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Bianca's Adventures

"The dance of life must go on, no matter how much the tune of the music changes."

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Bianca's Adventures | biancasnewadventures.blogspot.com Reviews
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Bianca's Adventures | biancasnewadventures.blogspot.com Reviews

https://biancasnewadventures.blogspot.com

&quot;The dance of life must go on, no matter how much the tune of the music changes.&quot;

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Bianca's Adventures: November 2013

http://biancasnewadventures.blogspot.com/2013_11_01_archive.html

The dance of life must go on, no matter how much the tune of the music changes.". Monday, November 18, 2013. It’s A Bloody Battle Every Single Day. (SLIGHTLY GRAPHIC). Even if they're already asleep! She is proof enough that in this world we must continue to push forward without a second thought of looking back. We’ve been blessed so many times over by her presence – there is nothing I would do differently in my life if ever given the chance…NOTHING AT ALL! The Remnants Of Today's Battle.

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Bianca's Adventures: March 2013

http://biancasnewadventures.blogspot.com/2013_03_01_archive.html

The dance of life must go on, no matter how much the tune of the music changes.". Sunday, March 3, 2013. A Decade Later…. It has now been more than 10 years since our daughter made her grand entrance into this world. I often wonder what force has kept us afloat in the last ten years and how can I bottle that force to keep us going for the next 50 years ahead! The one thing that has managed to stay strong and grow with confidence is her soul, spirit or inner light! Subscribe to: Posts (Atom).

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Bianca's Adventures: EB Awareness Week 2014 ~ Day 1 ~ Good Morning Sunshine...

http://biancasnewadventures.blogspot.com/2014/10/eb-awareness-week-2014-day-1-good.html

The dance of life must go on, no matter how much the tune of the music changes.". Saturday, October 25, 2014. EB Awareness Week 2014 Day 1 Good Morning Sunshine. It’s the start of EB Awareness Week! And it’s time to Cause The Wave! For the start of the week on EB Awareness let me fill you in to some of the comments, statements or conversations you will only hear in a household that deals with EB – specifically RDEB (Recessive Dystrophic Epidermolysis Bullosa). 8221; - Me. 8220;I hope so! 8220;Bianca the ...

4

Bianca's Adventures: Knowing When It’s Time for an Esophagus Dilatation

http://biancasnewadventures.blogspot.com/2014/03/knowing-when-its-time-for-esophagus.html

The dance of life must go on, no matter how much the tune of the music changes.". Thursday, March 13, 2014. Knowing When It’s Time for an Esophagus Dilatation. Our symptoms have been the following:. Constant running to the bathroom to spit out food. Esophageal spasms that last anywhere from ½ an hour to an hour. Saliva accumulating to the point where it thickens and can’t be swallowed. Waking up with a drenched pillow. This go around I observed several things:. I will admit it – I was in denial for...

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Bianca's Adventures: September 2012

http://biancasnewadventures.blogspot.com/2012_09_01_archive.html

The dance of life must go on, no matter how much the tune of the music changes.". Wednesday, September 5, 2012. This or That But Always F A I T H! Less than two weeks before Bee's 10th birthday and my quest continues to keep her health at an optimal level - tonight just a few minutes ago I received an email from the EB Care Registry stating the following:. So Bianca has been moved from the. Recessive Dystrophic EB - severe generalized (RDEB-SG, formerly RDEB-HS). Always "keep the faith"! This or That But...

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learnaboutzack.blogspot.com learnaboutzack.blogspot.com

What did he get into?: August 2009

http://learnaboutzack.blogspot.com/2009_08_01_archive.html

What did he get into? Wednesday, August 12, 2009. And I am nervous. Please say a prayer for me. Wednesday, August 5, 2009. I was sad to leave Colorado so soon, I hardly got to play with all of my Moms cousins kids. I did get to see my famous Uncle Colbert on a news show. I a so tired but my Mom said I could write a blog about my trip, and she said I could write one about my next trip and my last trip too. Subscribe to: Posts (Atom). I didn't really get into a fight with a bear or a t-rex.

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What did he get into?: April 2011

http://learnaboutzack.blogspot.com/2011_04_01_archive.html

What did he get into? Thursday, April 28, 2011. Cutting out a wrap. Yesterday I cut out my own wrap because my mom wasn't home! Monday, April 25, 2011. My mom is running a marathon. Subscribe to: Posts (Atom). I didn't really get into a fight with a bear or a t-rex. Welcome to my blog! Yes it hurts, yes I wish it would go away, but it does not hold me back. I am so stronge and I am very brave, and I have eb to thank for that. Exciting news about a possible treatment. Http:/ www.cotaforkyleh.com/. My mom ...

learnaboutzack.blogspot.com learnaboutzack.blogspot.com

What did he get into?: March 2009

http://learnaboutzack.blogspot.com/2009_03_01_archive.html

What did he get into? Saturday, March 14, 2009. The force is strong in this one. I got to go to Disneyland with my family and my Grandma and some of my Aunts and Uncles and cousins. It was awesome. Pretty much my favorite thing at Disneyland was the Jedi Training Academy. I got to dress up like a Jedi and train with a Jedi Master. Then Darth Vader and Darth Maul came out, I have to admit it was a little scary. Darth Vader is big in real life. Wednesday, March 11, 2009. My new eb friend. But back to the s...

learnaboutzack.blogspot.com learnaboutzack.blogspot.com

What did he get into?: My glasses

http://learnaboutzack.blogspot.com/2010/11/my-glasses.html

What did he get into? Tuesday, November 2, 2010. 2 days ago my Dad was telling me how awesome it was that I never broke my toys or ruined a pair of clothes. Well my glasses accidently got ran over by the car yesterday, I guess things just kind of even out. November 2, 2010 at 7:40 PM. November 24, 2010 at 8:12 PM. Renata and Ryan Hultman. Were a family with a new little one with DEB, its all quite tough, but seeing you and your apparent vitality is wonderful and exciting. Well follow you eagerly. Yes it ...

learnaboutzack.blogspot.com learnaboutzack.blogspot.com

What did he get into?: October 2009

http://learnaboutzack.blogspot.com/2009_10_01_archive.html

What did he get into? Saturday, October 31, 2009. Friday, October 16, 2009. Asking for prayers for an EB friend. Update: Spoke with her mom, she said they prayed and then a miracle happened. They no longer need the procedure. Please prayer that she can heal from the damage done at a previous hospital. Please pray that she can find compasionate doctors willing to listen and help her. Please pray for her Mom, who is having health issues at this time. Thursday, October 15, 2009. Blessed with amazing kids.

patriceandmattwilliams.blogspot.com patriceandmattwilliams.blogspot.com

Before The Morning: EB Sweeties

http://patriceandmattwilliams.blogspot.com/2007/12/eb-sweeties.html

Saturday, December 8, 2007. To read more about other Sweeties living every day, fighting with all they have against EB, please click on the links below. Gone but never forgotten. Please feel free to send me an email if you have an EB Sweetie you'd like me to add. Subscribe to: Post Comments (Atom).

learnaboutzack.blogspot.com learnaboutzack.blogspot.com

What did he get into?: November 2010

http://learnaboutzack.blogspot.com/2010_11_01_archive.html

What did he get into? Tuesday, November 2, 2010. 2 days ago my Dad was telling me how awesome it was that I never broke my toys or ruined a pair of clothes. Well my glasses accidently got ran over by the car yesterday, I guess things just kind of even out. Monday, November 1, 2010. At the beginning of October I went with my family to a really great pumpkin patch. I think he came to our house because we watched his movie in a real patch. Subscribe to: Posts (Atom). Welcome to my blog! Yes it hurts, yes I ...

learnaboutzack.blogspot.com learnaboutzack.blogspot.com

What did he get into?: May 2011

http://learnaboutzack.blogspot.com/2011_05_01_archive.html

What did he get into? Tuesday, May 24, 2011. I am teaching my class how to make a blog. I will show them how to make a picture. Subscribe to: Posts (Atom). I didn't really get into a fight with a bear or a t-rex. Welcome to my blog! Yes it hurts, yes I wish it would go away, but it does not hold me back. I am so stronge and I am very brave, and I have eb to thank for that. Exciting news about a possible treatment. Http:/ sarahandeb.makeswebsites.com/index.php. Http:/ www.cotaforkyleh.com/.

learnaboutzack.blogspot.com learnaboutzack.blogspot.com

What did he get into?: The great pumpkin

http://learnaboutzack.blogspot.com/2010/11/great-pumpkin.html

What did he get into? Monday, November 1, 2010. At the beginning of October I went with my family to a really great pumpkin patch. We go every year. Mrs. Pack was my 504 helper in kindergarten and first grade and her family owns the patch. We took our dvd player and watched the Charlie Brown movie about the Great pumpkin. I think he came to our house because we watched his movie in a real patch. I am so glad we did not watch a movie about a ghost or vampire in the field. Subscribe to: Post Comments (Atom).

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Bianca's Nail Design Home Page - Bianca's Nail Design

Gel op teennagels French pedicure. Personeelsuitjes, vrijgezellenfeestjes of vriendinnenavonden. Opleiding basis nagelstyling Acryl. Opleiding Nagelstyling basis gel. Foto’s Nail-art wedstrijd 2008. Foto’s Lash eXtend Wimperextensions. Foto’s Stap voor stap. Mijn naam is Bianca de Jong-Schrieken, Ik ben nagelstyliste and pedicure. Ik heb een eigen salon (vanaf 2006) waar ik Nagelstyliste, Pedicure and Wimperstyliste ben. (wimperextentions van het merk Lash eXtend) en met passie uitvoer.

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Bianca's Adventures

The dance of life must go on, no matter how much the tune of the music changes.". Thursday, August 25, 2016. A Summer of Firsts 2016. In January I will be running a 10K in honor of my. Please consider sharing or donating to this wonderful event! 2017 Walt Disney World Marathon Weekend - Sally Contreras. We’ve had a Summer of firsts! It’s been a little crazy around here and Bee’s skin is starting to show some signs of “wear and tear”! First Time Walking Into School By Herself. Saturday, February 28, 2015.

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Bianca's Adventures

The dance of life must go on, no matter how much the tune of the music changes.". Thursday, August 25, 2016. A Summer of Firsts 2016. In January I will be running a 10K in honor of my. Please consider sharing or donating to this wonderful event! 2017 Walt Disney World Marathon Weekend - Sally Contreras. We’ve had a Summer of firsts! It’s been a little crazy around here and Bee’s skin is starting to show some signs of “wear and tear”! First Time Walking Into School By Herself. Saturday, February 28, 2015.

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Just another What They Drink Sites site. Patty shared a note with you – Christmas List (Calvin). I didn’t have any clay so I used candy! My first pair of glasses! Great Aunt Joyce on waiting. Uncle Jimmy on Uncle Jimmy. Aunt Kimi on I was like this. Patty shared a note with you – Christmas List (Calvin). November 26, 2017 at 6:32 pm. Patty ( pattymarie66@gmail.com. Shared a note with you. Care to leave a comment? I didn’t have any clay so I used candy! July 3, 2015 at 12:33 pm. Care to leave a comment?