cdkl5gracie.blogspot.com

CDKL5 & Gracie

Tuesday, 6 September 2011. Summer is at an end. Bizarre and really reinforces the need to spread awareness, to fund vital research and especially in the UK get some kind of NHS proforma/policy going for it to help our little ones now and for those newly diagnosed in the future. (I am alittle weary of meeting blank expressions in our medical professionals on a regular basis :0 . Three seperate companies contacted and several hours later apparently Gracie was uninsurable! Once home back in the UK we had al...

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CDKL5 & Gracie | cdkl5gracie.blogspot.com Reviews

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Tuesday, 6 September 2011. Summer is at an end. Bizarre and really reinforces the need to spread awareness, to fund vital research and especially in the UK get some kind of NHS proforma/policy going for it to help our little ones now and for those newly diagnosed in the future. (I am alittle weary of meeting blank expressions in our medical professionals on a regular basis :0 . Three seperate companies contacted and several hours later apparently Gracie was uninsurable! Once home back in the UK we had al...

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cdkl5 and gracie,posted by,gracies mum,no comments,email this,blogthis,share to twitter,share to facebook,share to pinterest,cdkl5 whats that,wwwcdkl5 com,1 comment,search this blog,followers,blog archive,about me

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CDKL5 & Gracie | cdkl5gracie.blogspot.com Reviews

https://cdkl5gracie.blogspot.com

Tuesday, 6 September 2011. Summer is at an end. Bizarre and really reinforces the need to spread awareness, to fund vital research and especially in the UK get some kind of NHS proforma/policy going for it to help our little ones now and for those newly diagnosed in the future. (I am alittle weary of meeting blank expressions in our medical professionals on a regular basis :0 . Three seperate companies contacted and several hours later apparently Gracie was uninsurable! Once home back in the UK we had al...

INTERNAL PAGES

cdkl5gracie.blogspot.com

1

CDKL5 & Gracie: August 2011

http://cdkl5gracie.blogspot.com/2011_08_01_archive.html

Friday, 5 August 2011. The week that went with a bang! Wow what a week we have had in the Skillicorn household, project garden is well under way to get things ready for Princess Gracies Birthday Party at the end of the month! So all hours not dedicated to work and sleeping have found us dressed in our scruffs painting fences and garden furniture, trimming hedges, mowing lawns and jet washing anything that doesn't move, which coincidently works wonders on wheelchairs! We have to hold tight and see what th...

2

CDKL5 & Gracie: The week that went with a bang!

http://cdkl5gracie.blogspot.com/2011/08/week-that-went-with-bang.html

Friday, 5 August 2011. The week that went with a bang! Wow what a week we have had in the Skillicorn household, project garden is well under way to get things ready for Princess Gracies Birthday Party at the end of the month! So all hours not dedicated to work and sleeping have found us dressed in our scruffs painting fences and garden furniture, trimming hedges, mowing lawns and jet washing anything that doesn't move, which coincidently works wonders on wheelchairs! We have to hold tight and see what th...

3

CDKL5 & Gracie: July 2011

http://cdkl5gracie.blogspot.com/2011_07_01_archive.html

Sunday, 31 July 2011. Our first Post.welcome. I was born on Thursday 26. August 2004 a lovely healthy weight of nine pounds seven ounzes with masses of. Jet black curly hair and chubby cherub cheeks. Everybody exclaimed how beautiful I was and everything seemed perfect for awhile until I had my first seizure on Friday 13. In the bath of all places at 7 months old. Precisely the thoughts that ran. Through my mummy and daddys head. But what does this mean for me? My hopes for the future are not your typica...

4

CDKL5 & Gracie: September 2011

http://cdkl5gracie.blogspot.com/2011_09_01_archive.html

Tuesday, 6 September 2011. Summer is at an end. Bizarre and really reinforces the need to spread awareness, to fund vital research and especially in the UK get some kind of NHS proforma/policy going for it to help our little ones now and for those newly diagnosed in the future. (I am alittle weary of meeting blank expressions in our medical professionals on a regular basis :0 . Three seperate companies contacted and several hours later apparently Gracie was uninsurable! Once home back in the UK we had al...

5

CDKL5 & Gracie: Our first Post........welcome

http://cdkl5gracie.blogspot.com/2011/07/our-first-postwelcome.html

Sunday, 31 July 2011. Our first Post.welcome. I was born on Thursday 26. August 2004 a lovely healthy weight of nine pounds seven ounzes with masses of. Jet black curly hair and chubby cherub cheeks. Everybody exclaimed how beautiful I was and everything seemed perfect for awhile until I had my first seizure on Friday 13. In the bath of all places at 7 months old. Precisely the thoughts that ran. Through my mummy and daddys head. But what does this mean for me? My hopes for the future are not your typica...

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CDKL5 & Gracie

Tuesday, 6 September 2011. Summer is at an end. Bizarre and really reinforces the need to spread awareness, to fund vital research and especially in the UK get some kind of NHS proforma/policy going for it to help our little ones now and for those newly diagnosed in the future. (I am alittle weary of meeting blank expressions in our medical professionals on a regular basis :0 . Three seperate companies contacted and several hours later apparently Gracie was uninsurable! Once home back in the UK we had al...

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