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Welcome | Cochrane Cystic Fibrosis and Genetic Disorders

We are an international network of healthcare professionals, researchers and consumers preparing, maintaining, and disseminating systematic reviews of randomised control trials for treating cystic fibrosis and other genetic disorders (haemoglobinopathies. coagulopathies and inborn errors of metabolism). If you are interested in working with us, please go to Join Cochrane. New podcast on the use of autogenic drainage in cystic fibrosis. A new priority setting partnership is now open for bleeding disorders...

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Welcome | Cochrane Cystic Fibrosis and Genetic Disorders | cfgd.cochrane.org Reviews

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We are an international network of healthcare professionals, researchers and consumers preparing, maintaining, and disseminating systematic reviews of randomised control trials for treating cystic fibrosis and other genetic disorders (haemoglobinopathies. coagulopathies and inborn errors of metabolism). If you are interested in working with us, please go to Join Cochrane. New podcast on the use of autogenic drainage in cystic fibrosis. A new priority setting partnership is now open for bleeding disorders...

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Welcome | Cochrane Cystic Fibrosis and Genetic Disorders | cfgd.cochrane.org Reviews

https://cfgd.cochrane.org

We are an international network of healthcare professionals, researchers and consumers preparing, maintaining, and disseminating systematic reviews of randomised control trials for treating cystic fibrosis and other genetic disorders (haemoglobinopathies. coagulopathies and inborn errors of metabolism). If you are interested in working with us, please go to Join Cochrane. New podcast on the use of autogenic drainage in cystic fibrosis. A new priority setting partnership is now open for bleeding disorders...

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Get involved | Cochrane Cystic Fibrosis and Genetic Disorders

http://cfgd.cochrane.org/get-involved

Our specialised trials registers. Conflicts of Interest Policy. Feedback (Comments and Criticism) policy. Published protocols and reviews.

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Newsletters | Cochrane Cystic Fibrosis and Genetic Disorders

http://cfgd.cochrane.org/newsletters

The CFGD Group produce a regular newsletter. Several recent issues are available for download below. If you require any further copies, or if you would like to submit an article for inclusion in a future newsletter, please email Tracey Remmington. Our specialised trials registers. Conflicts of Interest Policy. Feedback (Comments and Criticism) policy. Published protocols and reviews.

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Funding and support | Cochrane Cystic Fibrosis and Genetic Disorders

http://cfgd.cochrane.org/funding-and-support

The Cochrane Cystic Fibrosis and Genetic Disorders Group is part of Cochrane. An independent not-for-profit consortium dedicated to providing up-to-date, accurate information about the effects of health care. Cochrane's central functions are funded by royalties which come from sales of subscriptions to the. Limiting uses of funds from corporate sponsors. A list of Cochrane's funders is available here. The National Institute for Health Research ( NIHR. In addition to this, we have received a grant from the.

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The Cochrane Library | Cochrane Cystic Fibrosis and Genetic Disorders

http://cfgd.cochrane.org/cochrane-library

Browse abstracts and summaries. Full list by title. To The Cochrane Library. Who needs to subscribe? What does it cost? You may already have access. Through your institutional licence or through a National Provision. Details here. Read our access options page. The Cochrane Library CD-Rom version:. Comments for improvement or correction are welcome. Our specialised trials registers. Conflicts of Interest Policy. Feedback (Comments and Criticism) policy. Published protocols and reviews.

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Glossary | Cochrane Cystic Fibrosis and Genetic Disorders

http://cfgd.cochrane.org/glossary

Below is a glossary of terms found in our reviews. To remove or otherwise destroy the biological function of any part (e.g. bone marrow). Acceptable daily intake (ADI). The amount of chemical that, if ingested daily over a lifetime, appears to be without adverse effect. An estimate of the amount of fat in stool (faeces). Painful burning sensation in the hands and feet. Agents used in cancer treatment that attaches an alkyl group (C. Hydrocarbon) to DNA (molecule of cell nucleus). One of the variant forms...

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mukoviscidoz.org

Новости ассоциации

http://www.mukoviscidoz.org/news.html

Перейти к основной навигации. Перейти к первому столбцу. Перейти ко второму столбцу. Всероссийская ассоциация для больных муковисцидозом. Программа Школы по муковисцидозу с международным участием 21-22 апреля 2016 года в Томске. ФГБНУ Медико-генетический научный центр. ГБОУ ВПО Сибирский государственный медицинский университет МЗ РФ. ФГБНУ Научно-исследовательский институт медицинской генетики. Российский центр и Московское отделение муковисцидоза. Департамент здравоохранения Томской области. 25-26 февра...

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Поддержите нас

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Перейти к основной навигации. Перейти к первому столбцу. Перейти ко второму столбцу. Всероссийская ассоциация для больных муковисцидозом. Каждую неделю у нас в стране рождается 7 детей, больных муковисцидозом. Муковисцидоз. Одно из самых частых наследственных заболеваний в России. Пожалуйста, помогите нам в финансировании научных проектов, направленных на поддержание эффективной диагностики и необходимого лечения больных муковисцидозом. Адрес: 115 478 г.Москва, ул. Москворечье, д.1. Утвержден дополнитель...

cftrust.blogspot.com

The CF Trust Blog: January 2015

http://cftrust.blogspot.com/2015_01_01_archive.html

Friday, 30 January 2015. Trials Week: Postcard from the European Clinical Trials Network conference in Barcelona. This week, Dr Janet Allen, Director of Research and Care at the Trust, has swopped frozen England for sunny Spain, and the European Clinical Trials Network conference as part of the Cystic Fibrosis Europe meeting. Here’s what’s been going on. It’s the end of January, so where better to have a meeting than in Barcelona, or more accurately a town just outside Barcelona:. The ECTN has been runni...

binocar.org

BINOCAR

http://www.binocar.org/links

Exact phrase matches only. British and Irish Network of. Our mission is to build healthier lives, free of cardiovascular diseases and stroke. That single purpose drives all we do. The need for our work is beyond questions. Provides guidelines, education resources etc. Http:/ www.heart.org. Antenatal Results and Choices (ARC). Http:/ www.arc-uk.org. Birth Defects Research for Children USA. Http:/ www.birthdefects.org. Http:/ www.bhf.org.uk. British Paediatric Surveillance Unit (BPSU). BPSU was joinly set ...

spititoutblogspot.com

Spit It Out! : January 2013

http://www.spititoutblogspot.com/2013_01_01_archive.html

A patient perspective on developments in the treatment and management of Cystic Fibrosis. I'm a 39 year old living and working with CF and CF-related diabetes. Double F508del. FEV1 is currently 25%. My motto: "If it works, do more of it. If it doesn't work, don't do it. If you're not sure, do some experiments." Twitter: @oli rayner. Wednesday, 2 January 2013. This is a controversial subject. I hope it makes people think without causing offence. These are just my personal views and, as ever, I am ...I do ...

spititoutblogspot.com

Spit It Out! : Speech to CF Trust Scientific Conference 2013

http://www.spititoutblogspot.com/2013/04/speech-to-cf-trust-scientific.html

A patient perspective on developments in the treatment and management of Cystic Fibrosis. I'm a 39 year old living and working with CF and CF-related diabetes. Double F508del. FEV1 is currently 25%. My motto: "If it works, do more of it. If it doesn't work, don't do it. If you're not sure, do some experiments." Twitter: @oli rayner. Monday, 29 April 2013. Speech to CF Trust Scientific Conference 2013. 29 April 2013 at The Wellcome Trust, London. It’s essential that the CF Trust works in conjunction...

spititoutblogspot.com

Spit It Out! : June 2014

http://www.spititoutblogspot.com/2014_06_01_archive.html

A patient perspective on developments in the treatment and management of Cystic Fibrosis. I'm a 39 year old living and working with CF and CF-related diabetes. Double F508del. FEV1 is currently 25%. My motto: "If it works, do more of it. If it doesn't work, don't do it. If you're not sure, do some experiments." Twitter: @oli rayner. Wednesday, 25 June 2014. Vertex results from TRAFFIC/TRANSPORT. For me, the most interesting points were:. Statistically significant increase in Body Mass Index (BMI). Vertex...

spititoutblogspot.com

Spit It Out! : Vertex results from TRAFFIC/TRANSPORT

http://www.spititoutblogspot.com/2014/06/vertex-results-from-traffictransport.html

A patient perspective on developments in the treatment and management of Cystic Fibrosis. I'm a 39 year old living and working with CF and CF-related diabetes. Double F508del. FEV1 is currently 25%. My motto: "If it works, do more of it. If it doesn't work, don't do it. If you're not sure, do some experiments." Twitter: @oli rayner. Wednesday, 25 June 2014. Vertex results from TRAFFIC/TRANSPORT. For me, the most interesting points were:. Statistically significant increase in Body Mass Index (BMI). Vertex...

spititoutblogspot.com

Spit It Out! : April 2013

http://www.spititoutblogspot.com/2013_04_01_archive.html

A patient perspective on developments in the treatment and management of Cystic Fibrosis. I'm a 39 year old living and working with CF and CF-related diabetes. Double F508del. FEV1 is currently 25%. My motto: "If it works, do more of it. If it doesn't work, don't do it. If you're not sure, do some experiments." Twitter: @oli rayner. Monday, 29 April 2013. Speech to CF Trust Scientific Conference 2013. 29 April 2013 at The Wellcome Trust, London. It’s essential that the CF Trust works in conjunction...

spititoutblogspot.com

Spit It Out! : Which CFTR mutations actually cause CF?

http://www.spititoutblogspot.com/2013/08/which-cftr-mutations-actually-cause-cf.html

A patient perspective on developments in the treatment and management of Cystic Fibrosis. I'm a 39 year old living and working with CF and CF-related diabetes. Double F508del. FEV1 is currently 25%. My motto: "If it works, do more of it. If it doesn't work, don't do it. If you're not sure, do some experiments." Twitter: @oli rayner. Monday, 26 August 2013. Which CFTR mutations actually cause CF? How did you do this study? What is the relevance of the results? This information will be used by scientists s...

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Welcome | Cochrane Cystic Fibrosis and Genetic Disorders

We are an international network of healthcare professionals, researchers and consumers preparing, maintaining, and disseminating systematic reviews of randomised control trials for treating cystic fibrosis and other genetic disorders (haemoglobinopathies. coagulopathies and inborn errors of metabolism). If you are interested in working with us, please go to Join Cochrane. New podcast on the use of autogenic drainage in cystic fibrosis. A new priority setting partnership is now open for bleeding disorders...

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