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Adventures in FPIES, Fructose Malabsorption, REAL Food, and life with two amazing little boys

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https://cradlerockingmama.com

Adventures in FPIES, Fructose Malabsorption, REAL Food, and life with two amazing little boys

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- Page 2 of 61 -

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Jed (Mr. Charm). Zac (Mr. Happy). Newer posts ». November 9, 2015. Living with Fructose Malabsorption. This Is getting. Ridiculous. Last month, we all got sick. After our Chicago trip. Jed and Darrel bounced back quickly, but Zac and I had a harder time recovering. We had barely begun feeling better when, about three weeks ago, we all got the stomach bug. Apparently, every Fall our family will get hit with a stomach bug. It happened last year. That, and the year before. Ugh Ugh. Ugh. He doesn’t, th...

2

My Recipes -

http://cradlerockingmama.com/recipes

Jed (Mr. Charm). Zac (Mr. Happy). These are the recipes we use the most often. Many are my own creation, some are inspired by others and “tweaked” to my families needs by yours truly, and some are straight re-creations of other brilliant cooks’ recipes; if so, there will be a link to the original recipe in my post. All of them are delicious, and I hope you like them! Any other allergens in the recipes are usually easily substituted. Banana Quinoa Breakfast Bake. Overnight Crockpot Oatmeal Banana Bake.

3

Our Lives Archives -

http://cradlerockingmama.com/category/our-lives

Jed (Mr. Charm). Zac (Mr. Happy). Category Archives: Our Lives. March 16, 2016. February was a dark time for me. The diagnosis of Autism really rocked my world. Not Jed’s diagnosis, but my unofficial diagnosis. Maybe that sounds strange, but it’s undeniable that I accepted Jed 100% as-is and had no fear whatsoever about his future, while simultaneously struggling to accept the same diagnosis Continue reading →. Autism Stigma: Did She Really Just Call Me Stupid? January 28, 2016. January 25, 2016. This po...

4

The FPIES World Archives -

http://cradlerockingmama.com/category/the-fpies-world

Jed (Mr. Charm). Zac (Mr. Happy). Category Archives: The FPIES World. Global FPIES Day 2015: Be the Voice. October 14, 2015. Today, October 14, 2015, is Global FPIES Day, with the theme of “Be the Voice”. Our family was lucky (if you can call it that). Zac’s second FPIES reaction at 7 weeks old was so severe, the hospital took us seriously and didn’t just try to tell us it was Continue reading →. What Every New FPIES Parent Should Know (On Our 3 Year Anniversary). August 5, 2015. May 12, 2015. It’s...

5

What Every New FPIES Parent Should Know (On Our 3 Year Anniversary) -

http://cradlerockingmama.com/what-every-new-fpies-parent-should-know-on-our-3-year-anniversary

Jed (Mr. Charm). Zac (Mr. Happy). SoFicom Saved Our Bacon. Three Years on a TED ». What Every New FPIES Parent Should Know (On Our 3 Year Anniversary). August 5, 2015. Three years ago, on August 1, 2012, while standing in the hallway of the doctors office. We received our FPIES diagnosis. It seems like an eternity and a blink simultaneously. Well, that post and My New Reality. Actually, were the two posts that truly amaze me from that time. Both were astonishingly prophetic, and both clearly show a n...

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fufpies.wordpress.com fufpies.wordpress.com

Oat & Rice Trial Update | Frantically Unraveling FPIES

https://fufpies.wordpress.com/2015/02/27/oat-rice-trial-update

A mom's mission to understand and overcome her son's rare food allergy. Philadelphia FPIES Support Group. Oat and Rice Trial Update. February 27, 2015. The last couple of months have been full of ups and downs! I knew that squeezing in so many food challenges/trials over the holiday season was going to make things a little extra-stressful. What I didn’t count on was the confusion and uncertainty that would result. First we had the weird symptoms during the dairy trial. I discussed my concerns with Jonath...

fufpies.wordpress.com fufpies.wordpress.com

Cathy | Frantically Unraveling FPIES

https://fufpies.wordpress.com/author/cathybykowski

A mom's mission to understand and overcome her son's rare food allergy. Philadelphia FPIES Support Group. No News is Good News! October 14, 2016. Well, it has certainly been a while since my last blog post. Today is Global FPIES Day so I figured it was a perfect time to share an update. A lot has happened in our lives over the past 20 months or so, I’ll do my best to just give the abridged version. The bottom line is that E is doing wonderfully! He has officially passed trials of rice, dairy and egg!

fufpies.wordpress.com fufpies.wordpress.com

Rocking the Rice Trial! | Frantically Unraveling FPIES

https://fufpies.wordpress.com/2014/12/10/rocking-the-rice-trial

A mom's mission to understand and overcome her son's rare food allergy. Philadelphia FPIES Support Group. Rocking the Rice Trial! December 10, 2014. E’s rice challenge on Monday was great! He inhaled his first dose of rice flour (1/4 tsp mixed in applesauce) and could barely wait the 20 minutes until his next dose (1/2 teaspoon mixed in applesauce). The rest of the day was gloriously boring. There was no sign of any problem or discomfort and we were out of there by 1:00! We are so lucky. Amazing success ...

theallergistmom.com theallergistmom.com

Who Needs Nuggets When You Can Have Tortas? « Recipes « The Allergist Mom

http://theallergistmom.com/2012/10/08/who-needs-nuggets-when-you-can-have-tortas

One physician's journey from learning to living. The Food Challenge Challenge. Food Allergy Death Talk →. Who Needs Nuggets When You Can Have Tortas? October 8, 2012. Letty’s Chicken Tortas. 3 boneless skinless chicken breast halves. 4 TBSP gluten-free flour. 2 tsp olive oil. 1/4 white onion, chopped finely. 1/4 cup rice drink. 1/2 tsp garlic salt. 1/4 tsp black pepper. 1/4 tsp kosher salt. When you take the tortas out of the pan, set on a paper towel to drain the remaining oil. I usually serve these up ...

fpiesmudpies.blogspot.com fpiesmudpies.blogspot.com

FPIES & Mud Pies: Our Boys, Our Journey, Our New World...: FPIES Foundation Celebrates Food Allergy Awareness Week 2015

http://fpiesmudpies.blogspot.com/2015/05/fpies-foundation-celebrates-food.html

FPIES and Mud Pies: Our Boys, Our Journey, Our New World. FPIES stands for Food Protein Induced Enterocolitis Syndrome and our youngest son has it. This blog follows his story on this journey: our challenges, our triumphs, our adaptations as we navigate through this new world created by FPIES. Little Man's Diet and Recipes! Have you ever had an instinct? An instinct that begins as a gnawing.Then grows into a raging burn; a burning instinct that something is wrong. And that burning feeling now? More of ou...

evansfpies.weebly.com evansfpies.weebly.com

Evan's story - Evan's journey with FPIES & EoE... Evan's Alltag mit Lebensm. Protein induzierte Enterokolitis Syndrom und Eosinophile Ösophagitis

http://evansfpies.weebly.com/evans-story.html

Evan's journey with FPIES and EoE. Evan's Alltag mit Lebensm. Protein induzierte Enterokolitis Syndrom und Eosinophile Ösophagitis. Evan's food list and facts. Along with the allergist, we decided to try the hypoallergenic formulas, of which there are three kinds in the US, for supplementing along with continued nursing. He reacted to the first one we tried with vomiting, and stool in the blood, but did fine with the second one! His main nutrition remains the medical hypoallergenic formula EleCare. And t...

fpiesmudpies.blogspot.com fpiesmudpies.blogspot.com

FPIES & Mud Pies: Our Boys, Our Journey, Our New World...: Feeding Tube Awareness Week 2013

http://fpiesmudpies.blogspot.com/2013/02/feeding-tube-awareness-week-2013.html

FPIES and Mud Pies: Our Boys, Our Journey, Our New World. FPIES stands for Food Protein Induced Enterocolitis Syndrome and our youngest son has it. This blog follows his story on this journey: our challenges, our triumphs, our adaptations as we navigate through this new world created by FPIES. Little Man's Diet and Recipes! Have you ever had an instinct? An instinct that begins as a gnawing.Then grows into a raging burn; a burning instinct that something is wrong. And that burning feeling now? An increas...

fpiesmudpies.blogspot.com fpiesmudpies.blogspot.com

FPIES & Mud Pies: Our Boys, Our Journey, Our New World...: Fight to Cure FPIES

http://fpiesmudpies.blogspot.com/2011/07/fight-to-cure-fpies.html

FPIES and Mud Pies: Our Boys, Our Journey, Our New World. FPIES stands for Food Protein Induced Enterocolitis Syndrome and our youngest son has it. This blog follows his story on this journey: our challenges, our triumphs, our adaptations as we navigate through this new world created by FPIES. Little Man's Diet and Recipes! Have you ever had an instinct? An instinct that begins as a gnawing.Then grows into a raging burn; a burning instinct that something is wrong. And that burning feeling now? If you wou...

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Jed (Mr. Charm). Zac (Mr. Happy). October 24, 2016. October 23, 2016. A week and a half ago I got hurt at work. Again. Only this time it’s my right hand. You know, my dominant one. The one that allows me to do everything I do. I missed 5 days of work already this month and have to go to the doctor again Monday to see if I can go back this week. Spoiler alert: I can’t. His dress-up day.). I can handle that! Worse But I’m trying to cut down on the cussing I do. Ahem. From doing papier mache. Does anyone wi...

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