to send my almost 4 year old back to the surgery area, when he is old enough to know what is happening, but I know in my heart that this is what's best for him. Doris Glass Heckert - Jackson's Mommy. March 23, 2010 at 4:46 PM. Http:/...
Love Karina: July 2009
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Saturday, July 4, 2009. June 26, 2009 was a very special night for the Colon Family. Arianna was in a vocal performance and sang a duet with family friend, Karly Mani. As a surprise to us, they sang a tribute to little Karina, their butterfly. It was a very emotional performance for everyone, especially for those of us who love Karina. There was not a dry eye in the theater! Here is a link to the video:. Http:/ www.youtube.com/watch? Subscribe to: Posts (Atom). Subscribe To Love Karina's Blog. Watermark ...
Love Karina: Knights of Columbus Hosts a Fundraiser for Karina
http://love-karina.blogspot.com/2011/09/knights-of-columbus-fundraiser-for.html
Monday, September 19, 2011. Knights of Columbus Hosts a Fundraiser for Karina. Karina Alessia Colón is a three and a half year old who lives in Bloomingdale, NJ with her mother Melissa, father Fernando, and older sister Arianna. She was born with Mitochondrial Disease. A life-threatening condition that weakens muscles, induces seizures and causes both respiratory issues and developmental delay. We are hosting a Wine Tasting and Tricky Tray Fundraiser in Karina’s honor on Friday, October 21. At a few week...
Love Karina: July 2010
http://love-karina.blogspot.com/2010_07_01_archive.html
Sunday, July 4, 2010. Benefit Dinner at Piazza Margherita Restaurant. Here are some photos from the wonderful benefit dinner hosted by Piazza Margherita Restuarant in Lyndhurst, New Jersey. The owner Pasqualle De Palma and his incredible staff went above and beyond anyone's expectations and gave us a night that we will never forget! Subscribe to: Posts (Atom). Benefit Dinner at Piazza Margherita Restaurant. Subscribe To Love Karina's Blog. Life, Love and Laundry. All the Marletts, Our Life as a Family.
Love Karina: May 2009
http://love-karina.blogspot.com/2009_05_01_archive.html
Tuesday, May 19, 2009. Last night was a great success! The money that was raised is more than we had hoped for. Again, thank you, thank you, THANK YOU! Tuesday, May 12, 2009. Great Pizza for a Great Cause. Next Monday, May 18th, AJ's Deli and Brick Oven Pizza of Haledon, New Jersey will be hosting a fundraiser for Love Karina. We can't thank them enough for doing this for our daughter. Here is the flyer:. Subscribe to: Posts (Atom). Great Pizza for a Great Cause. Subscribe To Love Karina's Blog.
Welcome to Our Lives!: I'm the Mommy to a Miracle
http://baby-jackson.blogspot.com/2011/06/im-mommy-to-miracle.html
Welcome to Our Lives! 4 years in our journey with Arthrogryposis and one amazing miracle! Thursday, June 30, 2011. I'm the Mommy to a Miracle. I can't believe that it is the 2nd Annual Arthrogryposis Multiplex Cogenita Awareness Day! On this day, I want to share with you why wearing blue matters! You may think that donning a blue shirt, blue polish or even a blue wig are not a big deal, but trust me they are! The mortality rate for AMC has been quoted by many professionals as 50% in utero! Http:/ www....
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Blog de BABY-BR0WN-x3 - BB BRUNES - Skyrock.com
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Blog de Baby-br0wn - | | Fùùtùùr r0ck℮ùz℮ ( LL) | | - Skyrock.com
Mot de passe :. J'ai oublié mon mot de passe. Fùùtùùr r0ck℮ùz℮ ( LL). A vous de juger comme je dis j'ai pas besoin de me faire une mauvaise image de moi, des gens s'en occupe à ma place ( Quelle gentillesse, votre bonté vous perdra chers amis ) . J'créverai surement d'un fou rire; j'aurai pas néanmoins une fin pathétique . Je pense l`avoir trop aimer pour l'oublier . Tù Veùx V'niir b0iir L'àpér0? Mise à jour :. Tchek and Ecoute =D. No Stress (English radio). Abonne-toi à mon blog! Sii J'aur ℮. Posté le j...
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Braden Mark Wilson's Blog
Braden Mark Wilson's Blog. Living with Leigh's Disease - Born: April 25th, 2006. Wednesday, July 05, 2017. Having Children: The Gumball Lottery. When you decide to have children, you are playing the lottery. It's like sticking a quarter in a giant gumball machine. You just don't know what you are going to get. I have spent most of Braden's life advocating for him. I am his voice. He cannot speak, or walk or eat or do anything on his own. Some quick highlights of this plan for you:. Caps on lifetime limit...
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Psychology resource and perspective on babies and motherhood. Press & About. Let’s Make Stuff. All Activities (List & Links). Baby – Simple play ideas & activities. Toddler – Easy & Fun Activities. Fun Sensory Play Ideas – for Babies, Toddlers, Preschoolers. Wellbeing & Mental Health. The Preschooler is 3! 8211; child development and milestones at age 3. Date: January 2, 2017. Categories: Age: 3-4 years. Comments: Leave a reply. Yes happy birthday Little Lovely! What can we expect aged 3? 8211; understan...
Baby Brains | The fun side of science
About “screen time”, screen quality, and other challenges. Fresh from the lab: Dr Sue Fletcher-Watson Today at the weekly CBCD seminar we are very fortunate to be joined by Dr Sue Fletcher-Watson who has travelled all the way down from Edinburgh to share her exciting research on autism and technology! Sue is involved in a number of interesting projects, investigating parents’ attitudes to…. Early Development Matters. Globally. WHAT A BABY NEEDS. STARING ACROSS THE GLOBE. Fresh from the Lab: Jen Haensel, ...
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