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BioPontis Alliance | for rare diseasesfor rare diseases
http://www.biopontisalliance.org/
for rare diseases
http://www.biopontisalliance.org/
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BioPontis Alliance | for rare diseases | biopontisalliance.org Reviews
https://biopontisalliance.org
for rare diseases
biopontisalliance.org
Who We Are | BioPontis Alliance
http://biopontisalliance.org/who-we-are
TURNING SCIENCE INTO MEDICINES. We invite you to get to know our team and to consider joining us in our mission to change the 5% of rare diseases having a treatment to …… Dare to think BIG with us! View our 990 and more at Guidestar. Erik Tambuyzer, PhD our Chairperson of the Board, will Chair the Science & Strategy session on November 16th at the World Orphan Drug Congress in Brussels, Belgium. He will also be presenting Is industry the only player in orphan drug development? The role of philanthropy .
What We Do | BioPontis Alliance
http://biopontisalliance.org/what-we-do
TURNING SCIENCE INTO MEDICINES. 1 Meeting The Need. The mission of BioPontis Alliance for Rare Disease starts with great science that establishes the beginning of the treatment development pathway. BioPontis Alliance collaborates with patient organizations and academic researchers to identify and vet research that our experts believe has promise to become a treatment. 3 Advancing to commercialization. 4 Building the bridge. View our 990 and more at Guidestar. Erik Tambuyzer, PhD our Chairperson of the Bo...
News & Media | BioPontis Alliance
http://biopontisalliance.org/news-media
TURNING SCIENCE INTO MEDICINES. Latest News and Media. Erik Tambuyzer, PhD our Chairperson of the Board, will Chair the Science & Strategy session on November 16th at the World Orphan Drug Congress in Brussels, Belgium. He will also be presenting Is industry the only player in orphan drug development? The role of philanthropy . October 21, 2016. BioPontis Alliance for Rare Diseases covered in German LABORWELT magazine. October 17, 2016. September 2, 2016. May 5, 2016. April 28, 2016. January 14, 2016.
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Links | ABCrowdFunding Advisors
https://abcrowdfunding.com/useful-links
Venture philanthropy and equity crowdfunding for orphan drugs. Philippe Barth, M.D., M.B.A. Serge Braun, Pharm.D., Ph.D. Guillaume Brion, M.D. Frederic (Fred) Chereau, B.S., M.B.A. Jean-Philippe Combal, Pharm.D., Ph.D. Geoff Lawton, Ph.D. Sylvia Malisic, B.A. Yann Mazabraud, M.I.M. Tim Miller, B.S., M.S., Ph.D. Annick Raas-Rothschild, M.D., Ph.D. Pierre Ronco, M.D., Ph.D. Bruno Schneider Le Saout. Equity Crowdfunding and Venture Philanthropy. Association Française contre les Myopathies).
MLD Foundation Blog - Page 2 of 4 - Musings about MLD and rare disease policyMLD Foundation Blog | Musings about MLD and rare disease policy | Page 2
http://blog.mldfoundation.org/page/2
Musings about MLD and rare disease policy. Skip to primary content. Skip to secondary content. List of RARE Diseases. Newer posts →. Wanita … How a younger sister sees MLD. January 12, 2016. My name is Tarryn and my older sister Wanita was diagnosed with MLD in 2007. She was 16 and I was 14 when she passed away and passed in 2010 from juvenile MLD. I live in South Africa. I love you Wita. New Year’s Reflections … and Highlights from December Meeting in Boston. No more lives torn apart,. This is my grown-...
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BioPontis Alliance | for rare diseases
News & Media. News & Media. The Tragedy of Rare Diseases. Childhood should be a time of joy, wonder and hope for the future. For families of children with a rare, serious disease, it can be frustrating, painful and frightening. It can include a long journey to countless doctor visits over many years to finally arrive at a diagnosis, only to find there is no treatment available. Over 7000 rare diseases are known. Tragically, there are no effective treatments for most, 95%, of rare diseases. Much of this r...
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