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Bethany's Journey with KabukiThis is the story of Bethany May and a journey of discovery about Kabuki Syndrome
http://cathfozbethany.blogspot.com/
This is the story of Bethany May and a journey of discovery about Kabuki Syndrome
http://cathfozbethany.blogspot.com/
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Bethany's Journey with Kabuki | cathfozbethany.blogspot.com Reviews
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This is the story of Bethany May and a journey of discovery about Kabuki Syndrome
cathfozbethany.blogspot.com
Bethany's Journey with Kabuki: Eureka!
http://cathfozbethany.blogspot.com/2013/08/eureka.html
Bethany's Journey with Kabuki. This is the story of Bethany May and a journey of discovery about Kabuki Syndrome. What is Kabuki Syndrome? Thursday, 22 August 2013. As school gets ever closer I've been trying to fill mine and Bee's last days together with lots of fun. This week we went back to Eureka! We last went for Bee's birthday in September 2012 and she loved it then. We haven't been back since but this week my mum and I finally made the trip over the Pennines to Yorkshire. But much of it is too old...
Bethany's Journey with Kabuki: July 2013
http://cathfozbethany.blogspot.com/2013_07_01_archive.html
Bethany's Journey with Kabuki. This is the story of Bethany May and a journey of discovery about Kabuki Syndrome. What is Kabuki Syndrome? Sunday, 28 July 2013. Well it's finally happened. Bee has left nursery. After leaving nursery my Mum and I took Bee to McDonalds for her favourite treat of chips! I can't speak highly enough about Bee's nursery. The difference her from the baby she was to the little girl she is now is in large part down to their wonderful care and support for us a family. I'm thrilled...
Bethany's Journey with Kabuki: What is Kabuki Syndrome?
http://cathfozbethany.blogspot.com/p/what-is-kabuki-syndrome.html
Bethany's Journey with Kabuki. This is the story of Bethany May and a journey of discovery about Kabuki Syndrome. What is Kabuki Syndrome? What is Kabuki Syndrome? What is Kabuki Syndrome? KS is a very rare paediatric congenital (ie. present from birth) condition which consists of multiple physical and developmental problems. Estimated at 1 in 32,000 births. Dermatoglyphic (palm and sole) abnormalities. Usually mild to moderate (in 92% of people with KS). Excessively flexible joints (hyperlax joints).
Bethany's Journey with Kabuki: May 2013
http://cathfozbethany.blogspot.com/2013_05_01_archive.html
Bethany's Journey with Kabuki. This is the story of Bethany May and a journey of discovery about Kabuki Syndrome. What is Kabuki Syndrome? Wednesday, 29 May 2013. Before I dropped Bee at her grandparents on Friday afternoon I needed to get our packing done and do a little bit of shopping. I had to ask her to say it again. I never once thought that we would receive our answer over the phone like that, I'd expected her to confirm when we'd receive a letter with the decision! The woman went on to say that t...
Bethany's Journey with Kabuki: Holiday Book
http://cathfozbethany.blogspot.com/2013/07/holiday-book.html
Bethany's Journey with Kabuki. This is the story of Bethany May and a journey of discovery about Kabuki Syndrome. What is Kabuki Syndrome? Saturday, 27 July 2013. We've booked our first family holiday for September of this year and I'm so very excited about it! It's Bee's gift for her 5th birthday and we're off to Peppa Pig World. It's in the New Forest, right down near the south coast and we're staying at Hoburne Bashley Holiday Park. Bee always copes best with change when she's had some preparation so ...
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Developmental delays | Peekaboo Kabuki
https://peekabookabuki.com/category/developmental-delays
Special Needs Parenting – Loving a Child with Kabuki Syndrome and Aspergers. Category Archives: Developmental delays. September 26, 2015. Invisible Disabilities (Otherwise known as … “She seems fine to me”). Some kids with special needs have obvious challenges. They may be in a wheel chair, or have a naso-gastric feeding tube, or facial deformities, or missing limbs. Something that people can see, that people may make allowances for, and (hopefully) have compassion for. How much therapy is not enough?
Feeding | Peekaboo Kabuki
https://peekabookabuki.com/category/feeding-2
Special Needs Parenting – Loving a Child with Kabuki Syndrome and Aspergers. October 13, 2014. Dietary Intervention – The GAPs Diet. I have wanted to write this post for a very long time. But every time I even thought about it, I developed terrible writer’s block. A new experience for me. Writing normally comes easily to me. Why such a blockage? We suspected from early on that she was intolerant of dairy. Removing dairy from my diet while I was breastfeeding helped somewhat, for a little while. B...Well ...
Walking Through Fire: The Beginning: 3 months to 2 years old
http://sandjhebert.blogspot.com/2015/02/the-beginning-3-months-to-2-years-old.html
When you pass through the waters, I will be with you; and through the rivers, they shall not overflow you: when you walk through the fire, you shalt not be burned, neither shall the flame kindle upon you. -Isaiah 43:2. Tuesday, February 3, 2015. The Beginning: 3 months to 2 years old. You can find the first part of Eva's story (birth to 3 months) HERE. Eventually, I was unable to keep up with her milk demand. I was blessed with a good supply for a long time though! This way of feeding continued pretty mu...
Walking Through Fire: February 2015
http://sandjhebert.blogspot.com/2015_02_01_archive.html
When you pass through the waters, I will be with you; and through the rivers, they shall not overflow you: when you walk through the fire, you shalt not be burned, neither shall the flame kindle upon you. -Isaiah 43:2. Tuesday, February 3, 2015. The Beginning: 3 months to 2 years old. You can find the first part of Eva's story (birth to 3 months) HERE. Eventually, I was unable to keep up with her milk demand. I was blessed with a good supply for a long time though! This way of feeding continued pretty mu...
Walking Through Fire: Jesse Tree Elf on the Shelf
http://sandjhebert.blogspot.com/2014/12/jesse-tree-elf-on-shelf.html
When you pass through the waters, I will be with you; and through the rivers, they shall not overflow you: when you walk through the fire, you shalt not be burned, neither shall the flame kindle upon you. -Isaiah 43:2. Monday, December 1, 2014. Jesse Tree Elf on the Shelf. I love the idea of the "game" part of elf on the shelf. I love that the kids get excited about finding the elf every morning. Its like playing hide and seek everyday! Anyway, my husband's sweet cousin offered us an elf on the shelf thi...
Walking Through Fire: Kabuki TRIUMPHS
http://sandjhebert.blogspot.com/2014/05/trials-and-triumphs.html
When you pass through the waters, I will be with you; and through the rivers, they shall not overflow you: when you walk through the fire, you shalt not be burned, neither shall the flame kindle upon you. -Isaiah 43:2. Saturday, May 17, 2014. There is a wonderful group of moms and dads of Kabuki kids (KK) on Facebook and I've come to love and appreciate them, all of their support and the wealth of information they can provide for the searching Kabuki parent like me! Post from Andrea, mom to Ry. Didn't th...
GAPS diet | Peekaboo Kabuki
https://peekabookabuki.com/gaps-diet-2
Special Needs Parenting – Loving a Child with Kabuki Syndrome and Aspergers. Posts about GAPs are currently on the main page…I haven’t figured out how to put them under this tab on WordPress.If anyone knows how.please let me know! Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. You are commenting using your Twitter account. ( Log Out. Ura on Life and Soul.
Walking Through Fire: Kabuki Syndrome and GAPS diet: Charli's Story
http://sandjhebert.blogspot.com/2014/06/kabuki-syndrome-and-gaps-diet-charlis.html
When you pass through the waters, I will be with you; and through the rivers, they shall not overflow you: when you walk through the fire, you shalt not be burned, neither shall the flame kindle upon you. -Isaiah 43:2. Thursday, June 12, 2014. Kabuki Syndrome and GAPS diet: Charli's Story. By Jessica Tonka (Charli's mom). Charli was diagnosed with Kabuki Syndrome at 10 months. She had several health concerns that lead us. Kabuki which revealed the following:. 61623; Atrial Septal Defect (ASD). Explain ho...
Walking Through Fire: December 2014
http://sandjhebert.blogspot.com/2014_12_01_archive.html
When you pass through the waters, I will be with you; and through the rivers, they shall not overflow you: when you walk through the fire, you shalt not be burned, neither shall the flame kindle upon you. -Isaiah 43:2. Monday, December 1, 2014. Jesse Tree Elf on the Shelf. I love the idea of the "game" part of elf on the shelf. I love that the kids get excited about finding the elf every morning. Its like playing hide and seek everyday! Anyway, my husband's sweet cousin offered us an elf on the shelf thi...
Walking Through Fire: Kabuki Stages of Grief
http://sandjhebert.blogspot.com/2014/05/kabuki-stages-of-grief.html
When you pass through the waters, I will be with you; and through the rivers, they shall not overflow you: when you walk through the fire, you shalt not be burned, neither shall the flame kindle upon you. -Isaiah 43:2. Thursday, May 29, 2014. Kabuki Stages of Grief. Loosing the Health of a Child. I only compare them in that they are both loss and that the stages of grief are still experienced in any type of loss.). We just love our little bit to the moon and back! A very silly picture of Eva taken by her...
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Bethany's Journey with Kabuki
Bethany's Journey with Kabuki. This is the story of Bethany May and a journey of discovery about Kabuki Syndrome. What is Kabuki Syndrome? Wednesday, 4 September 2013. I was the one that got her dressed, Foz was upstairs getting himself ready. I'll never forget his face as he walked into the living room and saw her. She looked so grown up but at the same time like a baby playing dress up in clothes too big for her! All too soon it was time to head over to school. We spent some time taking photos on t...
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