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data4health.co.uk

Empower: Data4Health | Data4Health

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Empower: Data4Health | Data4Health | data4health.co.uk Reviews

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Useful Resources | Data4Health

http://www.data4health.co.uk/the-campaign/useful-resources

The ABPI represents innovative research-based biopharmaceutical companies, large, medium and small, leading an exciting new era of biosciences in the UK. CASMI is a partnership between Oxford University and UCL, created to develop new models for medical innovation. A national charity of over 150 patient organisations supporting all those affected by genetic conditions. European Conferences on Rare Diseases bring together a range of stakeholders from industry, government and acedemia. Created by people af...

2

News and Blog | Data4Health

http://www.data4health.co.uk/news-and-events

New app helping to improve patient care. A new app which detects early signs of kidney failure is now being used to improve care for some of the Royal Free’s most vulnerable patients. Using an instant alert system, the app, known as Streams, directs. The Royal Free announces partnership with DeepMind. The NHS For The Amazon Age. James Hargrave writes for the Huffington Post on how a new generation must be as willing to share patient information as they are to share personal information on social media.

3

Our Mission | Data4Health

http://www.data4health.co.uk/our-mission

Empower: Access to Medicine has led the patient charge to see vital reform to clinical trials, medical innovation and the rights of patients to access the drugs and treatments they need. Empower is now taking on a new important challenge in the health debate – using the data at the disposal of the NHS to produce more effective medicines and better outcomes for patients at all levels of the NHS, from Primary to Acute care. What do we want? How do we do it? First and foremost, we put patients front and cen...

4

Get Involved | Data4Health

http://www.data4health.co.uk/get-involved

We need your help to ensure the debate that Empower: Data4Health is calling for takes place and is heard by as many people as possible. Please join the campaign by entering your details below and contribute to the discussion about this important issue. We will keep you updated about developments as well as any events that are taking place. Join the campaign mailing list. Sign up to support the campaign and keep in touch with developments. Please contact James Hargrave at JBP PR.

5

Empower: Data4Health | Data4Health

http://www.data4health.co.uk/the-campaign

Empower: Data4Health is a new campaign whose mission is to put patients front and centre of the debate around the use of patient data for the betterment of our health system. We will do this by convening likeminded patients, charities, academics and industry to showcase the power effective use of patient data could have. Ldquo;I was diagnosed with leukaemia in 2001, and I’m still here today because of medical research facilitated by the patient data of the leukaemia community.

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Duchenne UK | Engaging With Regulators

https://www.duchenneuk.org/engaging-with-regulator

We fund more research than anyone else. Skip over main navigation. Patient and Parent Stories. Current Drugs For Duchenne. Treatments In The Pipeline. Learn About Clinical Trials. Our Strategy To End Duchenne. Funding Research and Trials. Accelerating Research and Trials. Collaborating With Other Funders. Apply For Research Funding. How You Can Help. Family and Friends Funds. Duchenne UK Privacy Policy. The Campaign For Early Access To Medicines. We’re pressing the Medicines and Healthcare products...

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Empower: Data4Health | Data4Health

Empower is now taking on a new important challenge in the health debate – using the data at the disposal of the NHS to produce more effective medicines and better outcomes for patients at all levels of the NHS from Primary to Acute care. By facilitating expert debate and discussion, online collaboration and sharing of best practice, the campaign aims to raise the issue of data in health higher up both the political and media agenda – and fundamentally put patients front and centre. A modern health service.

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