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Canadian Pulmonary Fibrosis Foundation | Because breathing should never be hard work

#KissIPFGoodbye

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Canadian Pulmonary Fibrosis Foundation | Because breathing should never be hard work | canadianpulmonaryfibrosis.ca Reviews
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#KissIPFGoodbye
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1 site map
2 sponsors
3 terms of use
4 about pulmonary fibrosis
5 diagnosis
6 cpff patient guide
7 frequently asked questions
8 personal stories
9 robert’s book
10 patient resources
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site map,sponsors,terms of use,about pulmonary fibrosis,diagnosis,cpff patient guide,frequently asked questions,personal stories,robert’s book,patient resources,support groups,ild/pf clinics,ild/pf specialists/respirologists,helpful links,get involved
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Canadian Pulmonary Fibrosis Foundation | Because breathing should never be hard work | canadianpulmonaryfibrosis.ca Reviews

https://canadianpulmonaryfibrosis.ca

#KissIPFGoodbye

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1

Personal Stories Archives - Canadian Pulmonary Fibrosis Foundation

http://www.canadianpulmonaryfibrosis.ca/category/personal-stories

Canadian Pulmonary Fibrosis Foundation. What is Pulmonary Fibrosis? Treatment & Care. Clinics & Specialists. Transplant & Organ Donation. Patient and Family Stories. CPFF Actions & Research Grants. Kiss IPF Goodbye Champions. On May 25, 2016. On March 22nd, 2016, I lost my grandma to IPF. She was my best friend; my favourite person in the entire world. We were very close. I was going to school in BC, and didn’t get to spend as much time with her over the past 4 […]. A Son’s Personal Journey with IPF.

2

Get Involved - Canadian Pulmonary Fibrosis Foundation

http://www.canadianpulmonaryfibrosis.ca/get-involved

Canadian Pulmonary Fibrosis Foundation. What is Pulmonary Fibrosis? Treatment & Care. Clinics & Specialists. Transplant & Organ Donation. Patient and Family Stories. CPFF Actions & Research Grants. Kiss IPF Goodbye Champions. The #kissIPFgoodbye Awareness Campaign. Was a great success raising research funds and awareness. Find out how we did and what’s next. You contribute to much needed funds for Pulmonary Fibrosis research in Canada. 8220;Take a Breather” Caregiver Recognition Program. Disclaimer: The ...

3

Join the Fight - Canadian Pulmonary Fibrosis Foundation

http://www.canadianpulmonaryfibrosis.ca/get-involved/join-the-fight

Canadian Pulmonary Fibrosis Foundation. What is Pulmonary Fibrosis? Treatment & Care. Clinics & Specialists. Transplant & Organ Donation. Patient and Family Stories. CPFF Actions & Research Grants. Kiss IPF Goodbye Champions. CPFF welcomes all volunteers interested in making a difference in the fight against PF. If you would like to get involved, please contact. Us at any time. We welcome support to raise funds and awareness. Click to read more about helping CPFF raise funds for research and awareness.

4

Fundraising Toolkit - Canadian Pulmonary Fibrosis Foundation

http://www.canadianpulmonaryfibrosis.ca/get-involved/join-the-fight/fundraising-toolkit

Canadian Pulmonary Fibrosis Foundation. What is Pulmonary Fibrosis? Treatment & Care. Clinics & Specialists. Transplant & Organ Donation. Patient and Family Stories. CPFF Actions & Research Grants. Kiss IPF Goodbye Champions. Interested in helping the CPFF in their goal of raising funds to support research and awareness for pulmonary fibrosis? Are you interested in hosting a fundraising event in your local community in order to help raise awareness and support for finding a cure for pulmonary fibrosis?

5

#kissIPFgoodbye - Canadian Pulmonary Fibrosis Foundation

http://www.canadianpulmonaryfibrosis.ca/get-involved/kissipfgoodbye-awareness-campaign

Canadian Pulmonary Fibrosis Foundation. What is Pulmonary Fibrosis? Treatment & Care. Clinics & Specialists. Transplant & Organ Donation. Patient and Family Stories. CPFF Actions & Research Grants. Kiss IPF Goodbye Champions. In September 2014, CPFF launched an awareness campaign that caused quite a stir and garnered a lot of attention. #KissIPFgoodbye is a campaign designed to educate and raise awareness about IPF, and rally public support through social media. Jacqui with Helene Campbell. If you’...

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pulmonaryfibrosis.org.nz pulmonaryfibrosis.org.nz

Pulmonary Fibrosis Support Group - Links

http://www.pulmonaryfibrosis.org.nz/links

Pulmonary Fibrosis Support Group. Pulmonary Fibrosis Foundation (USA). UK Pulmonary Support Group. Canadian Pulmonary Fibrosis Foundation. Other resources NZ sufferers. Named Patient Pharmaceutical Assessment. Access to treatments that aren’t on the lists). The Roche Medical Information phone number is 0800 276 243. Pulmonary Fibrosis Support Group.

ipftoday.com ipftoday.com

IPF Today - international information

http://www.ipftoday.com/international_information

BREATHE, DREAM and LIVE. Where can I go locally. Treatment - current/ new and trials/ old. Skype, Google, Twitter, Facebook. Support Group(s) / US States and International. Pharmaceutical companies and IPF. Resources / Useful links. We are still working on this page and would love your input / links. The official website of the Canadian Pulmonary Fibrosis Foundation. The Canadian Lung Association. LAssociation Pulmonaire du Québec. Belgische Vereniging voor Longfibrose v.z.w. ILD Care Foundation -. Wwwai...

pj-sharedjourney.blogspot.com pj-sharedjourney.blogspot.com

Our Post-transplant Journey: First Week Home - Part 2

http://pj-sharedjourney.blogspot.com/2013/04/first-week-home-part-2.html

Friday, 5 April 2013. First Week Home - Part 2. Thurs - Physio Finale for Jess. Left - Dad, me, Paula and Carman and Mom on the right. Today is a bittersweet day in The Treadmill Room - the last physio session in which the Squat Squad will be together. Yes, Jessica is in the preparatory stages of heading home to Nova Scotia and today marks her last day to work out with the Squad and Carman’s third day of being a Green Card holder! Jessica, Mark and Carman - peddling so fast -. Fri - Muscle Study Follow-up.

pj-sharedjourney.blogspot.com pj-sharedjourney.blogspot.com

Our Post-transplant Journey: August 2012

http://pj-sharedjourney.blogspot.com/2012_08_01_archive.html

Tuesday, 28 August 2012. A Visit, A Victory and A Video. Carman, Arlene, Madi. Monday - Madi and Arlene came for a visit today. They were in town from London, visiting family and were able to squeeze in a quick lunch with us before we headed to the Treadmill Room. Service and food at The Blake was great as usual and we were left to concentrate on our visit. Thanks for treating us to lunch and for taking time to visit with us Madi and Arlene! Big hugs to Bealal and Ahmed! Big fist Pumps all around! The sh...

pj-sharedjourney.blogspot.com pj-sharedjourney.blogspot.com

Our Post-transplant Journey: The Test Leave

http://pj-sharedjourney.blogspot.com/2013/06/the-test-leave.html

Friday, 28 June 2013. I have spent the past week packing, purging, wiping and vacuuming (the carpet and the storage bags - they're like Spanx for your bedding, clothes and towels - squishing huge piles into skinny packages for loading in the car). Today we are leaving our condo - the place we have called home for the past 390 days. A place of. Temporary residence, but home nonetheless. Meeting new neighbours (thanks for everything Karin, Gord and George). Meeting new friends (thank you Treadmill Room).

pj-sharedjourney.blogspot.com pj-sharedjourney.blogspot.com

Our Post-transplant Journey: Recalling July & August

http://pj-sharedjourney.blogspot.com/2013/11/recalling-july-august.html

Tuesday, 5 November 2013. Recalling July and August. Adam, Shilpa, Hélène,. Hi - it's been awhile! These people know how to do the town in style! Canada Day itself, brought us a Potluck BBQ on the deck with many Capital friends. Carman and "all the girls. We both got in a couple of rounds of golf, and the ladies I played with at Greenhills organized a potluck evening (thanks for hosting Peggy! Our days were filled with coffee date, lunches and dinners with family and friends - memories to treasure! Carma...

pj-sharedjourney.blogspot.com pj-sharedjourney.blogspot.com

Our Post-transplant Journey: March 2013

http://pj-sharedjourney.blogspot.com/2013_03_01_archive.html

Saturday, 16 March 2013. Today is a clinic day. What that means is that we leave home by 7:30am to arrive at the hospital before 8am and get a jump on the queue at the Blood Clinic. When we arrive, Carman is given number 98 and they are serving number 93. Not bad! This is the transplant community - two out of three get out their meds, so the obvious question to the third person is “hey, what about you! 8221; Don assures us that he has taken his already, but thanks everyone for their concern. Forced vital...

pj-sharedjourney.blogspot.com pj-sharedjourney.blogspot.com

Our Post-transplant Journey: Clinic Day

http://pj-sharedjourney.blogspot.com/2013/03/clinic-day.html

Saturday, 16 March 2013. Today is a clinic day. What that means is that we leave home by 7:30am to arrive at the hospital before 8am and get a jump on the queue at the Blood Clinic. When we arrive, Carman is given number 98 and they are serving number 93. Not bad! This is the transplant community - two out of three get out their meds, so the obvious question to the third person is “hey, what about you! 8221; Don assures us that he has taken his already, but thanks everyone for their concern. Forced vital...

pj-sharedjourney.blogspot.com pj-sharedjourney.blogspot.com

Our Post-transplant Journey: The Official Boot!

http://pj-sharedjourney.blogspot.com/2013/06/the-official-boot.html

Friday, 14 June 2013. Carman had his follow-up. Clinic and battery of tests on Wednesday this week - he flew solo for this and all is good. At the end of a very long day - 7:30 blood work, followed by Xray, PFTs, Support Group meeting, Dr. appt and clinic (2-5pm) he was officially bid a fond farewell along with a “and don’t come back till we call you for your 6 month assessment! Between the 6 and 9 month mark, they experienced a noticeable improvement over that feeling by the end of the first year after ...

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Canadian Pulmonary Fibrosis Foundation | Because breathing should never be hard work

What is Pulmonary Fibrosis? Treatment & Care. Patient Education and Support Group Toolkit. Respiratory Rehabilitation and Exercise. 8216;One Breath at a Time’ Exercise Video. Transplant & Organ Donation. 8220;Take a Breather” Caregiver Recognition Program. 8220;Take a Breather” 2014 Recipients. Email Your Premier & Health Minister. CPFF Actions & Research Grants. Have you, or someone you care about, just been diagnosed with PF? You’re not alone! Vince — Rebirth July 2014. We’re a busy bunch! Posted on Au...

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