everylifefoundation.org
Programs, Initiatives and Coalitions | EveryLife Foundation for Rare Diseases
http://everylifefoundation.org/about-us/programs-initiatives
PROGRAMS, INITIATIVES AND COALITIONS. Faster Track: August 2016. Faster Track: July 2016. Faster Track: June 2016. Rare Disease Scientific Workshop. Rare Disease Week on Capitol Hill. Italian Street Painting Marin. August 16th, 2016. FasterCures Wants Your Rx for Innovation read more. August 9th, 2016. NorthBay Biz Profiles Foundation President and Founder Emil Kakkis as a GameChanger read more. August 4th, 2016. Enter your contact information to receive updates and/or invitations from EveryLife. Rare Ar...
pascalesthoughts.blogspot.com
Golden Thoughts: June 2010
http://pascalesthoughts.blogspot.com/2010_06_01_archive.html
Random musings on urine and everything else in the world. Monday, June 28, 2010. I have a confession.I have been seeking satisfaction elsewhere. No, nothing like that. See, for a variety of reasons, I started another blog. It can be accessed from my website, pascalelane.net. Or via pascalelane.wordpress.com. Stream of Thought,. From Orlando: Improving Your Child’s Future Health. Posted by Pascale Hammond Lane. Saturday, June 26, 2010. Posted by Pascale Hammond Lane. Thursday, June 24, 2010. Wednesday, Ju...
pediatrictrials.org
For Health Care Professionals | Pediatric Trials Network
http://www.pediatrictrials.org/how-to-get-involved/for-health-care-professionals
For Parents and Families. For Health Care Professionals. For Health Care Professionals. How To Be Involved With the Pediatric Trials Network. If you are a clinical site interested in joining the PTN, please complete our online survey. This survey allows the PTN team to better evaluate your site’s capabilities for potential involvement in future trials. If you are a clinical site and would like to more information about the PTN, please email us. And send via email. For PTN Executive Committee review.
ppru.org
PPRU Legacy Website Resource Linkse
http://www.ppru.org/resources.aspx
National Institute of Child Health and Human Development (NICHD). Food and Drug Association (FDA). European Medicines Agency (EMEA). CTSA Consortium Child Health Oversight Committee. Best Pharmaceuticals for Children Act (BPCA). American Academy of Pediatrics. NICHD Neonatal Research Network. Maternal-Fetal Medicine Units Network (MFMU). Department of Health and Human Services. National Institute of Child Health and Human Development. National Institutes of Health.
pediatrictrials.org
For Parents and Families | Pediatric Trials Network
http://www.pediatrictrials.org/how-to-get-involved/for-parents-and-families
For Parents and Families. For Health Care Professionals. For Parents and Families. Why PTN Research Matters and Patient Safeguards in PTN Research. Kelly Wade, MD, PhD, Children’s Hospital of Philadelphia, Co-Chair of the PTN Safety and Ethics Core. Why is it important to do research in infants and children? What safeguards are in place to protect the safety of children enrolled in PTN studies? What is the informed consent process for pediatric trials and why does it exist? View sites near you. Frequentl...