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Battling Batten | with Freddie and Louie

with Freddie and Louie

http://www.battlebatten.com/

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CONTACTS AT BATTLEBATTEN.COM

Battle Batten

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Battle Batten

Maureen Heffernan

St David's●●●●●●●●●● 15 Worple Way

Ric●●●ond , TW10 6DG

UNITED KINGDOM

4478●●●●9242
ma●●●●●●●●●●●●●●@leisurepr.co.uk

View this contact

Battle Batten

Maureen Heffernan

St David's●●●●●●●●●● 15 Worple Way

Ric●●●ond , TW10 6DG

UNITED KINGDOM

4478●●●●9242
ma●●●●●●●●●●●●●●@leisurepr.co.uk

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Battling Batten | with Freddie and Louie | battlebatten.com Reviews
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with Freddie and Louie
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1 battling batten
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3 our story
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6 the family
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Battling Batten | with Freddie and Louie | battlebatten.com Reviews

https://battlebatten.com

with Freddie and Louie

INTERNAL PAGES

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1

Battle Batten Ball | Battling Batten

https://battlebatten.com/battle-batten-ball

With Freddie and Louie. Skip to primary content. In November 2014, Battle Batten held a Black, White and Blue ball, recognised as the most emotional an uplifting event of the year. 350 came together to fundraised 20,000 from ticket sales, raffle, action and casino. Chef patron of Nottingham’s multi award winning curry lounge and of TV fame including Gordon Ramsay’s TV restaurant show Arfan (Raz) Razak led proceedings and later the auction. 44 (0) 7860 529 242. Follow Battling Batten on WordPress.com.

2

CALLING ALL GOLFERS | Battling Batten

https://battlebatten.com/2014/08/18/calling-all-golfers

With Freddie and Louie. Skip to primary content. August 18, 2014. This entry was posted in Uncategorized. 44 (0) 7860 529 242. Follow Battling Batten on WordPress.com. Create a free website or blog at WordPress.com. Follow “Battling Batten”. Get every new post delivered to your Inbox. Build a website with WordPress.com.

3

The Batten boys in the Hucknall Dispatch | Battling Batten

https://battlebatten.com/2014/07/18/the-batten-boys-in-the-hucknall-dispatch

With Freddie and Louie. Skip to primary content. The Batten boys in the Hucknall Dispatch. July 18, 2014. The ‘Batten boys’ cycled 214 miles to help us raise money for research. Thank you Dan, Gary, Frank, Scot, Graham and Russell. This entry was posted in Uncategorized. 44 (0) 7860 529 242. Follow Battling Batten on WordPress.com. Blog at WordPress.com. Follow “Battling Batten”. Get every new post delivered to your Inbox. Build a website with WordPress.com.

4

What is Batten | Battling Batten

https://battlebatten.com/what-is-batten

With Freddie and Louie. Skip to primary content. Donate to CLN5 research and equipment. Donate to CLN5 research through BDFA. Batten disease was first identified in 1903. By a paediatrician named Spielmeyer-Vogt-Sjogren-Batten. Children who are born with Batten disease will appear healthy. But later develop epilepsy; lose their eye sight; speech ability and cognitive and motor abilities. The disease is fatal. A rare disease that affects 150-200 children and young adults in the UK. Only 1-2 children are d...

5

Living with Batten | Battling Batten

https://battlebatten.com/the-family/living-with-batten

With Freddie and Louie. Skip to primary content. Donate to CLN5 research and equipment. Donate to CLN5 research through BDFA. 8220;There is no doubt that the disease has changed us all. But what doesn’t kill you makes you stronger.”. So how do you cope? We love music and listen to everything from classical to country or pop music. When the boys lost their vision, they became very in tune with music; it opens the mind up and works as a sanctuary for us.”. Accept help from the community…. Sarah and Andrew ...

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LINKS TO THIS WEBSITE

ambertrust.org ambertrust.org

Children like Freddie and Louie - Amber Trust

http://www.ambertrust.org/index.php?p=476

Music is not just. A pastime, it’s a lifeline. Vision, Values & Aims. Reports & Accounts. Health & Safety. Contact the fundraising team. News & events. Children like Freddie and Louie. November 7, 2014. November 10, 2015. It took three years for the boys to smile again but those smiles gave the family hope. It was Freddie and Louie learning to love music in a way no one could ever understand that made the difference. The only UK charity dedicated to supporting families, raising awareness and funding rese...

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