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Chance's Journey.

Saturday, November 22, 2008. Chance's party was exciting, great, exhausting, I could go on forever. We had about 150 people there to yell 'SURPRISE! The girls recycled the decorations. Looks like future designers! This is Justin. He is the husband of Chance's teacher from last year. He played the guitar for the kids for awhile and we did an awesome job! Look at that smile! That was pretty much the look on his face all night. This is a picture of Chance walking into the party. He was so overwhelmed an...

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Chance's Journey. | chancedorman.blogspot.com Reviews
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Saturday, November 22, 2008. Chance's party was exciting, great, exhausting, I could go on forever. We had about 150 people there to yell 'SURPRISE! The girls recycled the decorations. Looks like future designers! This is Justin. He is the husband of Chance's teacher from last year. He played the guitar for the kids for awhile and we did an awesome job! Look at that smile! That was pretty much the look on his face all night. This is a picture of Chance walking into the party. He was so overwhelmed an...
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1 tagboard
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4 hollis's big adventure
5 the hemispherectomy foundation
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Chance's Journey. | chancedorman.blogspot.com Reviews

https://chancedorman.blogspot.com

Saturday, November 22, 2008. Chance's party was exciting, great, exhausting, I could go on forever. We had about 150 people there to yell 'SURPRISE! The girls recycled the decorations. Looks like future designers! This is Justin. He is the husband of Chance's teacher from last year. He played the guitar for the kids for awhile and we did an awesome job! Look at that smile! That was pretty much the look on his face all night. This is a picture of Chance walking into the party. He was so overwhelmed an...

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chancedorman.blogspot.com chancedorman.blogspot.com
1

Chance's Journey.

http://chancedorman.blogspot.com/2008_08_10_archive.html

Saturday, August 16, 2008. Annie brought a whole bunch of goodies from her coworkers at the Perry CAO. Chance actually got into opening the presents and was smiling. Gram brought a GIANT poster from the football association. It was signed by all of the players, cheerleaders, coaches and some other friends. We're keeping it in his room and when he goes to rehab, we'll hang it on the wall to remind him his friends are waiting for him to come home. He also just got his last IV out. YEAH! He refused to take ...

2

Chance's Journey.

http://chancedorman.blogspot.com/2008_09_14_archive.html

Sunday, September 14, 2008. Chance's first day at school went really good. They were all really surprised to see that he was in school so soon. I stayed with him most of the day to give the teachers a comfort level. After awhile with him, they could see that he is the same little boy that he was when he left in June. The only thing different about him is the scar on his head. Everyone that he talks to says how much clearer his speech is. Address: Chance Dorman, 583 Wolf Street, Newport, PA 17074.

3

Chance's Journey.

http://chancedorman.blogspot.com/2008_08_24_archive.html

Saturday, August 30, 2008. We made it home! It feels so good to be here. When we got home yesterday, there was a nice crowd down at the midget football field waiting for Chance. It was very nice. He seemed so shy at first and then started working his way around to everyone. He even went out on the field with a group of the boys and played some football. Thursday, August 28, 2008. Well, we have one more day here. We just can't wait to get home. Tomorrow is the BIG day! We're working on getting him one of ...

4

Chance's Journey.

http://chancedorman.blogspot.com/2008_08_17_archive.html

Friday, August 22, 2008. I will try to update next week reguarly. Now, on to the important stuff.Quinton and Dee, this video is for you. You guys have tried to help Chance do this.This is something that he has NEVER been able to do, even with help. Check it out! Beth would be so proud! That is one of his previous PTs). The next huge thing to tell you all.Chance received his expected release date.are you ready for this? How awesome is that? Needless to say, she was very impressed with him. The speech ther...

5

Chance's Journey.

http://chancedorman.blogspot.com/2008_06_29_archive.html

Wednesday, July 2, 2008. This blog has been created as a way to update friends and family on Chance's latest journey. Please feel free to pass along any information you see to others that know and love him. Chance will be having a hemispherectomy at Johns Hopkins Hospital on August 06, 2008. The surgery is to start at 7:30am. Please keep him in your thoughts and prayers. We will try to keep the site updated as often as possible and post pictures for you to see.

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jessiekelley.blogspot.com jessiekelley.blogspot.com

Jessie's Blog: February 2011

http://jessiekelley.blogspot.com/2011_02_01_archive.html

Friday, February 18, 2011. A Chance to Tell Your Story and Make a Difference. Below is a letter from Dr. Gary Mathern, Pediatrice Neurosurgeon at UCLA . If you or someone you know has epilepsy, please read and participate. Thanks, Cris. I am writing to inform you of an opportunity that as a family with someone with epilepsy you might want to take advantage of. Please, also send this note to any other families in Southern California you think might be interested. Saturday, February 5, 2011. Family, watch ...

jessiekelley.blogspot.com jessiekelley.blogspot.com

Jessie's Blog: November 2010

http://jessiekelley.blogspot.com/2010_11_01_archive.html

Tuesday, November 30, 2010. Unfortunately, it looks like Jessie is having seizures again. She is currently in the EMU at Cook Children's in Fort Worth, and the epileptologists believe that she has some seizure activity coming from her hemispherectomy side, from a missed connection and brain tissue left behind in the first surgery. It is deep tissue, and hard to pick up on the scalp EEG. In addition, they will do a T3 detailed MRI tomorrow. At that point, they will make the decision on what to do. Christm...

jessiekelley.blogspot.com jessiekelley.blogspot.com

Jessie's Blog: December 2013

http://jessiekelley.blogspot.com/2013_12_01_archive.html

Friday, December 6, 2013. I guess it is time to retire Jessie's Blog. I haven't written in years, and she remains seizure free. Jessie is in 5th grade now, and enjoys Choir and Student Council. She makes As and Bs, and still has a wonderful outlook on life, and a fun personality to be around. I guess we are used to the "New" normal in our lives. If you are new to the world of Rasmussen's Encephalitis and/or Hemispherectomy, I encourage you to visit http:/ www.HemiFoundation.org. Subscribe to: Posts (Atom).

jessiekelley.blogspot.com jessiekelley.blogspot.com

Jessie's Blog: April 2012

http://jessiekelley.blogspot.com/2012_04_01_archive.html

Monday, April 9, 2012. Seizure Free and Off Tegretol. Quick Blog Note : Today, Jessie was given the go ahead to go completely off of her epilepsy medicine. So by summer, she will no longer be on Tegretol. Horray! Before when she went off of seizure meds, she was still having seizures, but we didn't recognize them a such. We thought that she was having gastric issues. We are fairly confident this time, that she is seizure free and all will work out great. Happy Easter. Cris. Subscribe to: Posts (Atom).

jessiekelley.blogspot.com jessiekelley.blogspot.com

Jessie's Blog: Hemi Redo Summary - Success

http://jessiekelley.blogspot.com/2011/06/hemi-redo-summary-success.html

Thursday, June 2, 2011. Hemi Redo Summary - Success. Jessie has been seizure free now for 1 1/2 months, and although we are overjoyed and feel very blessed, we are also grounded and realize that you never know what tomorrow will bring in the world of Epilepsy and our kids. Jessie's returning seizures were characterized by:. 1) Discomfort in the stomach (Aura if you will), followed by. 4) When it was over she heaved a heavy sigh, and wiped her nose. 5) Early on, the EEG was inconclusive. As the seizur...

jessiekelley.blogspot.com jessiekelley.blogspot.com

Jessie's Blog: April 2011

http://jessiekelley.blogspot.com/2011_04_01_archive.html

Wednesday, April 27, 2011. 1 Week Post Op for Re-Re-Do. One Week Post 2nd ReDo Surgery. Jessie finally at a few bites of food yesterday, and we have not seen any seizures so far, so we are cautiously optimistic. A week into her first re-do, we had already seen three seizures. So far, none yet this time. Only time will tell. I anticipate that she will get to go home by the weekend. I feel certain that she will be at the 2011 Dreams on Wings 5K to cheer on the runners. If you haven't signed up yet, ple...

jessiekelley.blogspot.com jessiekelley.blogspot.com

Jessie's Blog: May 2011

http://jessiekelley.blogspot.com/2011_05_01_archive.html

Saturday, May 28, 2011. 5 Weeks Seizure Free and Helping Make Breakfast. Today, Jessie is 5 weeks post Hemispherectomy Re-do, and we are happy to report that Jessie has been seizure free since surgery. We are cautiously optimistic about her seizure freedom, but very happy with the results so far. Her neurologist at Cook Children's is taking her off of Vimpat, and she will continue on Tegretol for the forseeable future. Http:/ www.youtube.com/watch? Check out what is written on her t-shirt. Prior to this ...

jessiekelley.blogspot.com jessiekelley.blogspot.com

Jessie's Blog: January 2011

http://jessiekelley.blogspot.com/2011_01_01_archive.html

Sunday, January 2, 2011. The last 6 months of 2010 were quite a challenge for the Hall family. Jessie's hydrocephalus and increase in seizures really threw us for a loop. But now it's 2011 and time for new beginnings! Time to put all all that behind us and look forward to bright and promising opportunities! Jessie has been doing very well since she came home just before Christmas. She still gets tired in the afternoon but is getting stronger every day! Here's to new beginnings! Subscribe to: Posts (Atom).

jessiekelley.blogspot.com jessiekelley.blogspot.com

Jessie's Blog: Eight Months Seizure Free and Christmas in Wyoming

http://jessiekelley.blogspot.com/2011/12/eight-months-seizure-free-and-christmas.html

Thursday, December 29, 2011. Eight Months Seizure Free and Christmas in Wyoming. The less that I blog, the more that I know that our life is settled into a "new normal". It is not a normal like most of you know, but it is nevertheless a normal that is pleasant, purposeful, and possibly even filled with hope for the future. But this year, we made it! On the way up, we were able to attend the 2011 Hemi. Jam, Concert, benefitting. Foundation http:/ www.HemiFoundation.org. Huston did an outstading. Gary and ...

jessiekelley.blogspot.com jessiekelley.blogspot.com

Jessie's Blog: March 2011

http://jessiekelley.blogspot.com/2011_03_01_archive.html

Tuesday, March 8, 2011. Life is a Rollercoaster. Unfortunately, despite best efforts by our wonderful doctors at Cook Childrens Hospital and consultation from Drs. Carson and Mathern, the seizures are still very present. In January, we were hoping that they were a result of a healing brain – after all, Jessie has been put through the mill since last August. Perhaps she just needs some time to heal. And is riding this coaster with abandon. Below is a little time line of the past few weeks. Santa brought e...

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Chance's Journey.

Saturday, November 22, 2008. Chance's party was exciting, great, exhausting, I could go on forever. We had about 150 people there to yell 'SURPRISE! The girls recycled the decorations. Looks like future designers! This is Justin. He is the husband of Chance's teacher from last year. He played the guitar for the kids for awhile and we did an awesome job! Look at that smile! That was pretty much the look on his face all night. This is a picture of Chance walking into the party. He was so overwhelmed an...

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