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My Journey with Cystic Fibrosis | one day at a time . . .one day at a time . . .
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My Journey with Cystic Fibrosis | one day at a time . . . | cfjourney.wordpress.com Reviews
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one day at a time . . .
LISTED | My Journey with Cystic Fibrosis
https://cfjourney.wordpress.com/2012/03/06/listed
My Journey with Cystic Fibrosis. One day at a time . . . March 6, 2012. It’s official…. As of 3pm today, 3-6-12, I have been listed for double lung transplant. Started ivs yesterday. Just short of 2 weeks after finishing my last ivs. Thus is how it will be until the surgery. It’s wierd waiting for some innocent person that was generous enough to sign up as a donor, to pass on. That will be my first goal! Running… Seems so simple, but I haven’t been able to in many years…. Here we go again…. Please read M...
Part IV | My Journey with Cystic Fibrosis
https://cfjourney.wordpress.com/part-iv
My Journey with Cystic Fibrosis. One day at a time . . . I need to first apologize to my followers… I know it seems like I dropped off the planet. I recently read some of my last posts and I’m so glad I wrote those. It makes me appreciate where I am today. I did not die! I am no longer suffering! I received my Double Lung Transplant on June 6, 2012! I was told I would not be able to leave the hospital until new lungs came in. Very scary! I was scheduled for surgery on June 6th at 2am. My leg muscles were...
Feeling Awesome !!! | My Journey with Cystic Fibrosis
https://cfjourney.wordpress.com/2014/04/29/feeling-awesome
My Journey with Cystic Fibrosis. One day at a time . . . April 29, 2014. I can’t believe how I just abandoned this blog since transplant. The first year was a slow recovery and dealt with depression. Then I tried to activate the 2 step authorization on wordpress and it totally messed me up and I couldnt get in! I finally contacted support and got the whole thing deactivated. So, here I am, almost 2 years post transplant and I’m feeling amazing! I hope to keep up with my posts. We shall see. I added a Par...
Part III | My Journey with Cystic Fibrosis
https://cfjourney.wordpress.com/part-iii
My Journey with Cystic Fibrosis. One day at a time . . . Well it was my daily life at the time. We need to identify ALL programs that would be effected and plan out the conversion process. Sounds simple Not really! Anyway, being a software development project manager was a stressful job, and having CF on top of that is really not a good combination. And my fev1 dropped to 31%. This was from 39% the week before, 42% the week before that, 43% 2 weeks before that and my baseline was 48%. I was put on triple...
Waiting for the call… | My Journey with Cystic Fibrosis
https://cfjourney.wordpress.com/2012/03/27/waiting-for-the-call
My Journey with Cystic Fibrosis. One day at a time . . . Waiting for the call…. March 27, 2012. I hope that call comes soon…. I hope I don’t reject…. I hope I live for many years and learn to enjoy the simple act of breathing…. I want to learn how to run… to move… to just be free…. Until next time…. Because I Don’t Ever Want to Forget…. Waiting for the call…" (2). March 27, 2012 at 9:48 pm. I’ll keep you in my prayers. March 27, 2012 at 9:49 pm. Many prayers for you during this difficult…. Please read My...
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It's Teeny Time: June 2010
http://justinekomin.blogspot.com/2010_06_01_archive.html
My life with Cystic Fibrosis, following a double lung transplant on October 30, 2010. Friday, June 4, 2010. I can't always wait for the next shift to say something! She held it up and asked if I still had one - I've never even seen it! I all but snatched it away from her. I was so excited to get my hands on something that would help me better control my diabetes. For those of you with CFRD, I recommend asking one of your docs about this booklet. It's put out by the CFF. Subscribe to: Posts (Atom). My fav...
It's Teeny Time: May 2010
http://justinekomin.blogspot.com/2010_05_01_archive.html
My life with Cystic Fibrosis, following a double lung transplant on October 30, 2010. Friday, May 28, 2010. Yesterday I broke out of jail. No, not really, I would never call the hospital jail. let me start again. Yesterday I came home from my amazing and health-restoring vacation. It was a wonderful two weeks, full of educating the uneducated and, well, coughing! I coughed so much more than any other patient anyone had seen. That's how I get better! From a Respiratory Therapist, that question should be a...
It's Teeny Time: August 2010
http://justinekomin.blogspot.com/2010_08_01_archive.html
My life with Cystic Fibrosis, following a double lung transplant on October 30, 2010. Tuesday, August 24, 2010. Day 2: If you are what you eat, then I'm a CARBOHYDRATE covered in CHEESE. Some things I ate today:. An entire box of Spirals Mac and Cheese (extra butter, half and half). An 8 ounce block of cheese. Blood sugars: 119 (fasting), 177, 208, 140. Monday, August 23, 2010. Day 1: OPERATION NORMALIZE GLUCOSE LEVELS. This is a graph of my levels since May 27, the day I got out of the hospital. My miss...
It's Teeny Time: Long day doesn't even begin to describe today!
http://justinekomin.blogspot.com/2010/11/long-days-dont-even-begin-to-describe.html
My life with Cystic Fibrosis, following a double lung transplant on October 30, 2010. Wednesday, November 3, 2010. Long day doesn't even begin to describe today! Things I did/had done today:. Took out the blown iv in my right fore arm, replaced it with one in my left arm. Adjusted my epidural so that my pain was under better control. Got my Foley catheter out. Went for a walk. Ate my first two post transplant meals. Got a fruit bouquet, chocolates, balloons and a teddy bear to cuddle. Get out of icu.
It's Teeny Time: Loaded Update
http://justinekomin.blogspot.com/2010/10/loaded-update.html
My life with Cystic Fibrosis, following a double lung transplant on October 30, 2010. Friday, October 22, 2010. The past three weeks have been extremely busy and I will do my best to cover it all! Procedure, which will block my tubes off (similar to tubal ligation, without any incisions) and prevent pregnancy. I'm actually very excited about it. It's something I've wanted to cross off my list of things to worry about and now I finally get the chance to do it! I wonder if this will earn me a Darwin Award?
It's Teeny Time: some more waiting? don't mind if i do!
http://justinekomin.blogspot.com/2010/10/some-more-waiting-dont-mind-if-i-do.html
My life with Cystic Fibrosis, following a double lung transplant on October 30, 2010. Saturday, October 30, 2010. Don't mind if i do! Down in pre op. waiting for the visual go ahead on the other end. when we get that call they'll take me back. until then, we wait. maybe an hour. Thinking of you. Stay strong.you can do this! October 30, 2010 at 1:56 PM. Hope all is well! From a cf guy in sweden.i had my lungs for 11 years! November 1, 2010 at 5:55 PM. Subscribe to: Post Comments (Atom). October 30, 2010.
It's Teeny Time: February 2010
http://justinekomin.blogspot.com/2010_02_01_archive.html
My life with Cystic Fibrosis, following a double lung transplant on October 30, 2010. Saturday, February 27, 2010. MRI results: "it's not a tumor" I do however have blocked sinuses and probably a sinus infection. So I began doing the sinus rinses again - don't know why I ever stopped. lazy, I guess. Anyway, today the headache wasn't nearly as bad and I was able to get out and do some things. . Thursday, February 25, 2010. Had an eventful week so I thought I'd update! The past 48 hours have been really ro...
It's Teeny Time: October 2010
http://justinekomin.blogspot.com/2010_10_01_archive.html
My life with Cystic Fibrosis, following a double lung transplant on October 30, 2010. Saturday, October 30, 2010. Don't mind if i do! Down in pre op. waiting for the visual go ahead on the other end. when we get that call they'll take me back. until then, we wait. maybe an hour. Ate my first immunosuppresive drugs. SoluMedrol 1000mg IV - steroid. Pills down the gullet at 3:18 and IV started. My nurse said the plan is for them to come get me at 5am to take me down to preop to get me prepared. 1/2: Got the...
It's Teeny Time: I'm Still Here!
http://justinekomin.blogspot.com/2011/09/im-still-here.html
My life with Cystic Fibrosis, following a double lung transplant on October 30, 2010. Tuesday, September 13, 2011. If you're looking for updates, go to my CaringBridge page. I'll continue updating that until I get to leave Minnesota! Http:/ www.caringbridge.org/visit/newlungsforjustine. Thank you for keeping up with me on my journey! It's been quite a ride so far! Subscribe to: Post Comments (Atom). Pictures from the actual surgery and life post-transplant in Minneapolis. WARNING* Graphic Surgery Photos.
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Clube de Fans do José Cid - Uma coisa à séria! Quarta-feira, outubro 04, 2006. Voces sao . coisos! Agora falta voltar o Ze gui e mais um o outro, e isto tá a bombar outra vez! LOL POSTAS POSTAS POSTAS! Vou jogar ah bola :D. Posted by Bigs @ 21:20. Por falares em ter boltado, lembrei-m que ha um bideo que gosto mais:. Http:/ www.youtube.com/watch? Músicaaaaaa.Nasci pra músicaaaaaaaaaaaaaaaaa! Posted by DavidBSP @ 20:00. Oh pah, eu ando a ver se arranjo o video em condiçoes! José cid és o nosso pastor!
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My Journey with Cystic Fibrosis | one day at a time . . .
My Journey with Cystic Fibrosis. One day at a time . . . Need a little patience. September 14, 2016. My previous post was me freaking out a bit. I’ve had time to process what’s going on and feel much better. Here’s how I explained it on my facebook account:. If there truly is in fact no bacteria, then we have to look into this further. Post tx is very different than pre tx. I just need to learn patience. I will get through this. Thanks for all your support and concern 😘 💟. September 12, 2016. 8220; Don...
In the Beginning by C.F. Joyce « Slavery/Escape/Wandering/The promised land. Whose idea was this anyway?
In the Beginning by C.F. Joyce. Slavery/Escape/Wandering/The promised land. Whose idea was this anyway? Hi all, there have been many changes in my life in the last two years. Almost all for the good. Though I stopped writing on this Memories of Glory blog, I started a new blog called In the Beginning by C.F. Joyce. C.F. Joyce is my new pen name. You can find it at cfjoyce.wordpress.com. Please take a look! It’s only a small change. One thing that’s a little confusing. People think they have to ...Perseph...
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