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Click here to register now! Every disease community should have a common, accessible patient registry. We’ve heard over and over that creating a shared registry of patients is one of the most valuable things a disease community can do. A registry puts critical information about a disease all in one place. This makes it easier for researchers to study the disease, for patients to learn about front-line treatments and for advocates to speak on behalf of the disease community. Forgot username / password?

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Click here to register now! Every disease community should have a common, accessible patient registry. We’ve heard over and over that creating a shared registry of patients is one of the most valuable things a disease community can do. A registry puts critical information about a disease all in one place. This makes it easier for researchers to study the disease, for patients to learn about front-line treatments and for advocates to speak on behalf of the disease community. Forgot username / password?

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Home | connect.patientcrossroads.org Reviews

https://connect.patientcrossroads.org

Click here to register now! Every disease community should have a common, accessible patient registry. We’ve heard over and over that creating a shared registry of patients is one of the most valuable things a disease community can do. A registry puts critical information about a disease all in one place. This makes it easier for researchers to study the disease, for patients to learn about front-line treatments and for advocates to speak on behalf of the disease community. Forgot username / password?

INTERNAL PAGES

connect.patientcrossroads.org

1

Connect @ PatientCrossroads - Frequently Asked Questions

https://connect.patientcrossroads.org/about-connect/frequently-asked-questions.html

Explore the information in the FAQ to learn more about participating. Are you a researcher, healthcare provider or other professional? Sign up to view the de-identified data and learn about ways to partner with a registry at www.patientcrossroads.com. Learn about the registry. What is a registry? A registry is a place to store detailed medical information about people living with or at risk for a disease or other serious health condition. Who can join the registry? How does a CONNECT registry work? Let t...

2

Connect @ PatientCrossroads - About Us

https://connect.patientcrossroads.org/about-connect.html

Make your voice heard. Join today. By creating the CONNECT program, PatientCrossroads and our Registry Partners seek to revolutionize the ways in which patients, organizations and researchers work together. We firmly believe that advances are made when results are shared, when information is collected in a standardized approach, and when patients are at the center. Forgot username / password? Phones and tablets may default the first letter to uppercase. Register on this demonstration site to experience t...

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Connect @ PatientCrossroads - About CONNECT

https://connect.patientcrossroads.org/about-connect/about-connect.html

Make your voice heard. Join today. By creating the CONNECT program, PatientCrossroads and our Registry Partners seek to revolutionize the ways in which patients, organizations and researchers work together. We firmly believe that advances are made when results are shared, when information is collected in a standardized approach, and when patients are at the center. Forgot username / password? Phones and tablets may default the first letter to uppercase. Register on this demonstration site to experience t...

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Click here to register now! Every disease community should have a common, accessible patient registry. We’ve heard over and over that creating a shared registry of patients is one of the most valuable things a disease community can do. A registry puts critical information about a disease all in one place. This makes it easier for researchers to study the disease, for patients to learn about front-line treatments and for advocates to speak on behalf of the disease community. Forgot username / password?

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https://connect.patientcrossroads.org/??org=kidneycancer

Click here to register now! Every disease community should have a common, accessible patient registry. We’ve heard over and over that creating a shared registry of patients is one of the most valuable things a disease community can do. A registry puts critical information about a disease all in one place. This makes it easier for researchers to study the disease, for patients to learn about front-line treatments and for advocates to speak on behalf of the disease community. Forgot username / password?

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fondation-sanfilippo.org

Bone marrow transplant

http://www.fondation-sanfilippo.org/index.php/en/sanfilippo-disease/supported-projects/bone-marrow-transplant

Conception of chemical chaperones. Lysosomal enhancement as a therapeutic strategy for MPS. Dev of inhibitors of galactosidase β and the glucuronidase β. Gene Therapy for MPS IIIA and B. Prévention de l'accumulation intracellulaire de fragments de sulfate d'héparane. Call for tender for Swiss and foreign researchers. Foundation Galas and Congress. Links and Documents to download. Noé and Noa Book. Internet website of associations or foundations. Jump to Main Navigation and Login. Adeline A Lau,correspond...

fondation-sanfilippo.org

welcome to the Sanfilippo Foundation Switzerland website

http://www.fondation-sanfilippo.org/index.php/en/home

Conception of chemical chaperones. Lysosomal enhancement as a therapeutic strategy for MPS. Dev of inhibitors of galactosidase β and the glucuronidase β. Gene Therapy for MPS IIIA and B. Prévention de l'accumulation intracellulaire de fragments de sulfate d'héparane. Call for tender for Swiss and foreign researchers. Foundation Galas and Congress. Links and Documents to download. Noé and Noa Book. Internet website of associations or foundations. Jump to Main Navigation and Login. The purpose of the Found...

fondation-sanfilippo.org

The Foundation, its purpose and organization

http://www.fondation-sanfilippo.org/index.php/en/the-sanfilippo-foundation

Conception of chemical chaperones. Lysosomal enhancement as a therapeutic strategy for MPS. Dev of inhibitors of galactosidase β and the glucuronidase β. Gene Therapy for MPS IIIA and B. Prévention de l'accumulation intracellulaire de fragments de sulfate d'héparane. Call for tender for Swiss and foreign researchers. Foundation Galas and Congress. Links and Documents to download. Noé and Noa Book. Internet website of associations or foundations. Jump to Main Navigation and Login. Frederic Morel, Founder.

fondation-sanfilippo.org

Dev. of inhibitors of galactosidase β and the glucuronidase β

http://www.fondation-sanfilippo.org/index.php/en/sanfilippo-disease/supported-projects/dev-of-inhibitors-of-galactosidase--and-the-glucuronidase-

Conception of chemical chaperones. Lysosomal enhancement as a therapeutic strategy for MPS. Dev of inhibitors of galactosidase β and the glucuronidase β. Gene Therapy for MPS IIIA and B. Prévention de l'accumulation intracellulaire de fragments de sulfate d'héparane. Call for tender for Swiss and foreign researchers. Foundation Galas and Congress. Links and Documents to download. Noé and Noa Book. Internet website of associations or foundations. Jump to Main Navigation and Login.

fondation-sanfilippo.org

An overview of the current situation of research

http://www.fondation-sanfilippo.org/index.php/en/sanfilippo-disease/overview

Conception of chemical chaperones. Lysosomal enhancement as a therapeutic strategy for MPS. Dev of inhibitors of galactosidase β and the glucuronidase β. Gene Therapy for MPS IIIA and B. Prévention de l'accumulation intracellulaire de fragments de sulfate d'héparane. Call for tender for Swiss and foreign researchers. Foundation Galas and Congress. Links and Documents to download. Noé and Noa Book. Internet website of associations or foundations. Jump to Main Navigation and Login. Multidisciplinary approa...

fondation-sanfilippo.org

Intracerebral gene therapy

http://www.fondation-sanfilippo.org/index.php/en/sanfilippo-disease/supported-projects/intracerebral-gene-therapy

Conception of chemical chaperones. Lysosomal enhancement as a therapeutic strategy for MPS. Dev of inhibitors of galactosidase β and the glucuronidase β. Gene Therapy for MPS IIIA and B. Prévention de l'accumulation intracellulaire de fragments de sulfate d'héparane. Call for tender for Swiss and foreign researchers. Foundation Galas and Congress. Links and Documents to download. Noé and Noa Book. Internet website of associations or foundations. Jump to Main Navigation and Login. Un profil excellent quan...

fondation-sanfilippo.org

Foundation members

http://www.fondation-sanfilippo.org/index.php/en/the-sanfilippo-foundation/members

Conception of chemical chaperones. Lysosomal enhancement as a therapeutic strategy for MPS. Dev of inhibitors of galactosidase β and the glucuronidase β. Gene Therapy for MPS IIIA and B. Prévention de l'accumulation intracellulaire de fragments de sulfate d'héparane. Call for tender for Swiss and foreign researchers. Foundation Galas and Congress. Links and Documents to download. Noé and Noa Book. Internet website of associations or foundations. Jump to Main Navigation and Login. Me Stéphanie La Roche.

fondation-sanfilippo.org

Our Guardian Angels

http://www.fondation-sanfilippo.org/index.php/en/the-sanfilippo-foundation/our-guardian-angels

Conception of chemical chaperones. Lysosomal enhancement as a therapeutic strategy for MPS. Dev of inhibitors of galactosidase β and the glucuronidase β. Gene Therapy for MPS IIIA and B. Prévention de l'accumulation intracellulaire de fragments de sulfate d'héparane. Call for tender for Swiss and foreign researchers. Foundation Galas and Congress. Links and Documents to download. Noé and Noa Book. Internet website of associations or foundations. Jump to Main Navigation and Login. Frederic Morel, Founder.

fondation-sanfilippo.org

La prévention de l’accumulation intracellulaire de fragments de sulfate d’héparane dans des cellules de patients Sanfilippo

http://www.fondation-sanfilippo.org/index.php/en/sanfilippo-disease/supported-projects/prevention-de-laccumulation-intracellulaire-de-fragments-de-sulfate-dheparane

Conception of chemical chaperones. Lysosomal enhancement as a therapeutic strategy for MPS. Dev of inhibitors of galactosidase β and the glucuronidase β. Gene Therapy for MPS IIIA and B. Prévention de l'accumulation intracellulaire de fragments de sulfate d'héparane. Call for tender for Swiss and foreign researchers. Foundation Galas and Congress. Links and Documents to download. Noé and Noa Book. Internet website of associations or foundations. Jump to Main Navigation and Login. Devof inhibitors of gala...

fondation-sanfilippo.org

Lysosomal enhancement as a therapeutic strategy for MPS

http://www.fondation-sanfilippo.org/index.php/en/sanfilippo-disease/supported-projects/lysosomal-enhancement-as-a-therapeutic-strategy-for-mps

Conception of chemical chaperones. Lysosomal enhancement as a therapeutic strategy for MPS. Dev of inhibitors of galactosidase β and the glucuronidase β. Gene Therapy for MPS IIIA and B. Prévention de l'accumulation intracellulaire de fragments de sulfate d'héparane. Call for tender for Swiss and foreign researchers. Foundation Galas and Congress. Links and Documents to download. Noé and Noa Book. Internet website of associations or foundations. Jump to Main Navigation and Login. Prof Marco Sardiello’s t...

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connect.patientcrossroads.org

Home

Click here to register now! Every disease community should have a common, accessible patient registry. We’ve heard over and over that creating a shared registry of patients is one of the most valuable things a disease community can do. A registry puts critical information about a disease all in one place. This makes it easier for researchers to study the disease, for patients to learn about front-line treatments and for advocates to speak on behalf of the disease community. Forgot username / password?

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