curegm1foundation.org

curegm1.org

Nov. 2016 Cure GM1 Update – Cure GM1 Foundation

http://curegm1.org/nov-2016-cure-gm1-update

Non-profit foundation dedicated to find a treatment and cure for GM1 Gangliosidosis. About Cure GM1 Foundation. Nov 2016 Cure GM1 Update. November 13, 2016. March 7, 2017. Sadly, November has only just begun and two children, Maite and Porter passed away this month after battling infantile GM1 Gangliosidosis, the most severe form of GM1. Read the touching quotes from their families below. Our hearts go out to Maite and Porter’s families and to all those affected by GM1. Fundraising and Gene Therapy Update.

curegm1.org

main – Cure GM1 Foundation

http://curegm1.org/tag/main-2

Non-profit foundation dedicated to find a treatment and cure for GM1 Gangliosidosis. About Cure GM1 Foundation. Cure GM1 Triple Play Drive 2016. October 29, 2016. November 1, 2016. Don’t miss your chance to TRIPLE your donation this month and to help save children’s lives from GM1! More details on how this all works below! Before we get into the nitty gritty, first let me say it’s been an amazing. Cure GM1 Tongue Twister Challenge. October 10, 2016. See the video and instructions below! How do I do it?

redijewelry.com

about susan at red i jewelry

http://www.redijewelry.com/about.html

Me, myself and i. Me, myself and i. Most of my gemstones are purchased from trusted merchants who share my belief in social and environmental sustainability. Imperfections and inclusions in gemstones do not bother me. In fact, I consider these inclusions as an essential element to the nature of the stone. Life is not perfect after all! My favorite gemstone is labradorite. It has a natural colorful chatoyancy to it that just makes me swoon. Amazing, wonderful red i jewelry. Non-profits near and dear to me:.

curegm1.org

Dec. 2016 Cure GM1 Update – Cure GM1 Foundation

http://curegm1.org/dec-2016-cure-gm1-update

Non-profit foundation dedicated to find a treatment and cure for GM1 Gangliosidosis. About Cure GM1 Foundation. Dec 2016 Cure GM1 Update. December 16, 2016. December 16, 2016. Let’s bid 2016 goodbye and work towards making 2017 the year of a GM1 Gangliosidosis human clinical trial! It’s been an amazing year for Cure GM1 in 2016! In November, we had another amazing month and over $200K was raised again! We need you all! Please consider a year end gift! An Important First Step. A Cure for Clara. Below is a...

jennysgm1journey.org

Partners — Jenny's GM1 Journey

http://www.jennysgm1journey.org/partners

Our partners are so important, we accomplish a lot together. Jenny's medical team at Lurie Children's Hospital of Chicago and University of Minnesota Medical Center provide wisdom and expertise in the field of lysomal storage disorders. The Cure GM1 Foundation and GM 1-2-3 shared knowledge and emotional support through our family's transition and have inspired us to take action in the Midwest. If you would like to partner with us, fill out the form below and one of our staff members will get back to you.

curegm1.org

Who We Are – Cure GM1 Foundation

http://curegm1.org/who-we-are

Non-profit foundation dedicated to find a treatment and cure for GM1 Gangliosidosis. About Cure GM1 Foundation. Christine Waggoner – President, Co-Founder. Douglas Dooley – Vice President, Co-Founder. Marilee Kay Leishman – Secretary. Ryan Bragg -Board Member. Javey de Venecia – Board Member. Dr Cynthia Tifft – Deputy Clinical Director, National Human Genome Research Institute. Dr Alessandra d’Azzo – Genetics, St. Jude’s Children’s Research Hospital. Subscribe to CureGM1.org. Join 69 other subscribers.

curegm1.org

Donate – Cure GM1 Foundation

http://curegm1.org/donate

Non-profit foundation dedicated to find a treatment and cure for GM1 Gangliosidosis. About Cure GM1 Foundation. All donations are tax-exempt and we will send you a receipt for your tax records so long as the necessary contact information is provided. Approach 1: Donate Directly to the Cure GM1 Foundation Online. Here’s our online form donations which uses PayPal. Approach 2: Mail the Cure GM1 Foundation a Check. Cure GM1 Foundation, PO Box 6890, Albany, CA 94706. Approach 3: Want Another Option?

cureforclara.com

About GM1

http://www.cureforclara.com/about-gm1

Clara and Dr. Doug Martin, leading GM1 researcher. What is GM1 Gangliosidosis? GM1 gangliosidosis is an inherited lysosomal storage disorder. That progressively destroys nerve cells (neurons) in the brain and spinal cord. The condition may be classified into three major types based on the general age that signs and symptoms first appear. Although the types differ in severity, their features may overlap significantly. Infantile ( type 1. Late Infantile and Juvenile ( type 2. Adult onset or chronic ( type 3.

curegm1.org

fundraising – Cure GM1 Foundation

http://curegm1.org/tag/fundraising

Non-profit foundation dedicated to find a treatment and cure for GM1 Gangliosidosis. About Cure GM1 Foundation. Lenka’s Story of Hope – Lenka i Dobra Spółka. September 5, 2016. March 7, 2017. Thousands and thousands of miles away in Poland, a beautiful, sweet girl named Lenka suffers from GM1 Type 2. Lenka was born on August 18, 2004. Lenka’s early childhood proceeded normally and her sociable and bold personality emerged. At the. Ian’s Story and Mission for a Cure. March 15, 2016. March 7, 2017. A very ...