cmsliz.blogspot.com
Liz's Life with CMSLiving with Congenital Myasthenic Syndrome. Includes personal experiences, inspirational stories, and research about the disease and its treatment.
http://cmsliz.blogspot.com/
Living with Congenital Myasthenic Syndrome. Includes personal experiences, inspirational stories, and research about the disease and its treatment.
http://cmsliz.blogspot.com/
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Liz's Life with CMS | cmsliz.blogspot.com Reviews
https://cmsliz.blogspot.com
Living with Congenital Myasthenic Syndrome. Includes personal experiences, inspirational stories, and research about the disease and its treatment.
cmsliz.blogspot.com
Liz's Life with CMS: June 2013
http://cmsliz.blogspot.com/2013_06_01_archive.html
Liz's Life with CMS. Life with Congenital Myasthenic Syndrome is not always easy- that's for sure! Friday, June 21, 2013. Albuterol, the wonder drug. It has been a long time since my last post, mostly because I feel like my disease is hardly an issue any more. I am optimistic that the albuterol will keep working for me, and I am hopeful that some day there will be a medication that will improve my facial muscle strength as well. I would love to have a big smile! Subscribe to: Posts (Atom).
Liz's Life with CMS: June 2009
http://cmsliz.blogspot.com/2009_06_01_archive.html
Liz's Life with CMS. Life with Congenital Myasthenic Syndrome is not always easy- that's for sure! Thursday, June 4, 2009. Several months ago I started doing some research online to see if anyone else out there was experiencing similar negative reactions to Mestinon and 3,4 DAP. What I discovered was astounding to me! There are different causes of congenital myasthenic syndrome! I couldn't believe I had never heard about these other forms of CMS. Unfortunately, my self-diagnosis was wrong (and also unfor...
Liz's Life with CMS: December 2011
http://cmsliz.blogspot.com/2011_12_01_archive.html
Liz's Life with CMS. Life with Congenital Myasthenic Syndrome is not always easy- that's for sure! Thursday, December 29, 2011. One Year Later (close enough! I have been on Albuterol for almost a year now. I think I sort of neglected my blog because I was feeling so good! But I will take a few minutes to share what the last year has been like. In one shot to get to the midst of Corcovado National Park. Unfortunately I ended up with massive blisters that later cost me some toenails!
Liz's Life with CMS: July 2009
http://cmsliz.blogspot.com/2009_07_01_archive.html
Liz's Life with CMS. Life with Congenital Myasthenic Syndrome is not always easy- that's for sure! Monday, July 13, 2009. 4 months on Fluoxetine. I was so inspired and hopeful that perhaps this could work for me as well. After the first week of treatment, I could already tell I was walking more easily. By the end of the second week I was walking up stairs like they were nothing! I haven't run since I was about 8 years old! That was 24 years ago! Subscribe to: Posts (Atom). 4 months on Fluoxetine.
Liz's Life with CMS: March 2009
http://cmsliz.blogspot.com/2009_03_01_archive.html
Liz's Life with CMS. Life with Congenital Myasthenic Syndrome is not always easy- that's for sure! Tuesday, March 31, 2009. Mestinon (and other unsuccessful treatments! Mestinon is pretty much the first line of treatment for patients with congenital myasthenic syndrome (CMS). It seems to work pretty well for most patients- enabling them to live near-normal lives. I can't tell you how many times I would read statements like that and be filled with frustration! Mestinon always made me worse! I was so excit...
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Myaware Kids – UK & Ireland » In the Media
http://myasthenickids.org/index.php/ventilation/in-the-media
Committee & AGM. 8216;myaware kids’. Myaware, the Charity. Committee & AGM – Archived. Paris to Florence – Tom’s Epic Bike Ride. Radio Newcastle – Raising Awareness. Physiotherapy for childhood myasthenia. Speech & Language, and Feeding Therapy. Toby, Acetylcholine Receptor Deficiency. Ellen, unknown gene fault. Charlie, unknown gene fault. Living without a diagnosed condition…. Naomi’s Story – On the inside of a Myasthenic Crisis. Raquo; In the Media. 3,4 DAP / Firdapse Orphan Drugs and cost to the NHS.
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Liz's Life with CMS
Liz's Life with CMS. Life with Congenital Myasthenic Syndrome is not always easy- that's for sure! Friday, June 21, 2013. Albuterol, the wonder drug. It has been a long time since my last post, mostly because I feel like my disease is hardly an issue any more. I am optimistic that the albuterol will keep working for me, and I am hopeful that some day there will be a medication that will improve my facial muscle strength as well. I would love to have a big smile! Thursday, December 29, 2011. I started not...
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