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The Cruse Kids - Our journey living with biliary atresia and liver transplant

Malakai was born Sep 24, 2008. At four weeks old, multiple tests determined he had a rare liver disease called Biliary Atresia. BA is when the bile duct between the liver and the small intestine is blocked or absent. He had his first surgery Nov 6 to temporarily fix the problem. During a five week hospital stay for ascites, Malakai was put on the transplant list on Mar 20. He recieved his "Gift of Life" May 12, 2009 at Children's Hospital in St. Louis.

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The Cruse Kids - Our journey living with biliary atresia and liver transplant | crusekids.blogspot.com Reviews
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Malakai was born Sep 24, 2008. At four weeks old, multiple tests determined he had a rare liver disease called Biliary Atresia. BA is when the bile duct between the liver and the small intestine is blocked or absent. He had his first surgery Nov 6 to temporarily fix the problem. During a five week hospital stay for ascites, Malakai was put on the transplant list on Mar 20. He recieved his &quot;Gift of Life&quot; May 12, 2009 at Children&#39;s Hospital in St. Louis.
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1 lots to update
2 phew
3 posted by
4 the cruse family
5 1 comment
6 2 comments
7 save the date s
8 no comments
9 kaiden birthday
10 hospitalization december 2011
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lots to update,phew,posted by,the cruse family,1 comment,2 comments,save the date s,no comments,kaiden birthday,hospitalization december 2011,more pictures,older posts,kai kai's liver buddies,eden,london lulu,paityn,xander,email me,carah117@yahoo com
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The Cruse Kids - Our journey living with biliary atresia and liver transplant | crusekids.blogspot.com Reviews

https://crusekids.blogspot.com

Malakai was born Sep 24, 2008. At four weeks old, multiple tests determined he had a rare liver disease called Biliary Atresia. BA is when the bile duct between the liver and the small intestine is blocked or absent. He had his first surgery Nov 6 to temporarily fix the problem. During a five week hospital stay for ascites, Malakai was put on the transplant list on Mar 20. He recieved his &quot;Gift of Life&quot; May 12, 2009 at Children&#39;s Hospital in St. Louis.

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The Cruse Kids - Our journey living with biliary atresia and liver transplant: Happy Birthday, Kaiden!

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The Cruse Kids - Our journey living with biliary atresia and liver transplant. Sunday, January 22, 2012. Happy Birthday, Kaiden! Tonight I took Makena to see Disney Princess on Ice. It was a "Girls Night Out" which she loves. She is always asking to spend one on one time with mommy. Who could say no to that? Anyways, as we were going in we saw a homeless man sitting under a bridge with a cup and sign that read "homeless, anything will help, God bless" When we passed him, Makena said "Mom, that's weird!

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The Cruse Kids - Our journey living with biliary atresia and liver transplant: April 2012

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The Cruse Kids - Our journey living with biliary atresia and liver transplant. Saturday, April 14, 2012. Email at GoTeamMalakai@yahoo.com. To contact me directly. Also, we are having a blood drive at Stones Crossing Church in Greenwood on July 29, 2012 directly following the second service at 12:15. More information to follow. Cost: $15 for the first canvas, $5 for each additional for families with more than one child. Date to be announced but thinking it will be May 19. Subscribe to: Posts (Atom).

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The Cruse Kids - Our journey living with biliary atresia and liver transplant: June 2010

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The Cruse Kids - Our journey living with biliary atresia and liver transplant. Thursday, June 24, 2010. He loves to mimic his sister and he's finally been trying new foods and drinks! And here is at Emma and Jack's birthday party riding a big kid bike. He really wants to be big :). Messy after breakfast.complete with a baby food unibrow! Here is my little guy at the zoos splash park. He loved being able to run around with all the other kiddos.I loved watching him. And check out that belly&#46...Watermark...

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The Cruse Kids - Our journey living with biliary atresia and liver transplant: April 2010

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The Cruse Kids - Our journey living with biliary atresia and liver transplant. Friday, April 23, 2010. It's been a month since my last update! My handsome little man fishing with Daddy. Makena and Malakai with the Easter Bunny. This is what he does when you ask him to do his "Home Alone" face :). Kids at the Butterfly Gardens. The venogram is not even necessary at this point! His hemoglobin was 10 at his last draw. The lowest it got was 5.2 and it should be 12. So we ARE getting there! His vocabulary is ...

5

The Cruse Kids - Our journey living with biliary atresia and liver transplant: Pediatric Liver Transplant - Children's Hospital St. Louis

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The Cruse Kids - Our journey living with biliary atresia and liver transplant. Tuesday, January 24, 2012. Pediatric Liver Transplant - Children's Hospital St. Louis. Malakai had the Kasai on November 6, 2008. We were thrilled to take him home only 5 days after. He progressed slowly, but we started to see the whites of his eyes come back. By January, his numbers were coming down and we thought his Kasai had worked. He spent a few days in the hospital mid-January. Should we have taken the first liver?

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Ember's Story: July 2010

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Sunday, July 25, 2010. Ember didn't care, she was determined to hold her. She settled for touching her and saying "Awww Baby" a lot. I hate to leave this update on a sad note, so here's a cute thought. Ember's hair is now just long enough to put into pigtails! It is the most adorable thing I have seen yet! I will try to post pics soon. Jeannie, Jane, Angel, Mommy, etc. Subscribe to: Posts (Atom). To follow up on the first part of our journey, please go to www.caringbridge.com/visit/emberzstory. A blog fo...

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The Corn Boys: March 2009

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Tuesday, March 31, 2009. On another note, we can now officially deliver at St. Francis. Anthem and St. Francis had another breach in contract; it was up in the air if St. Francis would stay in Anthem’s network. It was ruled on Monday that St. Francis will stay in network until Sept. 1st at which point their contract will be up for review again. Saturday, March 28, 2009. Here are a few of the pictures we were able to get. Monday, March 16, 2009. A Day At The Park. Thursday, March 12, 2009. My 21 9 bday.

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American Basement Solutions: Do not use fiberglass insulation in a crawl space

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The rambling thoughts of a basement, crawlspace, and foundation inspector. We service Indiana, Ohio, Kentucky, and Illinois. Call us at 1-877-409-2837 or Visit our website at www.americanbasementsolutions.com. Thursday, November 19, 2009. Do not use fiberglass insulation in a crawl space. If you need professional advice on how to insulate your crawlspace, give us a call @ 1-877-409-2837 or SIGN UP ONLINE for a FREE CONSULTATION. Thanks for reading the rambling thoughts of a foundation inspector,. Do not ...

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American Basement Solutions: Mold Remediation in Indianapolis: Your House Might Have Hidden Mold

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The rambling thoughts of a basement, crawlspace, and foundation inspector. We service Indiana, Ohio, Kentucky, and Illinois. Call us at 1-877-409-2837 or Visit our website at www.americanbasementsolutions.com. Sunday, May 10, 2015. Mold Remediation in Indianapolis: Your House Might Have Hidden Mold. Mold Remediation in Indianapolis: Your House Might Have Hidden Mold. Posted by Rebecca Ewert. Please do not post your website as a link if you are not going to link back to ours from your website.

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American Basement Solutions: Importance of a Foundation Repair

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The rambling thoughts of a basement, crawlspace, and foundation inspector. We service Indiana, Ohio, Kentucky, and Illinois. Call us at 1-877-409-2837 or Visit our website at www.americanbasementsolutions.com. Friday, May 15, 2015. Importance of a Foundation Repair. Here are some of the reason why. Save Money from Further Damage Repairs. Protect the Value of Your Property. A house with a weak and shaky foundation will be of less value in the real estate market. Who would want a home like that? PLEASE DON...

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American Basement Solutions: Columbus Basement Waterproofing Helps Prevent Leaky Basement Problems

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The rambling thoughts of a basement, crawlspace, and foundation inspector. We service Indiana, Ohio, Kentucky, and Illinois. Call us at 1-877-409-2837 or Visit our website at www.americanbasementsolutions.com. Friday, April 3, 2015. Columbus Basement Waterproofing Helps Prevent Leaky Basement Problems. Columbus Basement Waterproofing Helps Prevent Leaky Basement Problems. Posted by Rebecca Ewert. Please do not post your website as a link if you are not going to link back to ours from your website.

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American Basement Solutions: Indianapolis Foundation Repair: A Fix for Uneven Floors in Your Home

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The rambling thoughts of a basement, crawlspace, and foundation inspector. We service Indiana, Ohio, Kentucky, and Illinois. Call us at 1-877-409-2837 or Visit our website at www.americanbasementsolutions.com. Friday, May 8, 2015. Indianapolis Foundation Repair: A Fix for Uneven Floors in Your Home. Indianapolis Foundation Repair: A Fix for Uneven Floors in Your Home. Posted by Rebecca Ewert. Please do not post your website as a link if you are not going to link back to ours from your website.

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American Basement Solutions: Indiana Mold Remediation Service Must Be Performed Quickly as Needed

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The rambling thoughts of a basement, crawlspace, and foundation inspector. We service Indiana, Ohio, Kentucky, and Illinois. Call us at 1-877-409-2837 or Visit our website at www.americanbasementsolutions.com. Tuesday, May 12, 2015. Indiana Mold Remediation Service Must Be Performed Quickly as Needed. Indiana Mold Remediation Service Must Be Performed Quickly as Needed. Posted by Rebecca Ewert. Please do not post your website as a link if you are not going to link back to ours from your website.

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American Basement Solutions: Indianapolis Basement Waterproofing: The Health Perils from Underneath

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The rambling thoughts of a basement, crawlspace, and foundation inspector. We service Indiana, Ohio, Kentucky, and Illinois. Call us at 1-877-409-2837 or Visit our website at www.americanbasementsolutions.com. Wednesday, May 6, 2015. Indianapolis Basement Waterproofing: The Health Perils from Underneath. Indianapolis Basement Waterproofing: The Health Perils from Underneath. Posted by Rebecca Ewert. Please do not post your website as a link if you are not going to link back to ours from your website.

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The Cruse Kids - Our journey living with biliary atresia and liver transplant. Monday, April 8, 2013. I can not believe it's been almost a year since I've posted on here! He's in school a few days a week and is very bright! He can write his name, count almost to 100 with help. I'm amazed by him every day! Also, he has been quite the speaker for Indiana Organ Procurement Organization (IOPO) He went with me to University of Indianapolis. He did such a great job raising awareness for organ donation....Their...

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