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celebratinginchstones.blogspot.com

Celebrating Inchstones

Looking deeper than the milestones and seeing God's hand in the inchstones of this life.

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Celebrating Inchstones | celebratinginchstones.blogspot.com Reviews
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Looking deeper than the milestones and seeing God&#39;s hand in the inchstones of this life.
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1 celebrating inchstones
2 0 comments
3 merry christmas
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5 autumn
6 smart boy
7 older posts
8 asa's story
9 we were wrong
10 blog archive
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celebrating inchstones,0 comments,merry christmas,1 comments,autumn,smart boy,older posts,asa's story,we were wrong,blog archive,october,bricen,eithene,eric,hudson,jack,jackson,kendall,lauren and samuel,leyla,luke,mayci,nathan,taysen,followers,about me
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Celebrating Inchstones | celebratinginchstones.blogspot.com Reviews

https://celebratinginchstones.blogspot.com

Looking deeper than the milestones and seeing God&#39;s hand in the inchstones of this life.

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1

Celebrating Inchstones: We are still here!

http://celebratinginchstones.blogspot.com/2014/06/we-are-still-here.html

Looking deeper than the milestones and seeing God's hand in the inchstones of this life. Tuesday, June 3, 2014. We are still here! I can't believe that I haven't posted since Christmas! The only reason I'm posting how is because I need to free up room on my phone for more pictures and videos. I'm scared if I put them on the computer it'll just crash so I figure I'll put them on the blog and they'll live forever.right? That's kind of adventure is scary! So now all the doors are triple locked! Posted by Ki...

2

Celebrating Inchstones: September 2012

http://celebratinginchstones.blogspot.com/2012_09_01_archive.html

Looking deeper than the milestones and seeing God's hand in the inchstones of this life. Friday, September 28, 2012. After all of Asa's great walking yesterday, today didn't go so well for him! So I rushed to the school and found him sitting in the nurses lap playing with books on her desk! He was laughing and smiling and happy. The bump was huge and colorful and it really did make me weak in the knees to see it! Then he would poke it and I'd want to pass out! He was completely unfazed though! We also ta...

3

Celebrating Inchstones: October 2012

http://celebratinginchstones.blogspot.com/2012_10_01_archive.html

Looking deeper than the milestones and seeing God's hand in the inchstones of this life. Monday, October 22, 2012. Last week, Asa's whole school took a field trip to a local farm. I went and Cade and Gracie got to go too. Cade was the best big brother and a huge helper! Maybe next field trip! Check out Asa's finger going for Cade's ear! It's like a jab into your eardrum at random times everyday! This is Asa's new laughing face, tongue to the side! He was cracking up at the kids jumping off the hay bales.

4

Celebrating Inchstones: October 2013

http://celebratinginchstones.blogspot.com/2013_10_01_archive.html

Looking deeper than the milestones and seeing God's hand in the inchstones of this life. Tuesday, October 8, 2013. Today is Asa's 6th birthday! Time has really flown by. This last year has brought a lot of fun! We've seen the most progress across the board this year. As my last post showed, Asa is eating up a storm! I guess since he's had it since before he was 1 year old, it is kinda nothing to him! I kinda thought that removing the tube would make a great b-day gift! I chickened out though! Asa is the ...

5

Celebrating Inchstones: September 2013

http://celebratinginchstones.blogspot.com/2013_09_01_archive.html

Looking deeper than the milestones and seeing God's hand in the inchstones of this life. Saturday, September 21, 2013. Look who's finally eating! I know it's been a minute since I updated! I just had to stop and update on some fun new goals Asa is finally meeting! Then Asa decided to eat! Sooooo, we started feeding therapy again! He had a breakfast date once a week with sweet Amy, who tried to show him how to chew and swallow. He was not a great learner! He doesn't like following directions very often!

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The Freckled Toe: Ohio Trip Day 7, 8,9 10

http://mitojack.blogspot.com/2012/12/ohio-trip-day-7.html

This blog is about Jackson Culley. It is about his life with Leigh's, a mitochondrial disease. It is about how we, as a family, work through the everyday life stuff and cope with his terminal illness. Why call the blog The Freckled Toe? I call it that in honor of Jackson. He has a dark brown freckle smack dab on his right big toe! Tuesday, December 4, 2012. Ohio Trip Day 7, 8,9 10. Wash your hands after you go to the bathroom, cough, sneeze! Cover your cough or sneeze with your elbow or a tissue!

mitojack.blogspot.com mitojack.blogspot.com

The Freckled Toe: A new plan

http://mitojack.blogspot.com/2012/12/a-new-plan.html

This blog is about Jackson Culley. It is about his life with Leigh's, a mitochondrial disease. It is about how we, as a family, work through the everyday life stuff and cope with his terminal illness. Why call the blog The Freckled Toe? I call it that in honor of Jackson. He has a dark brown freckle smack dab on his right big toe! Wednesday, December 5, 2012. Subscribe to: Post Comments (Atom). Jackson Culley Mito What? Race results are in! We are still here! Ohio Trip Day 7, 8,9 10.

mitojack.blogspot.com mitojack.blogspot.com

The Freckled Toe: May 2012

http://mitojack.blogspot.com/2012_05_01_archive.html

This blog is about Jackson Culley. It is about his life with Leigh's, a mitochondrial disease. It is about how we, as a family, work through the everyday life stuff and cope with his terminal illness. Why call the blog The Freckled Toe? I call it that in honor of Jackson. He has a dark brown freckle smack dab on his right big toe! Tuesday, May 29, 2012. Mom retired this year from teaching. We are super excited about this news! People have asked me "What will your mother do with all her time now? By Emily...

mitojack.blogspot.com mitojack.blogspot.com

The Freckled Toe: April 2012

http://mitojack.blogspot.com/2012_04_01_archive.html

This blog is about Jackson Culley. It is about his life with Leigh's, a mitochondrial disease. It is about how we, as a family, work through the everyday life stuff and cope with his terminal illness. Why call the blog The Freckled Toe? I call it that in honor of Jackson. He has a dark brown freckle smack dab on his right big toe! Tuesday, April 3, 2012. Can I be honest with yall? Yall really came together for Jack and I am truly grateful! Subscribe to: Posts (Atom). Jackson Culley Mito What?

mitojack.blogspot.com mitojack.blogspot.com

The Freckled Toe: August 2012

http://mitojack.blogspot.com/2012_08_01_archive.html

This blog is about Jackson Culley. It is about his life with Leigh's, a mitochondrial disease. It is about how we, as a family, work through the everyday life stuff and cope with his terminal illness. Why call the blog The Freckled Toe? I call it that in honor of Jackson. He has a dark brown freckle smack dab on his right big toe! Wednesday, August 29, 2012. Please come to Mito Spirit Night! Chick-fil-A will donate a portion of their profits to the UMDF! Bring the flyer with you! Tuesday, August 28, 2012.

mitojack.blogspot.com mitojack.blogspot.com

The Freckled Toe: March 2013

http://mitojack.blogspot.com/2013_03_01_archive.html

This blog is about Jackson Culley. It is about his life with Leigh's, a mitochondrial disease. It is about how we, as a family, work through the everyday life stuff and cope with his terminal illness. Why call the blog The Freckled Toe? I call it that in honor of Jackson. He has a dark brown freckle smack dab on his right big toe! Saturday, March 9, 2013. Ohio Trip March 3-7 2013. We got up Monday morning and traveled the rest of the way to Akron. It was thankfully, uneventful! Subscribe to: Posts (Atom).

mitojack.blogspot.com mitojack.blogspot.com

The Freckled Toe: ohio trip day 1, 2, 3 and 4

http://mitojack.blogspot.com/2012/11/ohio-trip-day-1-2-3-and-4.html

This blog is about Jackson Culley. It is about his life with Leigh's, a mitochondrial disease. It is about how we, as a family, work through the everyday life stuff and cope with his terminal illness. Why call the blog The Freckled Toe? I call it that in honor of Jackson. He has a dark brown freckle smack dab on his right big toe! Tuesday, November 27, 2012. Ohio trip day 1, 2, 3 and 4. It was a CRAZY day! I love you, Lynn! Y'all know I married John just to have Lynn as a sister-in-law! We also got part ...

mitojack.blogspot.com mitojack.blogspot.com

The Freckled Toe: October 2012

http://mitojack.blogspot.com/2012_10_01_archive.html

This blog is about Jackson Culley. It is about his life with Leigh's, a mitochondrial disease. It is about how we, as a family, work through the everyday life stuff and cope with his terminal illness. Why call the blog The Freckled Toe? I call it that in honor of Jackson. He has a dark brown freckle smack dab on his right big toe! Wednesday, October 10, 2012. The B I G News! The BIG news is.Jack is going to be in the EPI 743 drug trial with Dr. Cohen at Akron Children's Hospital in Akron, Ohio! 160; They...

mitojack.blogspot.com mitojack.blogspot.com

The Freckled Toe: January 2012

http://mitojack.blogspot.com/2012_01_01_archive.html

This blog is about Jackson Culley. It is about his life with Leigh's, a mitochondrial disease. It is about how we, as a family, work through the everyday life stuff and cope with his terminal illness. Why call the blog The Freckled Toe? I call it that in honor of Jackson. He has a dark brown freckle smack dab on his right big toe! Wednesday, January 4, 2012. Guess what Jack did yesterday! Jackson has been such a happy and healthy boy lately! He has been staying healthy because he doesn't go anywhere!

hypotonicworld.blogspot.com hypotonicworld.blogspot.com

Sunshine in a Hypotonic World: September 2014

http://hypotonicworld.blogspot.com/2014_09_01_archive.html

Sunshine in a Hypotonic World. Living in the world of Rett Syndrome, celebrating all the little victories, taking life one day at a time and trying to keep a sense of humor about it all. What is Rett Syndrome? Wednesday, September 3, 2014. Upper EnDO or EnDON'T. We're at a crossroad again. I'm standing here ( actually sitting. Trying to make an educated decision about how to proceed. We've hit a few rough patches this summer including:. A battle with pneumonia ( a four letter word in our home. The end of...

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Celebrating Inchstones

Looking deeper than the milestones and seeing God's hand in the inchstones of this life. Tuesday, June 3, 2014. We are still here! I can't believe that I haven't posted since Christmas! The only reason I'm posting how is because I need to free up room on my phone for more pictures and videos. I'm scared if I put them on the computer it'll just crash so I figure I'll put them on the blog and they'll live forever.right? That's kind of adventure is scary! So now all the doors are triple locked! Posted by Ki...

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