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Caudal Regression Syndrome/Sacral Agenesis

Caudal Regression Syndrome/Sacral Agenesis. Saturday, May 9, 2015. Introducing the International Sacral Agenesis Caudal Regression Association. I haven't blogged in quite a while, but in the meantime, the International Sacral Agenesis Caudal Regression Association (iSACRA). Has been founded. I'm proud to say that I am a founding board member of iSACRA and helped get it started along with several wonderful, very dedicated people. And next week we are having our first really big fundraiser, a 5K in Virginia.

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Caudal Regression Syndrome/Sacral Agenesis | caudalregression.blogspot.com Reviews

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Caudal Regression Syndrome/Sacral Agenesis. Saturday, May 9, 2015. Introducing the International Sacral Agenesis Caudal Regression Association. I haven't blogged in quite a while, but in the meantime, the International Sacral Agenesis Caudal Regression Association (iSACRA). Has been founded. I'm proud to say that I am a founding board member of iSACRA and helped get it started along with several wonderful, very dedicated people. And next week we are having our first really big fundraiser, a 5K in Virginia.

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9 serial casting results

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Caudal Regression Syndrome/Sacral Agenesis | caudalregression.blogspot.com Reviews

https://caudalregression.blogspot.com

Caudal Regression Syndrome/Sacral Agenesis. Saturday, May 9, 2015. Introducing the International Sacral Agenesis Caudal Regression Association. I haven't blogged in quite a while, but in the meantime, the International Sacral Agenesis Caudal Regression Association (iSACRA). Has been founded. I'm proud to say that I am a founding board member of iSACRA and helped get it started along with several wonderful, very dedicated people. And next week we are having our first really big fundraiser, a 5K in Virginia.

INTERNAL PAGES

caudalregression.blogspot.com

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Caudal Regression Syndrome/Sacral Agenesis: Serial Casting Results

http://caudalregression.blogspot.com/2010/08/serial-casting-results.html

Caudal Regression Syndrome/Sacral Agenesis. Friday, August 13, 2010. The serial casting went really well! His feet are a lot flatter, and his right foot, which was going in, is straighter. Also, he is not getting the red spots on his feet that he was getting from his braces because they fit him correctly again! It is amazing that we could do this in just 3 weeks. Here is a before and after photo. I never take them from the same angles, ughhg, but these two are really close for comparison. Creating a Late...

2

Caudal Regression Syndrome/Sacral Agenesis: Great New Site on Caudal Regression Syndrome

http://caudalregression.blogspot.com/2011/03/great-new-site-on-caudal-regression.html

Caudal Regression Syndrome/Sacral Agenesis. Tuesday, March 22, 2011. Great New Site on Caudal Regression Syndrome. Jessica, who has CRS, recently started her own site with information about CRS. It is a great site with lots of first-hand helpful information. She has a goal of forming an organization on CRS as well. Check out her site at Caudal Regression Syndrome Association. I especially like her Recommended Articles. Labels: caudal regression syndrome. March 31, 2011 at 5:35 PM. Our Journey with CRS/SA.

3

Caudal Regression Syndrome/Sacral Agenesis: You Know You’re the Parent of a Child with Caudal Regression When…

http://caudalregression.blogspot.com/2008/08/you-know-youre-parent-of-child-with.html

Caudal Regression Syndrome/Sacral Agenesis. Friday, August 29, 2008. You Know You’re the Parent of a Child with Caudal Regression When…. 8230; you have explained to strangers that your baby did not break both his legs; he’s in casts for a different reason. 8230; you have walked out of doctors’ offices after hearing, “Caudal. 8230; you have imagined having your child’s legs removed to improve his quality of life. 8230; you notice that half the hospital staff knows your child’s name. 8230; you let your chi...

4

Caudal Regression Syndrome/Sacral Agenesis: New Studies on Single Umbilical Artery and Caudal Regression Syndrome

http://caudalregression.blogspot.com/2007/11/new-studies-on-single-umbilical-artery.html

Caudal Regression Syndrome/Sacral Agenesis. Tuesday, November 13, 2007. New Studies on Single Umbilical Artery and Caudal Regression Syndrome. I found a few new articles (from just last month! It makes sense—the blood flow did not get to the entire fetus, so that affected growth of the lower portion, the “caudal” portion. Now, what causes the SUA? Here are the articles:. 2007 Oct 26 [Epub ahead of print]. 2007, 28(5):521–524. 2007, 17(5):370–372. Labels: caudal regression syndrome. Subscribe to: Post Com...

5

Caudal Regression Syndrome/Sacral Agenesis: TLC Program on Woman with Caudal Regression

http://caudalregression.blogspot.com/2010/09/tlc-program-on-woman-with-caudal.html

Caudal Regression Syndrome/Sacral Agenesis. Wednesday, September 1, 2010. TLC Program on Woman with Caudal Regression. TLC recently featured an hour-long show on Joanne Fluke, who has caudal regression syndrome and participates in ballroom dancing. Here are some links. A blogger at FWD (Females with Disabilities) responds to the TLC program. And to other media coverage of Joanne. One of the sensationalist-type stories like the ones FWD responds to above: story in the UK's Mirror. March 27, 2011 at 6:56 PM.

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theriverofjordan.blogspot.com

The River of Jordan: A Pirate's Life for Me

http://theriverofjordan.blogspot.com/2006/11/pirates.html

The River of Jordan. Wednesday, November 08, 2006. A Pirate's Life for Me. But the pirate thing couldn’t be stopped. My husband got Jordan into the Pirates of the Caribbean; I tried to push Muppet Treasure Island. Whatever pirate movie was on, Jordan insisted that pirates would be part of his life! But it goes beyond just pirates on special occasions. Sometimes I think he truly thinks he is a pirate. Captain Jack Sparrow is a constant topic. He yells, “You got me! He also loves pirate treasure. He ha...

theriverofjordan.blogspot.com

The River of Jordan: April 2009

http://theriverofjordan.blogspot.com/2009_04_01_archive.html

The River of Jordan. Wednesday, April 15, 2009. Subscribe to: Posts (Atom). Jordan's Life So Far. The purpose of this blog is to share my experiences raising a child who has some orthopedic impairments. I will share reflections on our journey, from the everyday annoyances with the "system" to the achievements of my wonderful little boy to the life-changing thoughts and feelings he brings to my life. For more on Jordan's condition, visit my. Caudal Regression/Sacral Agenesis blog. From A Mom's POV. 9 I on...

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The River of Jordan: May 2012

http://theriverofjordan.blogspot.com/2012_05_01_archive.html

The River of Jordan. Saturday, May 26, 2012. It is so rare that we really just listen. I'm not talking just about listening to what someone is trying to say to us but about that we just don't take time to listen to sounds around us. Subscribe to: Posts (Atom). Jordan's Life So Far. For more on Jordan's condition, visit my. Caudal Regression/Sacral Agenesis blog. From A Mom's POV. Ryn Tale's Book of Days: Livin to the point of tears. Diary of a Goldfish. Disability Studies, Temple U. 6 He was running arou...

theriverofjordan.blogspot.com

The River of Jordan: July 2009

http://theriverofjordan.blogspot.com/2009_07_01_archive.html

The River of Jordan. Sunday, July 12, 2009. 5 Years Ago Tonight. 5 years ago tonight, my beautiful boy was born. 5 years ago tonight, the nurses gasped and the doctor grew distant and silent. S. Omeone muttered, "There's something wrong with his legs." I shouted, "What's wrong with him? But everyone had their backs to me. 5 years ago tonight, my husband looked at our baby for the first time and thought, "He's going to be a champion! HAPPY BIRTHDAY, JORDAN! Subscribe to: Posts (Atom). Jordan's Life So Far.

theriverofjordan.blogspot.com

The River of Jordan: January 2010

http://theriverofjordan.blogspot.com/2010_01_01_archive.html

The River of Jordan. Thursday, January 07, 2010. Subscribe to: Posts (Atom). Jordan's Life So Far. The purpose of this blog is to share my experiences raising a child who has some orthopedic impairments. I will share reflections on our journey, from the everyday annoyances with the "system" to the achievements of my wonderful little boy to the life-changing thoughts and feelings he brings to my life. For more on Jordan's condition, visit my. Caudal Regression/Sacral Agenesis blog. From A Mom's POV. 9 I o...

theriverofjordan.blogspot.com

The River of Jordan: August 2009

http://theriverofjordan.blogspot.com/2009_08_01_archive.html

The River of Jordan. Monday, August 10, 2009. The Way Other People See Him. You are perfect as you are. Nothing about you needs to be healed. Most of the world sees him as someone to be gawked at, given charity, in need of healing. But this is how I see him:. Can anyone else see this? Subscribe to: Posts (Atom). Jordan's Life So Far. For more on Jordan's condition, visit my. Caudal Regression/Sacral Agenesis blog. From A Mom's POV. Ryn Tale's Book of Days: Livin to the point of tears. Diary of a Goldfish.

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The River of Jordan: Listening

http://theriverofjordan.blogspot.com/2012/05/listening.html

The River of Jordan. Saturday, May 26, 2012. It is so rare that we really just listen. I'm not talking just about listening to what someone is trying to say to us but about that we just don't take time to listen to sounds around us. Subscribe to: Post Comments (Atom). Jordan's Life So Far. For more on Jordan's condition, visit my. Caudal Regression/Sacral Agenesis blog. From A Mom's POV. Ryn Tale's Book of Days: Livin to the point of tears. Diary of a Goldfish. Disability Studies, Temple U. 6 He was runn...

theriverofjordan.blogspot.com

The River of Jordan: Long Nights

http://theriverofjordan.blogspot.com/2010/12/long-nights.html

The River of Jordan. Wednesday, December 15, 2010. 8220; In a real dark night of the soul it is always three o'clock in the morning. 8212;F. Scott Fitzgerald. And there's knowing and learning/And the one a light a burning/In the cool dark night of the soul. 8212;"Broken," Michael McDermott. The subject of this Disability Blog Carnival. Is “ long nights and what we need to get through. 8212;but this is a harder life than he really had to have. One thing youll learn about this condition is that everyone is...

theriverofjordan.blogspot.com

The River of Jordan: December 2010

http://theriverofjordan.blogspot.com/2010_12_01_archive.html

The River of Jordan. Wednesday, December 15, 2010. 8220; In a real dark night of the soul it is always three o'clock in the morning. 8212;F. Scott Fitzgerald. And there's knowing and learning/And the one a light a burning/In the cool dark night of the soul. 8212;"Broken," Michael McDermott. The subject of this Disability Blog Carnival. Is “ long nights and what we need to get through. 8212;but this is a harder life than he really had to have. Subscribe to: Posts (Atom). Jordan's Life So Far. Ryn Tale's B...

theriverofjordan.blogspot.com

The River of Jordan: August 2010

http://theriverofjordan.blogspot.com/2010_08_01_archive.html

The River of Jordan. Monday, August 02, 2010. Disability Blog Carnival: Evidence. The July Disability Blog Carnival with the theme Evidence has been posted at Deeply Problematic. Check it out for tons of great posts! Subscribe to: Posts (Atom). Jordan's Life So Far. For more on Jordan's condition, visit my. Caudal Regression/Sacral Agenesis blog. From A Mom's POV. Ryn Tale's Book of Days: Livin to the point of tears. A Different Light: fiction, nonfiction, essays and poetry about disability. 6 He was run...

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Caudal Regression Syndrome/Sacral Agenesis

Caudal Regression Syndrome/Sacral Agenesis. Saturday, May 9, 2015. Introducing the International Sacral Agenesis Caudal Regression Association. I haven't blogged in quite a while, but in the meantime, the International Sacral Agenesis Caudal Regression Association (iSACRA). Has been founded. I'm proud to say that I am a founding board member of iSACRA and helped get it started along with several wonderful, very dedicated people. And next week we are having our first really big fundraiser, a 5K in Virginia.

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