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Living Well with CMT (Charcot-Marie-Tooth) Disorder | Meeting the challenges of a rare neuromuscular disorder.

Meeting the challenges of a rare neuromuscular disorder.

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Living Well with CMT (Charcot-Marie-Tooth) Disorder | Meeting the challenges of a rare neuromuscular disorder. | cmtnyus.wordpress.com Reviews

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Meeting the challenges of a rare neuromuscular disorder.

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CMT Awareness Month Challenge | Living Well with CMT (Charcot-Marie-Tooth) Disorder

https://cmtnyus.wordpress.com/2014/09/06/cmt-awareness-month-challenge

Living Well with CMT (Charcot-Marie-Tooth) Disorder. Meeting the challenges of a rare neuromuscular disorder. Charcot-Marie-Tooth (Funny Name-Serious Disease). Flying Porta-Potties →. CMT Awareness Month Challenge. September 6, 2014. I took a break from writing this blog, but since September is CMT Awareness Month. I felt I needed to step up and contribute something. We’ve all seen the ALS Awareness Bucket Campaign. You are 10 times more likely to know someone with CMT. I don’t want to scare anyone, I al...

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Living Well with CMT (Charcot-Marie-Tooth) Disorder | Meeting the challenges of a rare neuromuscular disorder. | Page 2

https://cmtnyus.wordpress.com/page/2

Living Well with CMT (Charcot-Marie-Tooth) Disorder. Meeting the challenges of a rare neuromuscular disorder. Charcot-Marie-Tooth (Funny Name-Serious Disease). Newer posts →. Disney Ticket Raffle for Charcot-Marie-Tooth disease! November 18, 2013. The tickets are valid during normal operating hours and are good through September 24, 2015. The drawing will be held on December 20, 2013, just in time to make it a great Christmas gift, and the winning number will be posted at. On December 21, 2013. You can v...

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What’s New | Living Well with CMT (Charcot-Marie-Tooth) Disorder

https://cmtnyus.wordpress.com/whats-new

Living Well with CMT (Charcot-Marie-Tooth) Disorder. Meeting the challenges of a rare neuromuscular disorder. Charcot-Marie-Tooth (Funny Name-Serious Disease). Check out Ken’s Bicycle ride across the US to raise funds for research and awareness for CMT -$38,000 raised so far – www.cmtausa.org/kensride. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your Twitter account. ( Log Out. Var fgid =...

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Resources | Living Well with CMT (Charcot-Marie-Tooth) Disorder

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Living Well with CMT (Charcot-Marie-Tooth) Disorder. Meeting the challenges of a rare neuromuscular disorder. Charcot-Marie-Tooth (Funny Name-Serious Disease). The Upstate NY CMT Support and Action Group. Upstate NY CMT group TGIF Awareness Fundraiser 2010 photo Paula Bossert. The Upstate NY CMT Support and Action Group was started in April 2010 by Melinda Lang to offer. Also, to let others know about the CMTA’s promising research initiative- STAR. Strategy to Accelerate Research ). Don’t feel bad ...

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CMT News | Living Well with CMT (Charcot-Marie-Tooth) Disorder

https://cmtnyus.wordpress.com/cmt-news-2

Living Well with CMT (Charcot-Marie-Tooth) Disorder. Meeting the challenges of a rare neuromuscular disorder. Charcot-Marie-Tooth (Funny Name-Serious Disease). It’s National Charcot-Marie-Tooth Awareness Month,. SEASIDE A month dedicated to Charcot-Marie-Tooth disease (CMT) has been planned for the month of September as proclaimed by the Charcot-Marie-Tooth Association (cmtausa.org). She is also coordinating events to bring more awareness and raise funds, and is starting a support group. For informat...

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atticusmom1.blogspot.com atticusmom1.blogspot.com

Grace Lines: Amazing Results!!

http://atticusmom1.blogspot.com/2012/12/amazing-results.html

Sunday, December 9, 2012. The math is done, the tally is in.the Starry Night event is over! It was a huge success, more so than I ever expected. As stressful as this whole process has been, things have also been falling into place- volunteers agreed to help and joined our committee, food and items were donated, friends and family came out to support us.each little step leading up to one wonderful, successful night! Can you believe it? I am thankful to have been a part of such a great cause, and I am.

mitofusin2projectblog.wordpress.com mitofusin2projectblog.wordpress.com

Mitofusin 2 Project Blog – Pagina 2 – Talking about CMT2A

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Mitofusin 2 Project Blog. ATTENTION PLEASE, CANCELLED SYMPOSIUM! Gene therapy for inherited neuromuscular disorders. PLEASE NOTE, for technical reason the symposium is postponed until further notice. We apologize for the inconvenience. THANK YOU. Clicca per condividere su Twitter (Si apre in una nuova finestra). Condividi su Facebook (Si apre in una nuova finestra). Clicca per condividere su Google (Si apre in una nuova finestra). Clicca per condividere su Pinterest (Si apre in una nuova finestra). Clicc...

atticusmom1.blogspot.com atticusmom1.blogspot.com

Grace Lines: The Need to Laugh!

http://atticusmom1.blogspot.com/2012/11/the-need-to-laugh.html

Thursday, November 15, 2012. The Need to Laugh! I have something to confess.I am a planner and a list maker, sometimes to the point of. Obviously if I work this hard to make shopping a 'painless' activity, I'm not a "window shopper".and even if I had all the money in the world, I doubt shopping would ever be all that fun for me. Okay.it might be a. More fun if I could just shop for things I wanted, rather than necessities, though I'd probably still map out my list before I left the house! I think it also...

atticusmom1.blogspot.com atticusmom1.blogspot.com

Grace Lines: Happy Father's Day!

http://atticusmom1.blogspot.com/2011/06/happy-fathers-day.html

Tuesday, June 14, 2011. A sense of humor is a glorious thing! It gives you the ability to find the positive in even the most difficult situations, that threaten the very fabric of your sanity! I may have mentioned before how popular my father is. If not.well, I'll tell you now- he's very POPULAR! Not just in an 'everyone seems to like him' sort of way, but in an 'everyone knows his NAME' sort of way. It was a lot like growing up with that guy Norm from. To have dinner. A woman in her 80's passed by, ...

cmtjournal.org cmtjournal.org

Inspirational Lessons on Living with CMT: Meet Melinda Lang - CMT Journal

http://cmtjournal.org/inspirational-lessons-on-living-with-cmt-meet-melinda-lang

Everything We Know About. Inspirational Lessons on Living with CMT: Meet Melinda Lang. We haven’t meet Melinda in person (yet), but we love the title of her blog Living well with CMT Charcot-Marie-Tooth Disorder. Optimism is the first medication for a better quality of life. The post on her homepage is 2 years old, but the blog is fully updated on the What’s New section. Enjoy! Is licensed under a Creative Commons Attribution-NonCommercial-ShareAlike 3.0 Unported License. CMT Aids Wanchik Writer No.2.

atticusmom1.blogspot.com atticusmom1.blogspot.com

Grace Lines: There's No Place Like Home!

http://atticusmom1.blogspot.com/2011/05/theres-no-place-like-home.html

Saturday, May 14, 2011. There's No Place Like Home! Okaythat title's a little deceiving! This post is not about home, really- it's more about dreams. And. And dreams that involve.well, sparkly red can't-wear-them-but-REALLY-WANT-THEM. That's where the title comes in.stay with me and you shall see! Miracles Do Happen,. As I consider these braces (and how I came to get them,) to be a miracle! I've never overheard a couple of guys talking about getting together for a. For those readers who don't wear braces...

cmtus.wordpress.com cmtus.wordpress.com

Charcot-Marie-Tooth (Funny Name-Serious Disease) | Living Well with CMT (Charcot-Marie-Tooth)

https://cmtus.wordpress.com/2011/03/07/hello-world

Living Well with CMT (Charcot-Marie-Tooth). Meeting challenges of a rare neuromuscular disorder. Weekly Photo Challenge: Waiting. Charcot-Marie-Tooth (Funny Name-Serious Disease). THIS BLOG HAS MOVED TO: https:/ cmtnyus.wordpress.com/. Is a rare genetic neuromuscular disorder that affects 1 out of 2,500 people or approximately 150,000 people in the US. Although CMT is the most commonly inherited peripheral neuropathy. Many remain unaware of this degenerative disorder. Although weak ankles and foot deform...

elliotadlerscorner.blogspot.com elliotadlerscorner.blogspot.com

Elliot's Corner: "Elliot's Feet" Hits YouTube

http://elliotadlerscorner.blogspot.com/2011/04/elliots-feet-hits-youtube.html

Friday, April 29, 2011. Elliot's Feet" Hits YouTube. Elliot's made a YouTube video called Elliot's Feet. Http:/ www.youtube.com/watch? What CMT is lacking - aside from a good name. Is a PR campaign that builds a solid support base.and let's face it, research money is spent on diseases with large communities of support. So Elliot wants to get the word out. He wants Charcot-Marie-Tooth. To be just as familiar as the word "Alzheimer's". He wants some of that research money to flow CMT's way.

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Living Well with CMT (Charcot-Marie-Tooth) Disorder | Meeting the challenges of a rare neuromuscular disorder.

Living Well with CMT (Charcot-Marie-Tooth) Disorder. Meeting the challenges of a rare neuromuscular disorder. Charcot-Marie-Tooth (Funny Name-Serious Disease). STAR bus available for those with disabilities. December 17, 2016. Where I live we are fortunate to have the STAR. Bus ( Special Transit Available by Request. A Para-transit service for people with disabilities who are unable to use the regular bus. The STAR. The first time she made arrangements, a STAR. Car showed up right on time and drove up ou...

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