cooperknorr.com
Information Links
http://www.cooperknorr.com/information_links/information_links.htm
Here are some sites you might want to check out. If anyone has a site they would like me to add, please let me know. The Osteogenesis Imperfecta Foundation, Inc. (OI Foundation) is the only voluntary national health organization dedicated to helping people cope with the problems associated with osteogenesis imperfecta. The OI Clinic at the Kennedy Krieger Institute. This is where I go for my treatments. Wikipedia Definition of OI. This is the medicine that Im currently on.
cooperknorr.com
About
http://www.cooperknorr.com/about/about.htm
In the beginning (my beginning) there were my Mom and Dad. If you dont know how. Works there are a whole bunch of web sites that will explain it. Ill skip the gory details but thats me up there wrapped up nice and snug. I was born on September 8, 2007 (9-8-7! Of course I wasnt due until late October so I was about 6 weeks early. After I was born I spent a relaxing 10 days in club NICU (thats Neonatal Intensive Care Unit) at Huntington Hospital. And it came back positive. While this got CPS off my par...
cooperknorr.com
Frequently Asked Questions
http://www.cooperknorr.com/faq/faq.htm
Q: Is there a cure for OI? Q: How can I help? A: You can support me in my fundraising drive. Or you can make a donation directly to the OI Foundation. Q: Why only two questions? A: If you have questions about me or about OI, please email me. And I will try to answer them.
cooperknorr.com
Snowflake Poem for OI Kids
http://www.cooperknorr.com/about/snowflakes.htm
A snowflake fell from Heaven one day,. Into my heart, forever to stay. Fragile and precious, like china so fine,. Beautiful and delicate, and one of a kind. How can I hold this snowflake so dear? What if I break it is my greatest fear. But hold it I must and break it I may,. But I never will regret the day,. That this snowflake fell from heaven above,. And into my heart, stirring such love,. And so now, wherever I go. And whatever my fate,. I am forever blessed by my beautiful snowflake!
cooperknorr.com
What Cooper's Up To Now
http://www.cooperknorr.com/calendar/calendar.htm
Making Strides for Better Bones: Long Island. An OI Foundation walk-a-thon event. Saturday, May 3, 2008 9:00 AM. Cedar Creek Park, Wantagh, NY. This event will help raise money for research, treatment and improved education and care for people with OI. Please join my team - my goal is to raise $5000!
cooperknorr.com
Home
http://www.cooperknorr.com/index.html
Welcome to my site! My name is Cooper and I was born September 8, 2007. Im creating this site (with a little help from my parents) so I can let family and friends know what Im up to and all my latest accomplishments. You can check out my blog. Or take a look at the latest pictures. But please take a look at the OI Foundations site. To learn about OI or to make a donation.
